A selection of online health related newspapers/magazines/newsletters/blogs/events
THANKYOU FOR YOUR PATIENCE AS WE WORK ON IMPROVING THE WEBSITE
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Including!
In the Chillout Lounge!
“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy
By Meditation and Healing | 7 August 2018
Psst! It’s at the end!!
Wear Jeans, Change Lives on September 21st
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.
The Ehlers-Danlos Support UK Campaign Newsletter ~ Are you ready for Jeans for Genes Day?
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.
Read more via the newsletter here >>>
Subscribe to ‘Fragile Links’ a regular members magazine >>>
Join, become a member and find a support group near you >>>
EDS UK Membership Choices
- Free – Membership for life
- plus Fragile Links (digital) £5.00 – Membership expires after 1 year
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- plus Fragile Links (Eur & Ireland) £13.00 – Membership expires after 1 year
- plus Fragile Links (rest of World) £18.00 – Membership expires after 1 year
You can join via this link >>>
Copyright © 2018 The Ehlers-Danlos Support UKThe Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712. Registered Company No. 8924646. Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ |
RonnyAllan.NET – Community Newsletter Covering August 2018
ronnyallan.net/2018/08/31/ronnyallan-net-community-newsletter-covering-august-2018/
International Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping NET Patients
#Dermatology #Venereology #EADV
European Medical Journal | 2 September 2018
Preview of the 27th European Academy of Dermatology and Venereology (EADV) Congress – European Medical Group | 29 AUGUST 2018 | DERMATOLOGY
Why not check out today’s edition of ‘European Medical Journal, and many other health related newspapers via our Paper.li post where the issues all self-update, via this link >>>
My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73
Copyright © 2018 European Medical Group LTD. All rights reserved. European Medical Group is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendation.
Ts & Cs | Privacy Policy
Website by Vercossa
A Chronic Voice ~ The September Prompts are Live! | 2 September 2018
Latest Updates from A Chronic Voice
The September linkup is live!
Check out the new post by ‘A Chronic Voice’
September 2018 Prompts: Reconnecting, Confessing, Relaxing, Romanticising & Sharing
Other posts >>>
- [Archives] 7 Reminders For Those Dim Days When You Lose Your Way
- Final Submissions for the August Linkup
- Issue #125: Giving Yourself Grace When Setting Goals & Using the 80% Rule to Manage Life with Chronic Illnesses
A Chronic Voice ~ The September Prompts are Live!
26 Honest Statuses People Who Are Undiagnosed Want to Post, But Don’t — on The Mighty | Staff | Undiagnosed
When Your Patient Is Upset With Negative Test Results — on The Mighty | Contributor | Undiagnosed
When I’m Worried About My Undiagnosed Child, I Try to Imagine This — on The Mighty | Contributor | Undiagnosed
Stay #MightyTogether,
Ashanthi
Rare Disease Editor at The Mighty
The Mighty — 210 N. Glenoaks Blvd, Burbank, CA 91502
#Professionals
NIHR | Latest NIHR funding opportunities | 31 August 2018
Health Technology Assessment Programme
18/132 Researcher-led evidence synthesis
18/133 Researcher-led primary research
Policy Research Programme
Infectious Disease Dynamic Modelling in Health Protection
Health Inequalities Research Initiative
Copyright © 2018 NIHR, All rights reserved.
Our mailing address is:
NIHR
Alpha House, Enterprise Road
Chilworth
Southampton, Hampshire
SO16 7NS
United Kingdom
Not all doctors are physicians | – Shared by Kevin Pho, M.D. | | www.kevinmd.com
Article by | PHYSICIAN | AUGUST 28, 2018
www.kevinmd.com/blog/2018/08/not-all-doctors-are-physicians.html
#MentalHealth #ADHD #Depression #Anxiety
MedCircle Digest | Newsletter Headliner: How One Mother Tried Everything & Eventually Led To Meds For Childs ADHD | 2 September 2018
Published in ADDitude Magazine ~ Inside the ADHD mind | Attention Deficit Hyperactive Disorder (ADHD) | 1 September 2018
This content is intended for informational purposes only. It should not replace professional medical advice, diagnosis, or treatment. If you think you have a medical emergency, call 911 or your doctor immediately.
MedCircle does not provide medical advice, diagnosis, or treatment of any kind. Learn more.
© 2018 MedCircle Inc. All Rights Reserved.
#MentalHealthAwareness #MentalHealth #SuicidePrevention #Suicide
September is National Suicide Prevention Awareness Month | Jenny Picciotto | National Pain Report | 1 September 2018
Excerpt:
The best way to prevent a crisis from escalating is to plan ahead and decide how you will respond ahead of time. A safety plan, often composed with the help of a counselor, is a step by step process that begins with identifying certain situations, thoughts or feelings that you recognize as the warning signs of a potential crisis.
Read the whole post via this link >>>
September is National Suicide Prevention Awareness Month | by Jenny Picciotto
Copyright 2018 National Pain Report
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#Robotics #MedicalDevices #BionicProsthetics #Prosthetics #WearableRobots
#motorized #exoskeleton #nerves #electrodes
NIH News in Health Monthly News | Bionic movements | August Issue 2018
Excerpt:
‘To make motorized hands more intuitive to use, researchers are developing ways to detect the electrical signals in your brain and nerves to help control advanced bionic prosthetics.’
Cholesterol Good and Bad | U.S. National Library of Medicine | Published on 26 Jun 2018
This is a brilliant short video explaining what cholesterol types there are, what their purposes are, and how they can affect your health.
Did you know that cholesterol can be “good” and “bad”? What does cholesterol do and how can it affect your health?
U.S. National Library of Medicine >>>
More at MedlinePlus >>>
https://medlineplus.gov/cholesterol.html
Both the above posts were sourced from this newsletter >>>
NIH Health Information | Protecting hearing at school | Cholesterol | Brain injury | Bionic movements | Young adult couples | 30 August 2018
This service is provided to you by the National Institutes of Health.
NIH…Turning Discovery Into Health®Visit the National Institute of Health Home Page via this link >>>
www.nih.gov/
Hot off the Press – #Oncology and #Haematology Updates! | 29 August 2018
European Medical Journal
Critical contributions to care.
Combat cancer and blood disorders with the latest EMJ Oncology and EMJ Hematology newsletter.
Read via this link >>
European Medical Journal ~ Hot off the Press – Oncology and Haematology Updates!
European Medical Journal | Part of the European Medical Group (ID: 08198092) | 88 Wood Street, London, EC2V 7RS (+44 (0) 1245 334450) | VAT No. GB144219234
Digital Health Digest | 31 August 2018
News >>>
INTEROPERABILITY | Health secretary highlights lack of national interoperability standards
DIGITAL PATIENT | Kent CCG goes live with mobile-based prescription ordering app
DIGITAL PATIENT | DIGITAL PATIENT
DIGITAL PATIENT | Bright sparks encouraged to submit ideas to innovation competition
Features >>>
FEATURE | Digital jam for NHS providers a welcome start
FEATURE | Digital natives will change the way we think about healthcare delivery
Upcoming Webinars >>>
Digitally driven workflows and patient journeys – how can we get from ‘good’ to ‘great’?
In today’s NHS, system planning, assurance, evaluation and continuous improvement are essential in delivering coordinated patient care. Join Accenture for our webinar where we will discuss our experience in digitising patient journeys and empowering patients and staff.
How NHS trusts can benefit from real-time data to improve cyber security
The webinar will provide you with insights into how and why the trust selected and implemented Fortinet. You will also learn how the use of SIEM has helped improve compliancy, driven efficiencies and enabled the trust to better utilise information from their existing technology assets to gain useful and insightful knowledge from their network.
Read the above and more via this link >>>
Digital Health Intelligence Limited
China Works
Black Prince Road
London, Lnd SE1 7SJ
United Kingdom
Copyright (C) 2018 Digital Health Intelligence Limited All rights reserved.
paper.li newsletters have also moved to their own ‘digested’ post and they update themselves. The list includes >>>
DAILY! European Medical Journal
The Patient Registry Daily News & more on patient registries and their impact on healthcare today
PHARMAGEEK NEWS, le Journal
The Immunology Daily
Twice Daily! | News from Focus on Disability
Daily! Above The Fold in Healthcare is out!
Daily! Brainless Blogger News
The Chronic pain Daily | Support from Coach Amber Rose
The brain and mental health voice is out! | selection by Valeria Duflot
Twice Daily! Fibromyalgia ME Chronic Pain is out!
Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
Twice Daily! News from UK Care Guide
Click the link above for access to these paper.li’s
Don’t forget! if you like what you read, share and opt-in for their e-newsletters!!
About paper.li | paper.li/introduction.html
Neuroscience Newsletter | 1 September 2018
Similar Changes in the Brains of Patients with ADHD and Emotional Instability – Neuroscience News
Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary.
| Similar Changes in the Brains of Patients with ADHD and Emotional Instability | |
| 2018-08-31 Researchers report ADHD and conduct disorder exhibit similar, overlapping changes in the brain.  |
| Why Synthetic Marijuana is So Risky | |
| 2018-09-01 With the availability and use of synthetic marijuana on the rise, researchers look at the risks associated with these products, including psychological and general health problems.  |
Neuroscience News | Neurology | Robotics| Psychology | Submit News
Neuroscience News
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#pharmanews #eyeforpharma #pharma #tech
The Big Trends Transforming Pharma | 28 August
Big trends in marketing according to Bayer, Janssen and Lilly c-suites
The industry is fast approaching a promising new future. How is it getting there?
Eyeforpharma asked some industry heavyweights what their vision of the future looks like for pharma.
Read the article here to hear from:
- Sebastian Guth, Executive Vice President and Chief Marketing Officer, Bayer
- Christi Shaw, Senior Vice President and President, Lilly Bio Medicines, Eli Lilly
- Kris Sterkens, Company Groups Chairman, Europe, Middle East and Africa, Janssen
- Julie Gerberding, EVP & Chief Patient Officer, MSD
- Jim Robinson, President & COO, Alkermes
- Andrin Oswald, Director of Life Sciences Partnerships, Global Health, Gates Foundation
Enjoy the read.
Lauren
Lauren Robertson
Global Project Director | eyeforpharma
EVENT
Marketing and Customer Experience USA 2018
Nov 14, 2018 – Nov 15, 2018, Philadelphia
A best in class marketing show for Pharma – not just another Pharma marketing show!
eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.
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Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.
MSWorldNewsletter | Latest from MSWorld, News, Events & More! | 27 August 2018
Latest from MSWorld, News, Events & More!
Information published online by MSWorld volunteers is not intended to be used toward the diagnosis or treatment of any medical condition. For specific information and advice, consult your personal physician.
– MSWorld ManagementOur mailing address is:
MSWorld, Inc.
PO Box 2643
Sarasota, FL 34230-2643
Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.
Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!
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#disability #disabilitynews
Disability News Service (DNS)
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
Awareness Campaigns
Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com
#Fibro2018 #FightFibro #Fibromyalgia #Fibro
![FMAUK SUPPORT GROUP LOGO WorkingWith-200_100[1]](https://i0.wp.com/fibroflutters.com/wp-content/uploads/2015/09/fmauk-support-group-logo-workingwith-200_1001.jpg?resize=274%2C137&ssl=1){kind=logo}
FibroFlutters in Support:
#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving
Fundraising to raise £20,000 for Fibro drop-in centre | Rock Off Fibro ~ Fibromyalgia awareness
Quoted from Just Giving page:
“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness
Please can you help such a worthy cause, patients are trying to help other patients?!
PLEASE help raise awareness of #incurable #Fibromyalgia join us as we launch our double album. fantastic night of #livemusic #music #gigs
Special guest appearance by #TheatreofHate
http://Www.rockofffibro.bigcartel.com
The Rigger , Newcastle Under Lyme
please share
Visit Rock Off Fibro’s PUBLIC group on FaceBook >>>
ROCK OFF FIBRO, Fibromyalgia Awareness concert. Public group
Visit Rock Off Fibro on Twitter >>>
Rock off Fibro @rock_off_fibro
#EpilepsyAwareness #Epilepsy
The Turning the World Purple Foundation | Epilepsy |
MOTTO:
We are more than our diagnosis. Epilepsy is NOT who you are.
We are working to smash stigmas associated with Epilepsy through advocacy and education.
www.turningtheworldpurple.org/
Maybe you could help out in some way and get involved 🙂
chronicillnessbloggers.com | 2018/02/07 | new-era-chronic-illness-bloggers
“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”
I am Proud to be a member and Ambassador of
@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.
Join for free on PatientsLikeMe.com!
A chance to change the future of personalized health.
Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information. ~ Carole
#notjustpatients
Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health >>>
https://www.facebook.com/groups/FFHQMentalHealth/
Something new
In the Chillout Lounge!
“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy
By Meditation and Healing | 7 August 2018
Why not visit Meditation and Healing to see what other tubes they have? >>>
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog, instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
