#chronicillnessVOICE May 11 health, medical, pharma and research news

_{This system helps robots better navigate emergency rooms | Tech Xplore MAY 10, 2021}

by University of California – San Diego

The team trained the algorithm on videos from YouTube, mostly coming from documentaries and reality shows, such as “Trauma: Life in the ER” and “Boston EMS.” The set of more than 700 videos is available for other research teams to train other algorithms and robots. Credit: University of California San Diego

https://techxplore.com/news/2021-05-robots-emergency-rooms.html

Sourced via: Technology news – Science X

More information:   Angelique M. Taylor et al. Social Navigation for Mobile Robots in the Emergency Department. cseweb.ucsd.edu/~lriek/papers/taylor-icra-2021.pdf

Science X is a network of high-quality websites that provides the most complete and comprehensive daily coverage of science, technology, and medical news.

_{New MRI Technique Can Detect Early Dysfunction of the Blood-Brain Barrier With Small Vessel Disease | Neuroscience News}

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DP-ASL, a new neuroimaging technique may help researchers identify early blood-brain barrier dysfunction associated with SVD.

https://neurosciencenews.com/svd-bbb-neuroimaging-18382/

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Sign up for their FREE newsletters and get the latest neuroscience headlines and summaries sent to your email once a day, totally free. delivered direct to your inbox.

_{Think You Have Penicillin Allergy? You May Not May 3, 2021}

By Marcia Frellick

Most people whose medical records say they are allergic to penicillin may not actually be, an allergist said Thursday during the American College of Physicians Internal Medicine Meeting 2021.

Image original source unknown

https://www.webmd.com/allergies/news/20210503/think-youre-allergic-to-penicillin-you-may-not-be

Medscape Medical News© 2021 WebMD, LLC. All rights reserved.

This tool does not provide medical advice. See additional information.

_{Out Now: New Issue of EMJ Radiology}

An open-access eJournal that provides healthcare professionals with peer-reviewed articles written by experts, exclusive interviews, and highlights from the European Congress of Radiology (ECR) 2021. These are accompanied by abstract summaries of presentations from the congress.

DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li

http://news.emjreviews.com

EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates

_{Health, Medical, Research, Patient and Pharma related newsletters}

A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.

https://fibroflutters.com/2021/02/20/health-medical-research-patient-pharma-newsletters-selfupdating/

The above post includes a link to our very own The #chronicillnessVOICE Daily newsletter for everyone #notjustpatients paper.li

Making the Unseen Seen ARDEnt Report – CRDN EVENT

There is still time to register for this event TODAY > MAKING THE UNSEEN SEEN: Rare Disease and the impact of the COVID19 pandemic.

Event by Cambridge Rare Disease Network (CRDN) and Niemann-Pick UK (NPUK)

“CRDN collaborated with Medics 4 Rare Diseases and Rare Revolution Magazine to bring together a cross sector group of experts and advocates newly named ARDEnt (Action for Rare Disease Empowerment) to produce a report called “Future Proofing Rare Disease Care, Research, and Treatment.” 

_{Join up for this webinar to learn about their latest findings}

ARDEnt Group

Organiser of Making the Unseen Seen ARDEnt Report

#impactofcovid19 #rarediseases #empowerment #healthcare #report #raredisease #rare2021

_{Virtual Public Genomics Café}

Friday 14 May 2021, 12 – 2pm

(this café is taking place as part of the Genomics Showcase)

The Café is free to join and will be an informal opportunity to meet others and find out about new advances in the area of genomic medicine in Wales. It will also be a chance for people to come together, and let us know how we can better support those affected by rare or genetic conditions.

The special café is being held as part of the first ever Genomics Showcase in Wales and will feature relaxed talks from speakers including:

• Covid-19 a year on: Professor Keir Lewis, Hywel Dda University Health Board
• Experiences of a Rare Disease Parent Advocate: Marie James
• The Role of Rare Copy Number Variants in psychiatric disorders: Dr Kim Kendall, MRC Centre for Neuropsychiatric Genetics and Genomics, Cardiff University
• Getting involved in Genomics in Wales: Patient & Public Sounding Board Members, Genomics Partnership Wales
• Opportunity for discussion and networking

As the café is part of the Genomics Showcase, you will need to register for the via the specific link below. This will give you access to the entire Showcase (including talks, stands, activities, films and more) including the café.

_{Advancing Research Through the Global PNH Patient Registry}

Date:
May 12, 2021

Time:
1:00 – 2:00pm ET

The landscape of rare drug development is constantly evolving. Gain knowledge on these important changes; interact with experts, patients, and advocates in the field and ultimately discover your role in advancing drug therapies at our 2021 RARE Drug Development Symposium happening virtually June 9-11, 2021.

New to this year’s event is an optional pre-conference workshop on June 9, targeted to attendees who are in the early stages of research engagement and looking to build knowledge in core competencies that will be expanded upon in the main event program.

Register now for this year’s event to deepen your understanding of rare disease drug development efforts!