Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton


FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve got a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!

You all need to pitch in!!


FibroFlutters –

Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK …
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.

PLEASE NOTE: We are not medical professionals, nor claim to be, and remember that you should always consult your doctor about any health problems and not use Dr Google to self-diagnose, or rely on information that you may read online through 3rd parties.


Please can you read our ‘Disclaimer’ & ‘Privacy’ notes
and if you have a problem we are always open to discussion, just e-mail Carole


MANY THANKS in advance for your understanding –
from the administrator – fibrofly73 aka Carole

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New communities platform in the UK!!

Are you an NFP #notforprofit #organisation #group #community #charity that’s always looking for what other groups are near you?

Then check out this CommunityMap being created by ItsaDoddle & If Everyone Cares
A great home for us all I think!

#family #support #chronicillness #carers#advocates #patientgroups 
#NFP #notforprofit #organisation #group #community #charity

Check out my post all about it, maybe we’ll see you on the Map

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