#ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

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It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

International Executive Director Lara Bloom was interviewed recently by “The Moment-with Maxine Mawhinney” raising awareness about EDS/HDS and talking about her moment when she walked the London Marathon in 2011.… Read More Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018

Are you someone with Ehler’s Danlos Syndrome (EDS), or Hypermobility Spectrum Disorder (HSD) related conditions and living in the US? Visit the The Ehlers-Danlos Society website for information, advice and #patient support via this following link.  You will be able to opt-in for the CONNECT newsletters and gain access to professionals, research, health information, and also others like yourself if you join in.… Read More The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018