#PAM2018
#patientvoice #chronicillness #patientjourney #healthblog
My Medical Musings
Medically Retired and Living a Life of Faith and Hope with a Rare Disease | Sam | 7 September 2018
Excerpt:
‘Expectations and tangible outcomes can begin to diminish the longer you live with a particular disease. Especially when all known treatment options have been exhausted.’
Read the post via the following link >>>
Quote from Sam:
“The sufferings of this present time are not worth comparing with the glory that is to be revealed to us.”
—Romans 8:18
If you’re looking for genuine support, care, understanding & friendship, you are so welcome to join Sam’s closed Facebook support forum, Medical Musings with Friends . It’s a safe place to connect with others living with chronic & complex diseases, who truly understand the daily challenges. A warm welcome awaits.
Sam also writes @Blogs by Christian Women
I’m a member of the Chronic Illness Bloggers Network and the Grace Girls Facebook Group
Please click here to read our Privacy Policy
FibroFlutters supporting the work and writing’s of patients with chronic, invisible and rare illness
FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and offering online support via our social media network across the globe.
PLEASE NOTE: We are not medical professionals nor claim to be, and remember that you should always consult your doctor about any health problems and not use Dr Google, or rely on information that you may read online through 3rd parties.
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
