#chronicillnessVOICE April 26 – health, patients, medical, research, pharma related news for everyone #notjustpatients
#chronicillnessVOICE April 26:
Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.
#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth
PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation. Unless stated posts are not sponsored, and this is produced for free and voluntarily.
#chronicillnessVOICE April 26 – NEWS
Editors pick of the days newsletters
FDA to scrutinize unproven cancer drugs after 10-year gap | Medical Xpress
by Matthew Perrone, APRIL 25, 2021
The three-day meeting on drugs from Merck, Roche and Bristol-Myers Squibb is part of an industrywide review triggered by an “unprecedented level of drug development” in recent years, according to FDA officials.
This Dec. 10, 2020 file photo shows Food and Drug Administration building in Silver Spring, Md. Each year the U.S. approves dozens of new uses for cancer drugs based on early signs that they can shrink or slow the spread of tumors. But how often do patients actually live longer, more active lives? That seemingly simple question is, in fact, one of the thorniest debates in medicine. (AP Photo/Manuel Balce Ceneta)
https://medicalxpress.com/news/2021-04-fda-scrutinize-unproven-cancer-drugs.html
Sourced via Medicine and Health news – Science X Newsletter Apr 25
Scientists cast new understanding of how skin repairs itself | Medical Xpress
by Mike Addelman, University of Manchester
University of Manchester scientists have cast new light on how our skin repairs itself, bringing the possibility of regeneration of the organ a step closer.
Credit: Unsplash/CC0 Public Domain
https://medicalxpress.com/news/2021-04-scientists-skin.html
Sourced via Medicine and Health news – Science X Newsletter Apr 22
More information: Svitlana Kurinna et al. Interaction of the NRF2 and p63 transcription factors promotes keratinocyte proliferation in the epidermis, Nucleic Acids Research (2021). DOI: 10.1093/nar/gkab167
Journal information: Nucleic Acids Research , Nucleic Acid Research
Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.
First atomic model of human telomerase constructed by electron cryo-microscopy | Phys.org
Provided by University of Cambridge
Excerpt: Telomeres act as a barrier to protect the genetic information from progressive degradation arising from incomplete DNA replication.
Three-dimensional structure of the human telomerase holoenzyme, as determined by cryo-EM at 3.4-3.8 Å resolution. Credit: MRC Laboratory of Molecular Biolof
https://phys.org/news/2021-04-atomic-human-telomerase-electron-cryo-microscopy.html
Sourced via Biology news – Science X Newsletter Apr 22
More information: George E. Ghanim et al. Structure of human telomerase holoenzyme with bound telomeric DNA, Nature (2021). DOI: 10.1038/s41586-021-03415-4
Journal information: Nature
Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.
Infectious Disease: Are These Historical Illnesses Coming Back? | MedicineNet
Reviewed By: Charles Patrick Davis, MD, PhD
We’ve made a lot of progress against illnesses like tuberculosis and scarlet fever. But more people seem to be coming down with these serious diseases.
https://www.medicinenet.com/diseases_conditions_making_comeback/article.htm
Mental Health: Signs You’re Mentally Exhausted | MedicineNet
Reviewed By: Charles Patrick Davis, MD, PhD
Are you irritable, tired, and finding it hard to focus? You may be mentally exhausted. Learn the 11 signs and also 3 ways to feel better.
https://www.medicinenet.com/mental_health_signs_you_are_mentally_exhausted/article.htm
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© 1996-2021 WebMD, LLC. All rights reserved.
Source slideshow on OnHealth
MedicineNet does not provide medical advice, diagnosis or treatment. See additional information.
Selection of posts by WordPress chronic bloggers that we support and follow
Hair by Abigail Johnston living with Metastatic Breast Cancer IV – No Half Measures, April 22, 2021
Dizzy’s MS Alphabet! by dizzythedonkey – Dinosaurs, Donkeys and MS, April 20, 2021. It’s MS awareness week! And for the occasion Dizzy has come up with her own MS alphabet!
The Guilt of Having Good Days by memyselfandchronicillness – Me, Myself and Chronic Illness Blog, April 23, 2021
SCIATICA AND SITTING – CAN SITTING FOR TO LONG CAUSE THIS PROBLEM?… by barmac5 – BACK PAIN BLOG UK… April 23, 2021
Opinions Based On Feelings Are Surprisingly Stable by BPS Research Digest / Emily Reynolds – The British Psychological Society, April 19, 2021
When People Lie About You and Other Wrongs Leaders Experience by Dan Rockwell – Leadership Freak
Listening to Calming Music at Bedtime Promotes Better Sleep | Neuroscience News
Older adults who listened to calming music before sleep, or while falling asleep, had better sleep quality than those who did not.
https://neurosciencenews.com/sleep-music-18274/
Sign up for their FREE newsletters and get the latest neuroscience headlines and summaries sent to your email once a day, totally free. delivered direct to your inbox.
Survey casts doubt on utility of wearable devices in healthcare | Healthcare Dive: IT
By Ron Shinkman
Forrester’s report, based on interviews with doctors, patients and vendors, suggests data gaps and physician skepticism of the popular products is too high for widespread adoption, although design changes could remedy that.
Image courtesy of Amazon
Sourced via Healthcare Dive: IT Newsletter Apr 22 (Doctors doubt clinical uses of wearables)
© 2021 Industry Dive
Warning Signs of Ulcerative Colitis | Slideshow
Reviewed by Arefa Cassoobhoy, MD, MPH on July 27, 2020
UC is a bowel disease that causes inflammation of the cells lining your large intestine. This may lead to sores that can bleed and keep your body from digesting food like it should. Here’s what to watch for.
Image by VEM/Photo Researchers
https://www.webmd.com/ibd-crohns-disease/ulcerative-colitis/ss/slideshow-uc-overview
EMJ
Explore our dedicated COVID-19 pages
Out Now: New Issue of EMJ Radiology
An open-access eJournal that provides healthcare professionals with peer-reviewed articles written by experts, exclusive interviews, and highlights from the European Congress of Radiology (ECR) 2021. These are accompanied by abstract summaries of presentations from the congress.
DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li
EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates
Radiopharma remains hot as Germany’s ITM raises $109M to advance neuroendocrine cancer program | Endpoints News
“The world of radiopharmaceuticals has been heating up over the last few years, and Thursday saw another company focused on the field pull in a new nine-figure raise.”
Radiopharma remains hot as Germany’s ITM raises $109M to advance neuroendocrine cancer program | Endpoints News
Sourced via: John Carroll — Endpoints News | Subscription may be required
Endpoints News
Essential biopharma news and analysis
Independent journalism since 2016
Health, Medical, Research, Patient and Pharma related newsletters
A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.
The above post includes a link to our very own The #chronicillnessVOICE Daily newsletter for everyone #notjustpatients paper.li
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EVENTS & WEBINARS
Click the image above to go and get your ticket
The World Orphan Drug Congress USA Virtual kicks off next Wednesday, April 28 — will you be there?
Here’s a few of the best sessions you don’t want to miss:
Outlook on European market access strategies for rare diseases
9:00AM EST
Securing post-launch growth for orphan products
11:15AM EST
Commercializing advanced therapies for rare diseases
12:45PM EST
Our conference has also become the industry defining meeting on Advanced Therapies for rare diseases, featuring discussions on clinical development, manufacturing and commercialization of cell and gene therapies, as well the annual gathering for artificial intelligence and digital health solutions transforming the rare disease industry!
https://www.terrapinn.com/virtual/world-orphan-drug-congress/our-story.stm
Virtual Public Genomics Café
Friday 14 May 2021, 12 – 2pm
(this café is taking place as part of the Genomics Showcase)
The Café is free to join and will be an informal opportunity to meet others and find out about new advances in the area of genomic medicine in Wales. It will also be a chance for people to come together, and let us know how we can better support those affected by rare or genetic conditions.
The special café is being held as part of the first ever Genomics Showcase in Wales and will feature relaxed talks from speakers including:
- Covid-19 a year on: Professor Keir Lewis, Hywel Dda University Health Board
- Experiences of a Rare Disease Parent Advocate: Marie James
- The Role of Rare Copy Number Variants in psychiatric disorders: Dr Kim Kendall, MRC Centre for Neuropsychiatric Genetics and Genomics, Cardiff University
- Getting involved in Genomics in Wales: Patient & Public Sounding Board Members, Genomics Partnership Wales
- Opportunity for discussion and networking
As the café is part of the Genomics Showcase, you will need to register for the via the specific link below. This will give you access to the entire Showcase (including talks, stands, activities, films and more) including the café.
| The Wales Gene Park Cardiff University The Institute of Medical Genetics Heath Park Cardiff CF14 4XN | Parc Geneteg Cymru Prifysgol CaerdyddY Sefydliad Geneteg Feddygol Y Mynydd Bychan Caerdydd CF14 4XN |
Advancing Research Through the Global PNH Patient Registry
Date:
May 12, 2021
Time:
1:00 – 2:00pm ET
The Global PNH Patient Registry is a collaborative effort between the Aplastic Anemia and MDS International Foundation (AAMDSIF), industry sponsors and the National Organization for Rare Disorders (NORD) to study paroxysmal nocturnal hemoglobinuria (PNH). It supports research, provides insight on treatment for the PNH community and helps understand the progression of PNH over time.
Register for this webinar to learn more about this patient registry.
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 330 patient organization members, is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and patient services. rarediseases.org55 | Kenosia Ave, Danbury, CT 06810
2021 RARE Drug Development Symposium: Registration Now Open
The landscape of rare drug development is constantly evolving. Gain knowledge on these important changes; interact with experts, patients, and advocates in the field and ultimately discover your role in advancing drug therapies at our 2021 RARE Drug Development Symposium happening virtually June 9-11, 2021.
New to this year’s event is an optional pre-conference workshop on June 9, targeted to attendees who are in the early stages of research engagement and looking to build knowledge in core competencies that will be expanded upon in the main event program.
Register now for this year’s event to deepen your understanding of rare disease drug development efforts!
Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!
Raise your #chronicillnessVOICE
Campaigns
Add your story to The Disability Account | Scope
“By adding your story, you’ll join others doing the same. The Scope campaigns team will put these together into The Disability Account. They will share this powerful account of real-life stories with Department for Work Pensions. This will help the Government understand the financial pressures disabled people face, and make change happen.”
OVER THIRTEEN HEALTH RELATED AWARENESS DAYS, WEEKS AND FOR THE MONTH OF MAY 2021… | VIA BACK PAIN BLOG UK… barmac5
BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA and ARTHRITIC CONDITIONS. BLOG AT WORDPRESS.COM.
Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!
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