Helping focus pain appointments with the Navigator Tool
This edition has been funded by funded by the Health and Social Care Alliance and Edinburgh and Lothians Health Foundation… Read More New research from Pain Concern on easing pain appointments | Pain Concern | October 2018
“ARMA is all about collaboration, seeing the value of working together, the power of combining the perspectives of patients alongside a range of professionals. We hope that the NHS ten-year plan will also recognise both MSK, and the importance of a multidisciplinary pathway approach to supporting people with MSK conditions.”
#BoneJointWeek 12-20 October 2018 | The theme of campaign is:
“Musculoskeletal conditions: The elephant in the room?”… Read More ARMA Newletter | Arthritis & Musculoskeletal Alliance | October 2018
September is Pain Awareness Month
90% of EDS patients live with some form of pain, but all experience this pain in a different way. Follow us on social media throughout the month for information, discussion, and support on the many aspects of EDS and HSD pain. #myEDSHurts #myHSDHurts
THE EHLERS-DANLOS SOCIETY EDS & RELATED DISORDERS GLOBAL REGISTRY… Read More CONNECT: Pain Awareness Month, Zebra Strong Tour, and more! | The Ehlers-Danlos Society | 11 September 2018
Wear Jeans, Change Lives on September 21st
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.… Read More The Ehlers-Danlos Support UK Campaign Newsletter ~ Are you ready for Jeans for Genes Day?
Love Amazon? Sign up to Amazon Smile and support EDS UK!
Meet our new Medical Advisory Panel Members
Cheer on our Great North runners!
I cycled 5,000 miles round Britain to beat my illness and found kindness I never knew existed
Kirsty’s Big Fun Run challenge
Ezra the Zebra book coming soon!… Read More The Ehlers-Danlos Support UK | Your weekly update from EDS UK! | 24 August 2018
Are you someone with Ehler’s Danlos Syndrome (EDS), or Hypermobility Spectrum Disorder (HSD) related conditions and living in the US? Visit the The Ehlers-Danlos Society website for information, advice and #patient support via this following link. You will be able to opt-in for the CONNECT newsletters and gain access to professionals, research, health information, and also others like yourself if you join in.… Read More The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018
The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. … Read More ARMA has a new #knowledgehub