healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.… Read More healtheo360 Join a ‘PATIENT’ community and share your story!
Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
The attractive thing for me about this app is the fact that I can donate to charities just for taking my medications. … Read More This #healthapp is definitely worth trying if like me you’re dreadful at remembering to take your #medications
Read the article, via the link button below, to gain perspectives from
Jen Horonjeff and Carole Scrafton as they give us their appraisals regarding how patient centricity appears to show a huge gap between ‘patient compliance’ and ‘patient experience’.… Read More Patient-Centricity: An Appraisal | Ross Davies | eyeforpharma | 30 January 2019
Helping to close the gap between pharma and patients and increase relations, encourage collaborations and stave off the ideas that patients can be manipulated.
The Im-patient Conference which is new, and its bold.
No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.
Come and see me take part: 17th October | 17:00 – 17:40 (Day 2)
Panel: Candid patient perspectives on the good, the bad and the ugly of service design… Read More Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit
Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed. I am also using these new opportunities in the ‘REAL WORLD’ to help myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders
July 2018 edition of the NIHR patients and the public newsletter
#chronicpain #opioidcrisis #patientvoice Chronic Pain Survey Showing Gaps in Care| Ed Coghlan | National Pain Report | 22 May 2018 Opening lines: ‘They are interested in speaking with patients and providers about their experience. I filled out the form recently–identified myself as the editor of the National Pain Report and received a response email asking that… Read More Chronic Pain Survey Showing Gaps in Care| Ed Coghlan | National Pain Report | 22 May 2018
#migraines #vertigo #specialists #patientvoice #neurology Vertigo, My Newest Companion | Kyky Knight | Migraine.com | 6 July 2018 Vertigo, My Newest Companion Living In “A Quiet Place” | Holly Baddour | Migraine.com | 5 July 2018 Living In “A Quiet Place” Why I Left My Headache Specialist | Elizabeth Roberts-Zibbel | Migraine.com | 3 July 2018 Why I Left My… Read More Vertigo, My Newest Companion | Kyky Knight | Migraine.com | 6 July 2018