#chronicillnessVOICE April 16 health related news for everyone #notjustpatients

#chronicillnessVOICE April 16 – health, patients, medical, research, pharma related news for everyone #notjustpatients

#chronicillnessVOICE April 16:

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth

PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation. Unless stated posts are not sponsored, and this is produced for free and voluntarily.

#chronicillnessVOICE April 16 – NEWS

Editors pick of the days newsletters

Stretching the boundaries of medical tech with wearable antennae | Tech Xplore

Provided by Pennsylvania State University

The wearable transmitter is designed to compress its top layer in a double arch pattern, shown here, to respond to movement without compromising signal transmission. Credit: Huanyu Cheng, Penn State


Sourced via Medicine and Health newsScience X Newsletter Tuesday, Apr 15

More information: Guizhi Xu et al, Design of Non-dimensional Parameters in Stretchable Microstrip Antennas with Coupled Mechanics-Electromagnetics, Materials & Design (2021). DOI: 10.1016/j.matdes.2021.109721

Jia Zhu et al. Strain-Insensitive Hierarchically Structured Stretchable Microstrip Antennas for Robust Wireless Communication, Nano-Micro Letters (2021). DOI: 10.1007/s40820-021-00631-5

National Minority Health Month

The theme this year is empowering communities to get the facts to be #VaccineReady. (From NIH’s NIMHD)


U.S. Department of Health & Human Services | National Institutes of Health | USA.gov

Special: It’s in Your DNA | MedicineNet

11 Surprising Things Your Genes Say About You |

Reviewed By: Melinda Ratini, DO
Reviewed on 8/1/2018

Differences in DNA determine parts of your physical appearance, your risk for certain diseases, and even your personality.


Sign up for their FREE newsletters and get the latest health and medical information delivered direct to your inbox.

© 1996-2021 WebMD, LLC. All rights reserved.
Source slideshow on OnHealth

MedicineNet does not provide medical advice, diagnosis or treatment. See additional information.

What should you do if your child is wheezing? | Patient

Wheeze is common, especially in children. Despite many parental concerns, wheezing often isn’t due to asthma, although it’s more likely to be the cause if your child has been diagnosed with asthma.


Visit the website for more accredited health information and advice

Health information you can trust

Patient aims to help the world proactively manage its healthcare, supplying evidence-based information on a wide range of medical and health topics to patients and health professionals.

© Patient Platform Limited. Registered in England and Wales. All rights reserved. Patient does not provide medical advice, diagnosis or treatment.

Registered number: 10004395 Registered office: Fulford Grange, Micklefield Lane, Rawdon, Leeds, LS19 6BA. Patient is a UK registered trade mark.

Symptoms of a B12 Deficiency

Reviewed by Jennifer Robinson, MD on April 25, 2020

It’s just one vitamin, but B12 does a lot to keep your body in good running order. See how it can affect your nerves, your blood, your brain, and other areas if you aren’t getting enough.


Diseases like celiac, Crohn’s, or other gut illnesses may make it harder for your body to absorb the vitamin. So can taking some heartburn drugs.

Numbness slide – Signs You’re Low on Vitamin B12 – WebMD

This tool does not provide medical advice. See additional information.

Explore our dedicated COVID-19 pages

DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li


EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates

GlaxoSmithKline’s head of vaccine R&D is jumping to a wellness company concentrating on the microbiome as reports of an exodus start to spread | Endpoints News

Emmanuel Hanon (Viome) heads of to wellness company to pursue his interest in their technology for analyzing the gut microbiome and how that could intersect with new vaccine research.

Modulating the gut microbiome and understanding how that interacts with the immune system, he says, can play a big role in treating chronic ailments.

Naveen Jain – CEO Viome


Sourced via: John Carroll — Endpoints News | Subscription may be required

Endpoints News

Essential biopharma news and analysis
Independent journalism since 2016

Designing better antibody drugs with artificial intelligence Medical Xpress

Provided by ETH Zurich

Machine learning helps develop optimal antibody drugs. Credit: ETH Zurich

“Antibodies are not only produced by our immune cells to fight viruses and other pathogens in the body. For a few decades now, medicine has also been using antibodies produced by biotechnology as drugs. This is because antibodies are extremely good at binding specifically to molecular structures according to the lock-and-key principle. Their use ranges from oncology to the treatment of autoimmune diseases and neurodegenerative conditions.”

Sourced via Medicine and Health newsScience X Newsletter Tuesday, Apr 15

More information: Optimization of therapeutic antibodies by predicting antigen specificity from antibody sequence via deep learning, Nature Biomedical EngineeringDOI: 10.1038/s41551-021-00699-9 | Journal information: Nature Biomedical Engineering

Health, Medical, Research, Patient and Pharma related newsletters

A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.


The above post includes a link to our very own The #chronicillnessVOICE Daily newsletter for everyone #notjustpatients paper.li

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Reuters Events: Pharma Customer Engagement Europe 2021

20 – 22 April, 2021, Virtual

Pharma Customer Engagement Europe is the new event for commercial, marketing and medical affairs leaders designed for the customer needs of today. It’s the only place that brings together the granular development of your digital-craft, analytical knowledge and EQ, whilst destroying silos, to enhance your ability to deliver an unprecedented customer experience.



Getting Care to Patients: a new paradigm

with Enable Injections

How pharma can provide flexible care to patients, providers, and payers to create a better, more cost-effective, and differentiated infusion experience


Wednesday, April 28 – 10am EST, 4pm CET

Moderated by our Trustee Paul Simms, former Chairman of eyeforpharma who is now working with his new company Impatient Health.

2021 RARE Drug Development Symposium: Registration Now Open

Sign up for the 2021 RARE Drug Development Symposium

The landscape of rare drug development is constantly evolving. Gain knowledge on these important changes; interact with experts, patients, and advocates in the field and ultimately discover your role in advancing drug therapies at our 2021 RARE Drug Development Symposium happening virtually June 9-11, 2021.

New to this year’s event is an optional pre-conference workshop on June 9, targeted to attendees who are in the early stages of research engagement and looking to build knowledge in core competencies that will be expanded upon in the main event program.

Register now for this year’s event to deepen your understanding of rare disease drug development efforts!

2021 RARE Drug Development Symposium
June 9, 2021—June 11, 2021

Click the image to and get your ticket

MedCity News will host its annual INVEST conference online, April 19-23. INVEST is a premier international healthcare investing event hosted in partnership with MHIN, a Midwest healthcare investor organization. INVEST will address six broad themes through a mix of live and pre-recorded sessions

Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!


Add your story to The Disability Account | Scope

“By adding your story, you’ll join others doing the same. The Scope campaigns team will put these together into The Disability Account. They will share this powerful account of real-life stories with Department for Work Pensions. This will help the Government understand the financial pressures disabled people face, and make change happen.”




Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!


Author FibroFlutters Logo are proud to be actively supporting the work of AIMed Embracing #AI in #Healthcare #Medicine.

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We are a Patient Advocacy Organisation & online social media communications network

FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.

We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.

We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms. 

SLOGAN: #chronicillnessVOICE for everyone #notjustpatients


  • We are not medical professionals nor claim to be. Remember that you should always consult your doctor about any health problems and not solely rely on Dr Google, or on any information that you may read online through 3rd parties.
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Its A Doddle – Mapping the communities that care

By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.

SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019

Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!

Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.


FibroFlutters are continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. 
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!

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Please can you read our ‘Disclaimer’ & ‘Privacy’ notes. If you have any problems we are always open to discussion, just e-mail Carole

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

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