Tag: rare disease

AI in medicine Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers chronic illness Digital Health Disability Drug development Educational EVENTS Fibro MeCFS online NEWS & INFO sources Global resources Health and medical Health Care Providers Healthcare Industry & business matters Info site Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research Medical specialists / consultants Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy Research Researchers Scientists Slideshows Therapies and Treatments Webinar

#chronicillnessVOICE April 26 health, medical, pharma and research news

Post author By fibrofly73
Post date April 26, 2021
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Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Tags #chronicillnessVOICE, #notjustpatients, 2021 RARE Drug Development Symposium, Artificial Intelligence, awareness, biopharma, Bristol-Myers Squibb, Burnout, cancer drugs, Chronic Bloggers, chronic illness, chronic pain, Clinical research, covid 19 news, Digital Health, Drug development, EMJ, EMJ Radiology, EMJ reviews, FDA, FibroFlutters, Fibromyalgia, genetics, Global Genes, Global PNH Patient Registry, Health Advice, health IT, Health related news, health tech, Healthcare Dive: IT, healthcare industry, Infectious diseases, Med tech, Medical news, MedicineNet, mental exhaustion, mental health, Merck, Metastatic Breast Cancer, Multiple Sclerosis, neuroendocrine cancer, Neuroscience, Neuroscience News, newsletters, NORD, Patients, pharma, Policy & Regulation, Radiology, Radiopharma, rare disease, regeneration, Roche, Sciatica, Science-X, Skin Health, sleep health, Telomeres, Ulcerative Colitis, Virtual Public Genomics Café, wearables, Web MD, WordPress, World Orphan Drug Congress USA

AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers Care givers chronic illness Deep learning Digital Health Disability Drug development EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters genetics Global resources Health and medical Healthcare Industry & business matters Info site Machine learning medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy rare genetic disorder Research Researchers Scientists Webinar

#chronicillnessVOICE April 20 health, medical, pharma and research news

Post author By fibrofly73
Post date April 20, 2021
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Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Articles Awareness campaigns, events, blogs, petitions & posters chronic illness EVENTS Health and medical Media Medical Conditions / Disorders Medical news stories, blogs and research Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals Rare Disease Advocacy Sites to visit

#chronicillnessVOICE April 19 health, medical, pharma and research news

Post author By fibrofly73
Post date April 19, 2021
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Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

AI in medicine Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers chronic illness clinical trials Digital Health Drug development events EVENTS Fibro MeCFS online NEWS & INFO sources Global resources Health and medical Healthcare Info site medical Medical news stories Medical news stories, blogs and research Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals public health Research Researchers Scientists Sites to visit Therapies and Treatments

#chronicillnessVOICE April 16 health related news for everyone #notjustpatients

Post author By fibrofly73
Post date April 16, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

AI in medicine Articles Awareness campaigns, events, blogs, petitions & posters chronic illness clinical trials Collagen disorder Disability Drug development EDS EVENTS Fibro MeCFS online NEWS & INFO sources Fibromyalgia genomics Global resources Health and medical Healthcare medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Parkinsons Patient Advocacy Patient Engagement Patients Patients included Pharma / Science / Tech / Digital / AI Professionals Rare Sites to visit Webinar

April 14 #chronicillnessVOICE health, medical, pharma and research news

Post author By fibrofly73
Post date April 14, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Awareness campaigns, events, blogs, petitions & posters chronic illness Drug development EVENTS Health and medical Medical Conditions / Disorders Medical news stories, blogs and research Newsletters/Papers/Magazines/Blogs Patient Advocacy Patient Engagement Patients Pharma / Science / Tech / Digital / AI Professionals Sites to visit

#chronicillnessVOICE daily selection of health, medical, pharma and research news

Post author By fibrofly73
Post date April 13, 2021

#chronicillnessVOICE daily – health, patients, medical, research, #pharma related news for everyone #notjustpatients #chronicillnessVOICE daily: Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes. #chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch […]

#Innovation AI in medicine chronic illness clinical trials conference Deep learning Digital Health Drug development EVENTS genetics genomics Healthcare Machine learning Media Medical Conditions / Disorders Patient Advocacy patient centricity Patients pharma Pharma / Science / Tech / Digital / AI Professionals Rare rare genetic disorder Research Therapies and Treatments

There’s still time to REGISTER for this conference on RARE DISEASE AND ORPHAN DRUGS 1 – 2 October

Post author By fibrofly73
Post date September 26, 2020

The goal of this Conference is uniting all well-known clinical researchers, biotech professionals, Medical Advisories, Academicians and decision makers to discuss possible ways to accelerate orphan drug development and access to rare disease patients, including the introduction of recent technologies and products to help aid the access of orphan drugs

Tags Data Bridge Market Research, Federated Data Solutions, Orphan drug development, patient advocates, Patient Perspective, patient voice, precision medicine, rare disease, The Future Of Rare Diseases, virtual event

Articles Ataxia Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities chronic illness Educational Info site Join the Community Medical Conditions / Disorders Patient Advocacy Patients Rare

Are you aware of this #Rare? Today is International Ataxia Awareness Day.

Post author By fibrofly73
Post date September 25, 2020
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International Ataxia Awareness Day (IAAD) is on September 25 of each year. It is a coordinated effort from individuals and Ataxia organisations around the world to help shed light on this rare disease. #IAAD

Tags #IAAD, Alan Thomas, Ataxia and Me, Balance and coordination, Cerebelum, chronic illness, Disease Awareness, FUNdraising, Lack of order, Neurology, rare disease

Awareness campaigns, events, blogs, petitions & posters chronic illness Disability EDS Educational FibroFlutters HYPERMOBILITY Medical Conditions / Disorders Medical news stories Musculoskeletal Patient Advocacy Patients Rare Slideshows

Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020

Post author By fibrofly73
Post date August 11, 2020
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After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints.

Tags chronic illness, chronic pain, Disease Awareness, Ehlers Danlos Syndrome hypermobility type, genetic disease, health education, hEDS, Medial Patellofemoral Ligament (MPFL) Reconstruction, patient experience, Pigmented Villonodular Synovitis, Rare and Genetic Disease Network, rare disease, Tibial Tubercle Transfer (TTT)

Academics Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Disability Drug development eyeforpharma FibroFlutters FibroFlutters Home News Fibromyalgia Healthcare invisible illness Join the Community MAY 12TH Newsletters Patient Advocacy patient centricity Patient Engagement Patients Patients included Pharma pharma Professionals public health Rare Research Slideshows Support Group WEGO HEALTH

Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

Post author By fibrofly73
Post date July 30, 2020

Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards

Tags #WEGOHealthAwards, Awareness Campaign, Awareness Raising, chronic illness, clinical trials, collaboration, Community Network, Disease Awareness, Healthcare, Patient Advocacy, patient centricity, Patient Engagement, patient voice, rare disease, Social Media Network, WEGO HEALTH

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