NEW POLL | When considering clinical trials, where do you think as a patient you should be involved?

NEW POLL Okay, as you know Sonia a fellow Founding Five Member and myself are off to the big pharma conference on 12th – 15th March, in Barcelona, to represent patient voice, especially regarding the changing face of pharma and it becoming more patient-centric. One of things companies are having to consider is where to… Read More NEW POLL | When considering clinical trials, where do you think as a patient you should be involved?

It’s August and time for a – New Poll – In what ways does the weather affect your pain?

This months poll is about whether the weather affects our pain. I’ve noticed this last month with the interchangeable weather that myself and many other Chronic Pain sufferers have been bothered by various elements connected to weather, temperature and atmospheric pressures.  Let’s see how they affect us. Which 2 will you select? Please feel free… Read More It’s August and time for a – New Poll – In what ways does the weather affect your pain?

NEW MONTH – NEW POLL Have Fibromyalgia? Which of these sensitivities cause you the most discomfort?

Morning everyone 🙂 A topic that we all familiarise with yet, again, not share 100% as we are all affected in differing ways. Which sensitivities so you struggle with? Many patients with Fibromyalgia report having problems with varying sensitivities that can affect their senses, specifically, touch, sound, audio & smell.  I am interested to find… Read More NEW MONTH – NEW POLL Have Fibromyalgia? Which of these sensitivities cause you the most discomfort?