#chronicillnessVOICE April 15 health related news for everyone #notjustpatients

#chronicillnessVOICE April 15 – health, patients, medical, research, pharma related news for everyone #notjustpatients

#chronicillnessVOICE April 15:

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth

PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation.

#chronicillnessVOICE April 15 – NEWS

Editors pick of the days newsletters

AI identifies 3 new multiple sclerosis subtypes | Medical News Today 11 April 2021

Written by Robby Berman

Researchers used AI to analyze the brain scans of thousands of people with MS and discovered three new subtypes. Portra/Getty Images

“A new analysis of brain MRI scans of people with multiple sclerosis (MS) reveals that individual cases fall into one of three newly discovered MS subtypes.”


How Diabetes Can Affect Your Feet | MedicineNet

Reviewed By: Charles Patrick Davis, MD, PhD

Reviewed on 1/14/2021

Original image > diabetes_foot_problems_s1_complications (493 x335) images.medicinenet.com

Two conditions called diabetic neuropathy and peripheral vascular disease can damage the feet (and other areas of the body) in people who have diabetes.

How Diabetes Can Affect Your Feet | MedicineNet featured slideshow post


Sign up for their FREE newsletters and get the latest health and medical information delivered direct to your inbox.

© 1996-2021 WebMD, LLC. All rights reserved.
Source slideshow on OnHealth

MedicineNet does not provide medical advice, diagnosis or treatment. See additional information.

The Use of Hypnosis in Health Care

Sourced via: National Center for Complementary and Integrative Health

Image: hypnosis-GettyImages-174931724-square.jpg (1500 x 1500) via nccih

Hypnosis (also called hypnotherapy) has been studied for a number of health conditions. For example: 

  • A growing body of evidence suggests that hypnosis may help people manage some painful conditions.
  • Some evidence suggests that hypnosis may help with menopause symptoms such as hot flashes. The North American Menopause Society has recommended hypnosis for managing hot flashes but acknowledged that the evidence is limited.
  • Studies of hypnosis to help with quitting smoking have had conflicting results. 


NIH…Turning Discovery Into Health®

Pop Culture Happy Hour Podcasts

Time for a bit of ‘Time-Out’ with this offering from NPR

Pop Culture Happy Hour Podcasts

Need a little break from hard news? Or maybe a bit of time to talk to friends about the latest movie, new book or must-see TV series they just finished streaming? 

The hosts of NPR’s Pop Culture Happy Hour — Linda Holmes, Glen Weldon, Stephen Thompson, and Aisha Harris — have got you covered. Their podcast has all of the best recommendations and insights about movies, TV, music, books, video games and pop cultural happenings five days a week. A rotating cast of guest culture experts join the team to add their take on everything going on in the discourse.

Try out a few episodes to get started: 

Explore a world of reactions and opinions spanning the world of pop culture. Join in for a moment (or an hour) of fun, free-wheeling escape. Because no matter the subject, we take pop culture in very high spirits.”

NPR’s Pop Culture Happy Hour — Linda Holmes, Glen Weldon, Stephen Thompson, and Aisha Harris

Please visit the NPR website for articles, blogs and much more! Sign up for e-news!!

NPR is an independent, nonprofit media organization that was founded on a mission to create a more informed public. Every day, NPR connects with millions of Americans on the air, online, and in person to explore the news, ideas, and what it means to be human. Through its network of member stations, NPR makes local stories national, national stories local, and global stories personal.

Explore our dedicated COVID-19 pages

DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li


EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates

Anti-aging biotech upstart plucks a drug from Amgen’s discard pile, pivoting from heart failure to muscle conditions

Back in April 2019, Amgen quietly shut down a Phase I trial for a drug named AMG 986. There was no safety concern; the molecule just didn’t hit the mark on helping the small band of heart failure patients who received it.


Sourced via: John Carroll — Endpoints News | Subscription may be required

Endpoints News

Essential biopharma news and analysis
Independent journalism since 2016

New hydrogel can repair tears in human tissue, Medical Xpress

Provided by Ecole Polytechnique Federale de Lausanne

The gel is injected directly into the tissue. Credit: Alain Herzog 2021 EPFL

“EPFL scientists have developed an injectable gel that can attach to various kinds of soft internal tissues and repair tears resulting from an accident or trauma.”

Sourced via Medicine and Health newsScience X Newsletter Tuesday, Apr 14

More information: An intrinsically‐adhesive family of injectable and photo‐curable hydrogels with functional physicochemical performance for regenerative medicine, Macromolecular Rapid Communications, DOI :10.100 2/marc.202000660 | Journal information: Macromolecular Rapid Communications

Health, Medical, Research, Patient and Pharma related newsletters

A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.


The above post includes a link to our very own The #chronicillnessVOICE Daily newsletter for everyone #notjustpatients paper.li

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2021 Stevens Lecture
The future of surgical robotics, the future is surgical robotics?
Lecture by Mr Ben Challacombe

Event by The Royal Society of Medicine

Date: Monday 17 May 2021
Time: 6:30pm – 7:45pm BST

This year’s Stevens lecture, ‘The future of surgical robotics, the future is surgical robotics?’, delivered by Mr Ben Challacombe, Consultant Urological Surgeon, Guy’s and St Thomas’ NHS Foundation Trust and Honorary Senior Lecturer, King’s College London, will be taking place in May via live stream. 

There are now over 80 surgical robots across the NHS helping perform over 15,000 cancer operations every year. This lecture will cover the emergence of surgical robotics over the last 20 years and the current UK availability of this technology.

Mr Challacombe will discuss specific issues of trainingmentoring and evaluation of clinical outcomes, and will also showcase key robotic surgery indications and operations, with illustrative videos.

2020 saw the emergence of several novel robotic surgery platforms to rival the existing robots and these will also be shown and evaluated. Explore the future of robotic surgery across a wide range of specialties and the emerging indications and technologies.

Join in the conversation online using #RSMLive.

Follow us on Twitter: @RoySocMed

You may need to become a member and there are many options available. The event is FREE to attend, but donations are welcomed.

The Royal Society of Medicine. Registered charity no: 206219


Getting Care to Patients: a new paradigm

with Enable Injections

How pharma can provide flexible care to patients, providers, and payers to create a better, more cost-effective, and differentiated infusion experience


Wednesday, April 28 – 10am EST, 4pm CET

Moderated by our Trustee Paul Simms, former Chairman of eyeforpharma who is now working with his new company Impatient Health.

2021 RARE Drug Development Symposium: Registration Now Open

Sign up for the 2021 RARE Drug Development Symposium

The landscape of rare drug development is constantly evolving. Gain knowledge on these important changes; interact with experts, patients, and advocates in the field and ultimately discover your role in advancing drug therapies at our 2021 RARE Drug Development Symposium happening virtually June 9-11, 2021.

New to this year’s event is an optional pre-conference workshop on June 9, targeted to attendees who are in the early stages of research engagement and looking to build knowledge in core competencies that will be expanded upon in the main event program.

Register now for this year’s event to deepen your understanding of rare disease drug development efforts!

2021 RARE Drug Development Symposium
June 9, 2021—June 11, 2021

Click the image to and get your ticket

MedCity News will host its annual INVEST conference online, April 19-23. INVEST is a premier international healthcare investing event hosted in partnership with MHIN, a Midwest healthcare investor organization. INVEST will address six broad themes through a mix of live and pre-recorded sessions

Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!


Add your story to The Disability Account | Scope

“By adding your story, you’ll join others doing the same. The Scope campaigns team will put these together into The Disability Account. They will share this powerful account of real-life stories with Department for Work Pensions. This will help the Government understand the financial pressures disabled people face, and make change happen.”




Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!


Author FibroFlutters Logo are proud to be actively supporting the work of AIMed Embracing #AI in #Healthcare #Medicine.

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We are a Patient Advocacy Organisation & online social media communications network

FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.

We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.

We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms. 

SLOGAN: #chronicillnessVOICE for everyone #notjustpatients


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Its A Doddle – Mapping the communities that care

By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.

SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019

Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!

Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.


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Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. 
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!

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FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

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