#chronicillnessVOICE April 20 – health, patients, medical, research, pharma related news for everyone #notjustpatients
#chronicillnessVOICE April 20:
Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.
#chronicillnessVOICE general tags
#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth
PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation. Unless stated posts are not sponsored, and this is produced for free and voluntarily.
#chronicillnessVOICE April 20 – NEWS
Editors pick of the days newsletters
DNA robots designed in minutes instead of days | Phys.org APRIL 19, 2021
by Jeff Grabmeier, The Ohio State University
Someday, scientists believe, tiny DNA-based robots and other nanodevices will deliver medicine inside our bodies, detect the presence of deadly pathogens, and help manufacture increasingly smaller electronics.
A robot arm nanodevice with claw that can pick up smaller items. Credit: Ohio State University
More information: Huang, CM., Kucinic, A., Johnson, J.A. et al. Integrated computer-aided engineering and design for DNA assemblies. Nat. Mater. (2021). doi.org/10.1038/s41563-021-00978-5
In a research paper published in Nature Aging, the team reports using a novel approach to provide the first data-driven classification of multiple diseases obtained using human genetic and medical data freely available from the UK Biobank.
Image Credit: CC0 Public Domain
Selection of posts by WordPress chronic bloggers that we support and follow
David de Wilde Works to Spread Awareness of Testicular Cancer in Belgium | A Ballsy Sense of Tumor, aka ABSOT blog by Justin Birckbichler
Twin Pregnancy- The End IS NEAR | Lennae’s World
ACUPUNCTURE BACK IN THE NEWS AS A SUCCESSFUL TREATMENT FOR FIBROMYLAGIA… | BACK PAIN BLOG UK…
My experience with fibromyalgia and mild/moderate exercise | Nikki Brainless Blogger
UPDATED: New Kaiser analysis shows how limiting price negotiations to targeted drugs may better focus upcoming legislation | Endpoints News 19 April 2021
Zachary Brennan Senior Editor
Plus other news items for you to read
Covid-19 roundup: Supply chain shortages lead to half the Moderna doses delivered to Canada; J&J shots paused out of concern clots would be inappropriately treated — report | 19 April 2021
Sourced via: John Carroll — Endpoints News 19 April 2021 | Subscription may be required
Essential biopharma news and analysis
Independent journalism since 2016
Neural Plasticity Depends On This Long Noncoding RNA’s Journey From Nucleus to Synapse | Neuroscience News
Sign up for their FREE newsletters and get the latest neuroscience headlines and summaries sent to your email once a day, totally free. delivered direct to your inbox.
Q & A with Bernie Zeiher of Astellas | Life Science Leader 1 April 2021
By Dan Schell, Editorial Director
Bernie Zeiher, of Astellas, took on the dual role of CMO and president of development in April 2018. Here he discusses how he adjusted to that job and some of the best practices he’s learned along the way.
Sourced via: Life Science Leader Newsletter 19 Apr 2021
FREE subscriptions are available to addresses in the US and Canada
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These Mice Models of PKU Share Surprising Disease Insights | Patient Worthy
Author: Jessica Lynn
Don’t forget, if you want to contribute your own story, or just sign up to subscribe to the disease states most important to you, click here!
And if you have any questions, check out their FAQs here.
Explore our dedicated COVID-19 pages
DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li
EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates
Ymchwil Iechyd a Gofal Cymru bwletin / Health and Care Research Wales bulletin | Health and Care Research Wales Mon, 19 Apr
Health and Care News and Research from around Wales compiled into a newsletter by Health and Care Research Wales
Sign up to their weekly bulletin
It features health and social care research news, events, training, funding and vacancies.
Health, Medical, Research, Patient and Pharma related newsletters
A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.
The #chronicillnessVOICE Daily
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EVENTS & WEBINARS
CLL Patient Perspective Live Broadcast | CURE Today
Panel Event: MAY 8, 2021 • 2:00 PM ET
Brought to you by AstraZeneca and CURE® Magazine, join in on May 8, 2021, as CALQUENCE presents a moderated panel talking about life with CLL.
At this event, you’ll hear a real patient discuss living with CLL and the impact it has had on their lives, as well as that of their caregiver. From their care team, you’ll learn about the types of treatment that were considered before starting CALQUENCE. Other topics will include how to navigate a cancer diagnosis during COVID, where to find mental and emotional support, and more.
Reuters Events: Pharma Customer Engagement Europe 2021
20 – 22 April, 2021, Virtual
Pharma Customer Engagement Europe is the new event for commercial, marketing and medical affairs leaders designed for the customer needs of today. It’s the only place that brings together the granular development of your digital-craft, analytical knowledge and EQ, whilst destroying silos, to enhance your ability to deliver an unprecedented customer experience.
UPCOMING INDUSTRY WEBINAR
Getting Care to Patients: a new paradigm
with Enable Injections
Wednesday, April 28 – 10am EST, 4pm CET
2021 RARE Drug Development Symposium: Registration Now Open
The landscape of rare drug development is constantly evolving. Gain knowledge on these important changes; interact with experts, patients, and advocates in the field and ultimately discover your role in advancing drug therapies at our 2021 RARE Drug Development Symposium happening virtually June 9-11, 2021.
New to this year’s event is an optional pre-conference workshop on June 9, targeted to attendees who are in the early stages of research engagement and looking to build knowledge in core competencies that will be expanded upon in the main event program.
Register now for this year’s event to deepen your understanding of rare disease drug development efforts!
Click the image to go and get your ticket
MedCity News will host its annual INVEST conference online, April 19-23. INVEST is a premier international healthcare investing event hosted in partnership with MHIN, a Midwest healthcare investor organization. INVEST will address six broad themes through a mix of live and pre-recorded sessions
Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!
Raise your #chronicillnessVOICE
Add your story to The Disability Account | Scope
“By adding your story, you’ll join others doing the same. The Scope campaigns team will put these together into The Disability Account. They will share this powerful account of real-life stories with Department for Work Pensions. This will help the Government understand the financial pressures disabled people face, and make change happen.”
BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA and ARTHRITIC CONDITIONS. BLOG AT WORDPRESS.COM.
Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!
THANK YOU FOR READING #chronicillnessVOICE April 20, YOUR SUPPORT IS GREATLY APPRECIATED
We are a Patient Advocacy Organisation & online social media communications network
FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.
We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.
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SLOGAN: #chronicillnessVOICE for everyone #notjustpatients
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Social and useful links
Its A Doddle – Mapping the communities that care
By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.
SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019
Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!
Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.
FibroFlutters are continuously…
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
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