About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) Health communications & Sharing information #chronicillnessVOICE, Nuzzel News, Paper.li’s, News-Medical newsletters Social media community platform link Where can you find us? FibroFlutters Super Highway >>> Our network… Read More About Us

Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)

I decided to test how long it would be before my back began to ache when sat in a regular dining chair, one with no arms and a straight back. It wasn’t long before I began to notice little things….… Read More Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)

Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Webinar: Setting up a MSK Service 
Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
5 October 2018, 12.30 – 1.30

Webinar: Rheumatology commissioning in a community
Commissioning for Quality: Community-based Rheumatology Service
19 October 2018, 12.30 – 1.30… Read More Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

Opening lines:

Researchers from the University of Illinois at Chicago are the first to conduct a large-scale analysis of treatments and outcomes for children with Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN), rare skin conditions caused by medications and infections.… Read More Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

The Psychosocial Impact of Rosacea: Should Dermatologists Be Concerned? | Suzanne Bujara | Dermatology Advisor  | 22 May 2018 | aimed at PROFESSIONALS

‘Rosacea breeds low self-esteem, which in turn leads to social isolation.1 Historically, rosacea was thought to be a sign of psychiatric illness or alcoholism, which only contributes to existing poor perceptions of the disease.1 Anxiety associated with rosacea creates a vicious cycle, as embarrassment tends to exacerbate the physical blushing associated with the disorder.1’… Read More The Psychosocial Impact of Rosacea: Should Dermatologists Be Concerned? | Suzanne Bujara | Dermatology Advisor  | 22 May 2018 | aimed at PROFESSIONALS