#chronicillnessVOICE April 19 – health, patients, medical, research, pharma related news for everyone #notjustpatients
#chronicillnessVOICE April 19:
Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.
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#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth
PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation. Unless stated posts are not sponsored, and this is produced for free and voluntarily.
#chronicillnessVOICE April 19 – NEWS
Editors pick of the days newsletters
Cancer drugs could be delivered in molecular cages unlocked by light | Phys.org
by Hayley Dunning, Imperial College London
Molecular cages created by Imperial researchers could lead to more targeted cancer drug delivery, causing greater efficiency and fewer side effects.
Credit: Imperial College London
Sourced via Phys.org
More information: Timothy Kench et al. Rotaxanes as Cages to Control DNA Binding, Cytotoxicity, and Cellular Uptake of a Small Molecule, Angewandte Chemie International Edition (2021). DOI: 10.1002/anie.202100151
EU hints it might not order AstraZeneca jab again | Medical Xpress
The EU’s internal markets commissioner Thierry Breton hinted Sunday that the bloc might decide not to order AstraZeneca’s coronavirus jab again following delays in delivering the first batches of the vaccine.
Selection of posts by WordPress chronic bloggers that we support and follow | WordPress Weekly digests
Dizzy’s 5 top tips for keeping our brains healthy | Dinosaurs, Donkeys and MS by dizzythedonkey
Weekly Round-Up | No Half Measures by Abigail Johnston – best of the blog posts which she’s read over the past week.
Positives Of Being On Bed Rest | My Rockin Disabled Life
My Patient/Patient Advocate Journey | My life as a Rare Disease patient
Blissfully Broken | My Medical Musings by Sam
New WHO Global Compact to speed up action to tackle diabetes
14 April 2021 News release
Neural Plasticity Depends On This Long Noncoding RNA’s Journey From Nucleus to Synapse | Neuroscience News
Sign up for their FREE newsletters and get the latest neuroscience headlines and summaries sent to your email once a day, totally free. delivered direct to your inbox.
Safe Bodyweight Exercises to Add to Your Walk | WebMD – JumpStart video
© 2005 – 2019 WebMD LLC. All rights reserved.
WebMD does not provide medical advice, diagnosis or treatment.
The Key to SDOH: Health literacy | MedCity News
As a country, we must do a better job supporting people and communities throughout their health journey because communities with greater access to information and increased levels of health literacy will ensure better health outcomes.
Explore our dedicated COVID-19 pages
DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li
EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates
Digital Health and Care Wales officially launches as special health authority
Previously the Wales Informatics Service, the new special health authority (SHA) aims to drive digital transformation and reflect the importance of digital and data in health and care.
Sourced via: Digital Health Digest – 16 April 2021
Health, Medical, Research, Patient and Pharma related newsletters
A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.
The #chronicillnessVOICE Daily
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EVENTS & WEBINARS
Reuters Events: Pharma Customer Engagement Europe 2021
20 – 22 April, 2021, Virtual
Pharma Customer Engagement Europe is the new event for commercial, marketing and medical affairs leaders designed for the customer needs of today. It’s the only place that brings together the granular development of your digital-craft, analytical knowledge and EQ, whilst destroying silos, to enhance your ability to deliver an unprecedented customer experience.
UPCOMING INDUSTRY WEBINAR
Getting Care to Patients: a new paradigm
with Enable Injections
Wednesday, April 28 – 10am EST, 4pm CET
2021 RARE Drug Development Symposium: Registration Now Open
The landscape of rare drug development is constantly evolving. Gain knowledge on these important changes; interact with experts, patients, and advocates in the field and ultimately discover your role in advancing drug therapies at our 2021 RARE Drug Development Symposium happening virtually June 9-11, 2021.
New to this year’s event is an optional pre-conference workshop on June 9, targeted to attendees who are in the early stages of research engagement and looking to build knowledge in core competencies that will be expanded upon in the main event program.
Register now for this year’s event to deepen your understanding of rare disease drug development efforts!
Click the image to go and get your ticket
MedCity News will host its annual INVEST conference online, April 19-23. INVEST is a premier international healthcare investing event hosted in partnership with MHIN, a Midwest healthcare investor organization. INVEST will address six broad themes through a mix of live and pre-recorded sessions
Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!
Raise your #chronicillnessVOICE
Add your story to The Disability Account | Scope
“By adding your story, you’ll join others doing the same. The Scope campaigns team will put these together into The Disability Account. They will share this powerful account of real-life stories with Department for Work Pensions. This will help the Government understand the financial pressures disabled people face, and make change happen.”
BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA and ARTHRITIC CONDITIONS. BLOG AT WORDPRESS.COM.
Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!
THANK YOU FOR READING #chronicillnessVOICE April 19, YOUR SUPPORT IS GREATLY APPRECIATED
We are a Patient Advocacy Organisation & online social media communications network
FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.
We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.
We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms.
SLOGAN: #chronicillnessVOICE for everyone #notjustpatients
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Social and useful links
Its A Doddle – Mapping the communities that care
By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.
SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019
Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!
Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.
FibroFlutters are continuously…
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
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