Tag: Disability

Categories
Care givers Child health chronic illness Drug development FibroFlutters Health and medical Healthcare Join the Community medical Medical Conditions / Disorders Medical news stories, blogs and research Partnerships Patient Advocacy Patient Engagement Patients Product Reviews Rare Rare Disease Advocacy Research Survey Therapies and Treatments Twitter Feed

Voice your opinions to improve medical products and services

Rare Patient Voice connects patients and family caregivers with confidential research studies and surveys. Their studies and surveys are opinion based and are all about the patients and caregivers experience to help improve treatments, products, and services.

Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!

Categories
#Innovation Awareness campaigns, events, blogs, petitions & posters Care givers Drug development EVENTS Health and medical Healthcare Industry & business matters Media Partners medical Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy patient centricity Patient Engagement Patients pharma Professionals Rare Rare Disease Advocacy rare genetic disorder Researchers Scientists Supporters / Ambassadors Twitter Feed

RARE Summit 21 – it’s more than an event – it’s where the magic happens!

We're supporting RAREsummit21 #StrongerTogether

RAREsummit is more than an event – it’s where the magic happens.  A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.

Categories
Ataxia Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities chronic illness Health and medical Healthcare Medical Conditions / Disorders Medical news stories, blogs and research Neurology Patient Advocacy Patients Rare Rare Disease Advocacy rare genetic disorder Supporters / Ambassadors Twitter Feed

International Ataxia Awareness Day 25th September with ‘Ataxia and Me’

The word ‘ataxia’ comes from the Greek ‘a taxis’, which means ‘without order’.
          Our mission is to bring back some of the order to the lack of order
It is the term used for a group of neurodegenerative diseases that affect balance and coordination.

Categories
About Us - FibroFlutters AI in medicine anxiety Articles Biotechnology Blogs / Bloggers Cell & Microbiology chronic illness chronic pain Deep learning Dementia / Alzheimers Diabetes Digital Health Disability Drug development Educational EVENTS events Gastro / Gut / Bowel Global resources Health and medical Healthcare Heart Health inflammatory Info site invisible illness Machine learning Media Partners medical Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research mental health NCCIH Neuroscience Newsletters/Papers/Magazines/Blogs NIH ( The National Institutes of Health ) US Pain management Patient Advocacy Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Precision Medicine Product Reviews Professionals public health Rare Rare Disease Advocacy rare genetic disorder Research Twitter Feed

#chronicillnessVOICE Aug 17 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
Ataxia Awareness campaigns, events, blogs, petitions & posters Charities Collagen disorder Disability EDS EVENTS FibroFlutters Patient Advocacy Patients Rare Rare Disease Advocacy rare genetic disorder Sites to visit Zebra Strutters

We’re off mobilising for charity – 1 month long Superhero Series challenge

Using my rollator with its seat for those appropriately paced stops we hope to get out of the back lane this time. Last year the pandemic put restrictions on how I could complete the challenge.

Categories
About Us - FibroFlutters Articles Ataxia Awareness campaigns, events, blogs, petitions & posters Charities chronic illness chronic pain Disability EDS EVENTS FibroFlutters Fibromyalgia Gastro / Gut / Bowel Health and medical Healthcare Info site invisible illness Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research mental health Multiple Sclerosis (MS) Musculoskeletal Neurology Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy Research Sites to visit Therapies and Treatments

#chronicillnessVOICE July 6, health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
Articles Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers chronic illness EVENTS Health and medical Info site Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Patients Pharma / Science / Tech / Digital / AI Professionals public health

#chronicillnessVOICE June 21 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
Alternative / Complementary Therapies & Treatments Care givers chronic illness chronic pain Disability EDS Fibro MeCFS online NEWS & INFO sources Fibromyalgia Health and medical Healthcare invisible illness Media medical Medical Conditions / Disorders Medical news stories, blogs and research mental health Newsletters Newsletters/Papers/Magazines/Blogs Pharma / Science / Tech / Digital / AI Professionals

Health, Medical, Research, Patient and Pharma related newsletters

Photo by Kaboompics .com on Pexels.com

These newsletters update themselves so please remember to check in, and / or remember to opt-in for the newsletters via the links provided.

Categories
Academics AI in medicine Alternative / Complementary Therapies & Treatments Arthritis Articles Autoimmune Blogs / Bloggers Brain inury Care givers Central Sensitivity Syndromes chronic illness chronic pain Chronic Widespread Pain Collagen disorder Dementia / Alzheimers Diabetes Digital Health Disability Drug development EDS EDS news and info Educational Endocrinology EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters Fibromyalgia Food, drink and recipes Gastro / Gut / Bowel Health Care Providers Healthcare Heart Health Hobbies Homecare inflammatory invisible illness LUPUS Lyme Disease MCAD ME CFS Media Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research mental health migraines mindfulness Musculoskeletal Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals Psoriasis public health Rare Reproductive Health Research Researchers Respiratory Rheumatoid arthritis Rheumatology Scientists Sites to visit Skin conditions The hints and tips station Therapies and Treatments

My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Bringing a varied selection of #healthnews #medicalnews #pharmanews #researchnews to you in relation to many aspects within the #healthcare #medicalhealthcare & #pharmaceutical landscapes.

Categories
Blogs / Bloggers chronic illness Collagen disorder EDS Gastro / Gut / Bowel Hobbies HYPERMOBILITY Medical Conditions / Disorders P.O.T.S Patients

Our First Dog Show – Competing in Rally Obedience as a Handler with a Disability – The Invincible Summer

What are a wonderful read this is by Kathleen Elizabeth, aka blogger of ‘The Invincible Summer’, as she talks about her first time as a disabled dog handler in a dog show. She eloquently describes in detail about the highs and lows of her experience whilst giving us a brilliant explanation of how this role […]