I designed this website deliberately to be a place for resources, and sharing information, I’ve always called it our Library. I didn’t realise how much it had grown so it now needs an overhaul and reorganising.
We also advocate via our newsletter #chronicillnessVOICE which is a health newsletter for everyone #notjustpatients. It has changed format many times since it began in January 2018 when I was posting morning and evening editions. As time passed by my inbox was filling up with so many newsletters from a diverse collection of places across the medical healthcare industries that I was overwhelmed by all the news. I am now restructuring a few things, and I am hoping to have a ‘daily’ #chronicillnessVOICE newsletter again in the near future as soon as I have finished organising information and posts more clearly.
In the meantime keep a look out for the special editions
Aiming for multidisciplinary approaches to medical healthcare, or patient-centricity, patients-included, etc are my reasons for this, to encourage people from different sectors to take a look at what is happening in other parts of the healthcare industries, spread the patient voice and advocate for changes where they are needed.
Being open to all involved with life sciences and the medical healthcare industries, including pharma, clinical research, digital, med-tech, medical devices, & even AI in medicine is a great way to keep up to date with all stakeholders as we rely on them all as patients, not just Healthcare providers.
Remember delivering health related news across our social media channels from all these areas means that we’re heavily involved, and committed, in one of our missions to share as much up to date information to those that need it.
Everyday I do publish patient, health, research & pharma industry related news, at 11 am (BST) via Nuzzel, please subscribe to get a daily dose of selected news and information into your news feed.
We also share the following diverse selection of chronic illness & medical health related paper.li s via the following link after this list:
Weekly! | The Clinical Supervision Digest
Weekly | The Perinatal Mental Health Nurse
DAILY! | European Medical Journal
Daily! | The #MedDevMktg – pharma marketing
Daily | The Receptive Sound Therapy
The Patient Registry | Daily News & more on patient registries and their impact on healthcare today
PHARMAGEEK NEWS, le Journal
The Immunology Daily
Twice Daily! | News from Focus on Disability
Daily! Above The Fold in Healthcare
Daily! Brainless Blogger News
The Chronic pain Daily | Support from Coach Amber Rose
The brain and mental health voice
Twice Daily! | Fibromyalgia ME Chronic Pain
Twice Daily! | Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
Twice Daily! | News from UK Care Guide
It is my future aim to be regularly producing these following newsletters under the umbrella’s of patient, health, research and pharma.
- A Mental Health Newsletter
- A Research Related bi-monthly Newsletter
- Pharma / Science / Tech / AI – A mix of News
- ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources https://fibroflutters.com/2019/05/28/chronicillnessvoice-pharma-science-tech-digital-ai-a-mix-of-news-events-and-resources/
- MSK ~ Rheum ~ Arthritis ~ Pain ~ requires updating!
We also share a selection of News-Medical newsletters that cover a whole host of differing therapeutic health areas, and also other sectors of the medical healthcare industries. I do ask for readers to sign up for the ones they enjoy.
|News-Medical newsletters currently listed on this site|
|Cervical Cancer Newsletter|
|Pharmacy / Pharmacology Newsletter|
|Sleep Disorder Newsletter|
|Children’s Health / Pediatrics Newsletter|
|Medical Device Newsletter|
|Multiple Sclerosis Newsletter|
|Rare Diseases Newsletter|
Updated monthly by Editor Carole
There are many newsletters that we subscribe to that we frequently share via our own news magazines and letters so please keep your eyes peeled for latest posts! My personal request is that you register for news into your inboxes via all the links provided.
We are also aiming to have links to a variety of Community Platforms each with differing quirks across the globe to make it easier for readers to find the kind of community they’d like to join.
There are a few other changes on the horizon to hopefully improve your reader experience