Awareness campaigns, events, blogs, petitions & posters EVENTS Health and medical Media Partners Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy Patients Rare Rare Disease Advocacy Researchers Scientists Zebra Strutters

RAREfest22 – At the forefront of this event are the patients themselves!

RAREfest22 is the world’s only rare disease-inspired festival attracting an audience of stakeholders alongside the public. Festival-goers listen to expert talks, watch films, interact with around 25 exhibits, hear powerful patient stories and mingle with those taking part and others attending.

Academics AI in medicine Ataxia Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Care givers Charities Child health chronic illness clinical trials Collagen disorder conference Cystic Fibrosis Diagnosticians Digital Health Disability Drug development EDS Educational EVENTS Geneticists genetics genomics Healthcare Lab Technicians Medical Conditions / Disorders Medical Device Medical technologists Musculoskeletal Neuroscience Patient Advocacy patient centricity Patient Engagement Patients Pharma / Science / Tech / Digital / AI Professionals Rare Research Researchers Scientists Therapies and Treatments Twitter Feed

#RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

Will you be joining us in supporting #RAREsummit19 on 23 September in Cambridge.  A highlight on the rare disease calendar. Being an official media partner for this event is a great honour in the name of rare disease advocacy and I cannot wait to attend the event and be a part of the day’s activities. […]