Tag: Tibial Tubercle Transfer (TTT)

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Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020

Post author By fibrofly73
Post date August 11, 2020
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After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints.

Tags chronic illness, chronic pain, Disease Awareness, Ehlers Danlos Syndrome hypermobility type, genetic disease, health education, hEDS, Medial Patellofemoral Ligament (MPFL) Reconstruction, patient experience, Pigmented Villonodular Synovitis, Rare and Genetic Disease Network, rare disease, Tibial Tubercle Transfer (TTT)

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