Featuring >>>
Love Amazon? Sign up to Amazon Smile and support EDS UK!
Meet our new Medical Advisory Panel Members
Cheer on our Great North runners!
I cycled 5,000 miles round Britain to beat my illness and found kindness I never knew existed
Kirsty’s Big Fun Run challenge
Ezra the Zebra book coming soon!… Read More The Ehlers-Danlos Support UK | Your weekly update from EDS UK! | 24 August 2018
Are you someone with Ehler’s Danlos Syndrome (EDS), or Hypermobility Spectrum Disorder (HSD) related conditions and living in the US? Visit the The Ehlers-Danlos Society website for information, advice and #patient support via this following link. You will be able to opt-in for the CONNECT newsletters and gain access to professionals, research, health information, and also others like yourself if you join in.… Read More The Ehlers-Danlos Society | CONNECT: Major research gift, webinars, and more! | 28 August 2018
#myEDS stories
The Friend Who Keeps Me Going When My Body Won’t Go Anymore – Lisa T
The Only Body I Have – Shannon B… Read More CONNECT ~ The Ehlers-Danlos Society International Newsletter | MCAS Webinar, Amazon Smile, and More! | 8 July 2018
NOW AVAILABLE: EMJ 3.2 JUNE 2018 10th issue via this link >>>
EMJ 3.2 Now Available!… Read More My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73
“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources. Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO
If you haven’t signed up as a member please do or I can’t let you into the meeting.
Thankyou
You can sign up for the free membership via this link >>>
Members from both Sunderland and Newcastle areas are welcome… Read More ‘Strut your stripes’ in Sunderland TODAY 1 – 3 pm at our first ever EDSUK meet up
UPCOMING WEBINAR WITH EDS WELLNESS: (MCAD) MAST CELL ACTIVATION DISEASE: CURRENT CONCEPTS WITH PARTICULAR NOTES ON HYPERMOBILITY AND CHRONIC PAIN’ Posted by: Strength/Flexibility/Health/EDS | K N Myles | Apr 3, 2018 | Opening paragraph: ‘EDS Wellness is thrilled to have Dr. Lawrence Afrin join the speaker line up for their 2018 Video Webinar Series &… Read More UPCOMING WEBINAR WITH EDS WELLNESS & Dr. Lawrence Afrin #MCAD #Hypermobility & #ChronicPain
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day to day. – Carole Scrafton (Admin and Founding member of FibroFlutters)
aka fibrofly73 / scrufton73… Read More #ChronicIllness Morning Post: A selection of online health related newspapers/magazines…
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day to day. – Carole Scrafton (Admin and Founding member of FibroFlutters)
aka fibrofly73 / scrufton73… Read More #ChronicIllness Morning Post: A selection of online health related newspapers/magazines…
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day to day. – Carole Scrafton (Admin and Founding member of FibroFlutters)
aka fibrofly73 / scrufton73… Read More #ChronicIllness Morning Post: A selection of online health related newspapers/magazines…
