Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

National Psoriasis Foundation: Psoriatic Arthritis Screening

Do you have Psoriasis? and live in the US?? This post gives patients the chance to take a short quiz to find out if they are at risk of developing Psoriatic Arthritis. It is believed that approximately 1/3 of people with Psoriasis will develop it. It also provides healthcare professionals the Psoriatic Arthritis screening toolkit.… Read More National Psoriasis Foundation: Psoriatic Arthritis Screening

Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Newsletters via News Medical / AZoNetwork

News-Medical.Net provides this medical information service in accordance with these terms and conditions. Please note that medical information found on this website is designed to support, not to replace the relationship between patient and physician/doctor and the medical advice they may provide.… Read More Newsletters via News Medical / AZoNetwork

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | October 2018

Excerpt:

“ARMA is all about collaboration, seeing the value of working together, the power of combining the perspectives of patients alongside a range of professionals. We hope that the NHS ten-year plan will also recognise both MSK, and the importance of a multidisciplinary pathway approach to supporting people with MSK conditions.” 
#BoneJointWeek 12-20 October 2018 | The theme of campaign is:

“Musculoskeletal conditions: The elephant in the room?”… Read More ARMA Newletter | Arthritis & Musculoskeletal Alliance  | October 2018

#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 12 July 2018

Alzheimer’s Reading Room Newsletter |  Bob De Marco| Headliner:  Do Persons Living with Dementia Feel Abandoned? | 11 July 2018

THE NEW HEALTH CARE  | Sometimes Patients Simply Need Other Patients |   By Aaron E. Carroll & Austin Frakt |  The New York Times  |  9 July 2018
Double click to access the article  >>>… Read More #ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 12 July 2018

#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 01 July 2018

There are two special ‘Facebook frames’ that people can add to their profile pictures to wish the NHS a happy 70th birthday!
Find out more on the #NHS70 website: http://www.nhs70.nhs.uk/… Read More #ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 01 July 2018