#chronicillnessVOICE daily – health, patients, medical, research, #pharma related news for everyone #notjustpatients
Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.
#chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth
PLEASE NOTE: Sharing items on this website and in our #chronicillnessVOICE daily newsletters does not necessarily mean endorsement, or necessarily reflect the views of myself, or our organisation.
Editors pick of the days newsletters
“A team of researchers from multiple institutions in the U.K. and the U.S. has learned more about the development of antimicrobial resistance by studying hundreds of samples of bacteria in their natural environments. In their paper published in the journal Science Advances, the group describes how they conducted genome sequencing on hundreds of bacterial samples collected from a wide variety of natural environments and what they learned by doing so.”
Sourced via: Science X Newsletter Monday, Apr 12 Sign up for a newsletter account.
“US president’s first budget proposal emphasizes applied research and public health, and aims to tackle climate change and racial injustice. “
Sourced via: Nature Briefing newsletter 12 Apr 2021 Sign up for an account.
Matthew Taylor appointed as new chief executive of the NHS Confederation
NHS Confederation – 12/04/2021
“The chief executive of the Royal Society for Arts, Manufactures and Commerce (RSA) Matthew Taylor has been appointed as the new chief executive of the NHS Confederation.”
Sourced via: Department of Health and Social Care newsletter | Sign up for e-news from NHS Confederation.
Explore our dedicated COVID-19 pages
DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li
EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates
Rare Disease Classroom: What Is Ovarian Cancer?
via Patient Worthy April 9, 2021
“A new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much about.”
SIGN UP FOR THEIR NEWSLETTER
BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA and ARTHRITIC CONDITIONS. BLOG AT WORDPRESS.COM.
Health, Medical, Research, Patient and Pharma related newsletters
A selection of self-updating Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients. Addressing issues regarding health and medical wellbeing, chronic and rare diseases, clinical research, pharma industry and drug development.
EVENTS & WEBINARS
What is the Patient Engagement Open Forum
The Forum aims to facilitate collaboration and co-creation of real solutions for patients WITH patients while providing a holistic perspective of patient engagement, its landscape, and actors. Over the last years, it has become THE place for the patient engagement community to foster innovation, network, share practices, build trust, acceptance, and awareness.
Wales Gene Park just announced a new event
Young People’s Virtual Genomics Café > Wednesday, 26 May 2021 at 18:00
Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Sign up for
Get your tickets via Eventbrite from 15th April when they go live.
These events are aimed at those aged 16 to 25 and are run by Wales Gene Park with Genomics Partnership Wales. May’s café will provide the opportunity to ‘Meet the Professional’ working in the area of genetics and genomics
Got an event, or webinar, you want to share send us an email with ‘please share this event’ in the subject line!
Add your story to The Disability Account | Scope
“By adding your story, you’ll join others doing the same. The Scope campaigns team will put these together into The Disability Account. They will share this powerful account of real-life stories with Department for Work Pensions. This will help the Government understand the financial pressures disabled people face, and make change happen.”
Got an advocacy campaign, or petition, you want to share send us an email with ‘please share this campaign’ in the subject line!
THANK YOU FOR READING, YOUR SUPPORT IS GREATLY APPRECIATED
We are a Patient Advocacy Organisation & online social media communications network
FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.
We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.
We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms.
SLOGAN: #chronicillnessVOICE for everyone #notjustpatients
- We are not medical professionals nor claim to be. Remember that you should always consult your doctor about any health problems and not solely rely on Dr Google, or on any information that you may read online through 3rd parties.
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Social and useful links
Its A Doddle – Mapping the communities that care
By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.
SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019
Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!
Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.
FibroFlutters are continuously…
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
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