Category: Chronic SoMe platforms

Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

Post author By fibrofly73
Post date July 30, 2020

Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards

Tags #WEGOHealthAwards, Awareness Campaign, Awareness Raising, chronic illness, clinical trials, collaboration, Community Network, Disease Awareness, Healthcare, Patient Advocacy, patient centricity, Patient Engagement, patient voice, rare disease, Social Media Network, WEGO HEALTH

cancer chronic illness chronic pain Chronic SoMe platforms Educational Endocrinology Food, drink and recipes Gastro / Gut / Bowel Heart Health inflammatory Info site Join the Community Medical Conditions / Disorders Medical news stories, blogs and research Musculoskeletal Neuroendocrine Newsletters Patients Professionals public health

Sweet potato and spinach chilli recipe | Patient

Post author By fibrofly73
Post date July 8, 2020
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A flavoursome creamy chilli that is not too hot and which the whole family will love

Tags antioxidants, cancer, fibre, folates, Food & Recipes, Immune system, spinach, sweet potatoes, Vegan, vegetarian, vitamin A

Care givers chronic illness Chronic SoMe platforms Join the Community Medical Conditions / Disorders Patients Support Group Youth matters

healtheo360 Join a ‘PATIENT’ community and share your story!

Post author By fibrofly73
Post date May 22, 2020
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healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.

Tags patient & carer story-telling, patient experience, Social media health community

Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities chronic illness chronic pain Chronic Widespread Pain Collagen disorder EDS EDS news and info FibroFlutters Global resources HYPERMOBILITY Hypermobility Spectrum Disorders Info site invisible illness JHS Join the Community Medical Conditions / Disorders Musculoskeletal Patient Advocacy Rare rare genetic disorder Sites to visit

Ehlers-Danlos Syndrome Awareness in the Month of May

Post author By fibrofly73
Post date May 18, 2020

Looking for a local support group then please sign up for a basic membership to become a member, it’s free and you get access to their magazine ‘Fragile Links’.

Tags chronic illness, chronic pain, FibroFlutters, Fibromyalgia, Fibromyalgia Action Uk, Fibromyalgia resources, FibromyalgiaAwarenessDay, Global, Health Advocacy, International, International Fibromyalgia Awareness Day, Patient Advocacy, Worldwide

About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]

Academics AI in medicine Articles Autoimmune Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Bursitis Care givers Charities Child health chronic illness chronic pain clinical trials Collagen disorder conference Deep learning Diagnosticians Digital Health Disability Drug development EDS EVENTS eyeforpharma FibroFlutters Fibromyalgia FMAUK Gastro / Gut / Bowel genetics genomics Health Care Providers Healthcare HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders im-patient inflammatory Info site invisible illness Irritable Bowel Syndrome (IBS) JHS Machine learning MAY 12TH ME CFS Medical Conditions / Disorders Medical technologists mental health Musculoskeletal Neuroscience NHS NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma / Science / Tech / Digital / AI Product Reviews Professionals public health Rare Research Researchers Support Group WEGO HEALTH Youth matters

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Post author By fibrofly73
Post date January 14, 2020
1 Comment on Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
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In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

Alternative / Complementary Therapies & Treatments Articles Charities chronic illness Dementia / Alzheimers Educational Food, drink and recipes Healthcare Heart Health Join the Community Mainly Medications Media Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Newsletters Newsletters/Papers/Magazines/Blogs Patients Sites to visit The hints and tips station Therapies and Treatments Twitter Feed

Heart Matters | Fancy cauliflower cheese for dinner tonight? | 6 October 2018

Post author By fibrofly73
Post date October 21, 2019

#HeartHealth #Heartmatters #Heart #cardiology #cardiac #healthy #lifestyle Heart Matters | Fancy cauliflower cheese for dinner tonight? | 6 October 2018 Information, inspiration and support for a heart-healthy lifestyle Watch: What’s it like to live with dementia Wayne was just 59 when he was diagnosed with vascular dementia and Alzheimer’s. Watch him tell his story in our […]

Tags British Heart Foundation, Community, diet, Heart Health, Heart Matters, lifestyle, recipe, sleep, Statins, Tai-Chi

Awareness campaigns chronic illness Chronic SoMe platforms clinical trials Disability Educational EVENTS genetics invisible illness Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Pharma pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Video

How Clinical Trials Are Evolving | CheckRare.com

Post author By fibrofly73
Post date August 27, 2019

In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”