MSK ~ Rheum ~ Arthritis ~ Pain | A selection taken from FibroFlutters #chronicillnessVOICE

A post where I’ll paste my favourite MSK ~ Rheum ~ Arthritis ~ Pain posts from FibroFlutters #ChronicIllness posts. 

It will continously change over time as new posts are added and older posts archived

Please remember to read the privacy policies on the different sites, thank you.


#Healthcare #HealthReviews #Eurpean #Medical #Journal 

European Medical Journal | EMJ 3.2 Now Available!  | | DAILY UPDATED

We review all of the breaking news from the major healthcare congresses across Europe

Read  via this link to the EMJ paper >>>

Editor’s note

“EMJ 3.2 has entered the building! This truly multidisciplinary eJournal returns for its 10th issue and its second of 2018. EMJ 3.2 includes a plethora of high-quality peer-reviewed articles that detail a myriad of fascinating topics across seven therapeutic areas: urology, haematology, oncology, gastroenterology, hepatology, neurology, and reproductive health. This eJournal must not be missed.”

As written in the paper!


#EDS #raredisaease #ehlersdanlos #webinar #international #EDSnews


CONNECT ~ The Ehlers-Danlos Society International Newsletter | Medical Professionals Directory, Gut and EDS Webinar, and more!  | 17 June 2018

Headlines  >>>

  • Introducing our Medical Professionals Directory
  • VEDS Focus: To Shine Forth, Head Held High
  • Free Webinar, “Gut Involvement in EDS”
  • EDS and Exercise | by Jeannie Di Bon
  • Register for the 2018 Ehlers-Danlos Society Global Learning Conference
  • Register for Rarer Types Day
  • New Ehlers-Danlos Society Stores Launched
  • UK Women Build EDS Awareness

You can read all of this by visiting the following link >>>

You can keep up to date with all the news via Ehlers-Danlso Society by visiting their website and opting in for their newsletters >>>


DAILY!   #chronicpain  #chronicillness #painmanagement

The Chronic pain Daily |  Support from Coach Amber Rose  |

Editor’s note

Information is readily available but deciding what is important for you can be overwhelming. I hope that you find good information in these articles. Thriving with Pain has webinars, group coaching and individual coaching to support your 5 steps to Thriving with Pain. I have lived with chronic pain for over a decade. I am well now and know that a flare can happen.

Check out >>>> 


Visit the paper to find out what stories / articles Amber has selected for today  >>>



Twice Daily!  #Fibro  #ME #CFS #ChronicPain #invisibleillness

Fibromyalgia ME Chronic Pain is out!  

How it’s Costing You in Happiness, Financially and in Your Relationships!

Why not visit and opt-in for newsletters  >>>

“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – Fibromyalgia & ME news

Don’t forget to check this evenings edition for their next update!


Twice Daily!   #HealthNews #ChronicPain  #Autoimmune  #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy  #chronicillness  #invisibleillness

The Latest Health News & Related Subjects from Rhia at your fingertips | Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.  

Rhia Steele

All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.  Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.

Why not visit and opt-in for newsletters  >>> > Autoimmune / Arthritic Systemic Life

Rhia’s blog >

Paper Li >

Don’t forget to check this evenings edition for their next update!





#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia

Shared via Simon Stones | Twitter | 28 May 2018

Do you have a rheumatic and musculoskeletal disease ()? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using for health-related purposes.

To take part follow this link to the study >>>


About Simon >>>

Follow on Twitter >>>  Simon Stones  @SimonRStones

BSc (Hons) • Doctoral Researcher in Child & Family Health •  &  Member •  &  Trustee • Patient Consultant/Leader



#bones #joints #health #awareness 

#arthritis #patients #depression #mentalhealth #pain #chronicpain 

Arthritis patients report depression when pain is at its worst |  Bones and joints ~ Health Awareness |  Shantel Irwin Chief Executive, Arthritis Action | May 2018

Introductory paragraph:

‘BONES AND JOINTS The mental health challenges of living with persistent pain require resilliance and specialist help. Empowering individuals to take ownership of their own condition helps them stay positive’

Arthritis patients report depression when pain is at its worst

Read more articles related to ‘bones’ and ‘joints’ on Health Awareness website via this link  >>>

Visit the Health Awareness website for more health related news  >>>


#EULAR2018 ~ Amsterdam 13th – 16th June

Annual European Congress of Rheumatology

How to keep up with the #EULAR2018 news if like me you were not lucky enough to be there in person.

EULAR websites

EULAR Congress website:

EULAR Congress 2018 documents:

EULAR website:

EMEUNET website:

EULAR Young PARE website:

Welcome message from Johannes W. J. Bijlsma who is EULAR President  >>>

Welcome message from the EULAR President

Did you not go to Amsterdam?  Well don’t worry too much there are a few ways that you can keep up to date with what went on.


The (EMJ) European Medical Journal will have a full congress review of in their next edition of EMJ which is FREE to subscribe to via this link >>>

You can see all of EMJ’s Rheum content by visiting this link, please share. Please opt-in & help me to get proper peer reviewed articles out there  >>>


Copyright © 2018 European Medical Group LTD trading as European Medical Journal. All rights reserved. European Medical Journal is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendations.


#healthcareprofessionals #RheumatologyMatters #MedicineMatters

Medicine Matters | medwireNews@EULAR2018

Medicine Matters is developed for healthcare professionals as a premier resource for the latest clinical information in medicine.

Medicine Matters rheumatology   >>>


FREE registration for Medicine Matters ~ Rheumatology, you can opt-in via this link >>>

Rheumatology Matters twitter feed >>> 




The European League Against Rheumatism (EULAR) is the organisation which represents the patient, health professional and scientific societies of rheumatology of all the European nations. EULAR endeavours to stimulate, promote, and support the research, prevention, treatment and rehabilitation of rheumatic diseases. In line with UEMS, EULAR defines rheumatology as including rheumatic diseases of the connective tissue, locomotor and musculoskeletal systems.

Change-over NEW PODCAST

Airing Pain Programme 103: Pain and Relationships |  Pain Concern  | 6 June 2018

Airing Pain ~ Informing the pain community

Programme 103: Pain and Relationships

How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.

In this edition of Airing Pain, Paul Evans and eminent psychotherapist Dr Barry Mason speak about their personal experiences with fibromyalgia and ankylosing spondylitis.


How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.

This edition of Airing Pain is funded by the JTH Charitable Trust and the Persula Foundation.

Airing Pain channel on Audioboom >>>

Pain Concern website >>>

 Copyright © 2017 Pain Concern, All rights reserved.


#spoonie #spooniewarrior #ehealth #ehealthcoach #fibromyalgia #patientjourney #patientvoice #chronicblogger 

My past will not change, but I control my future  |  Julie Ryan  | Counting My Spoons  | 11 June 2018


‘My past will never change and I’m OK with that, because I control the future.’

My past will not change, but I control my future

Julie is a wonderful, lovely and friendly healthcoach and chronic illness warrior.  Counting My Spoons is an excellent blog to visit with lots of great posts by Julie, and her guest interviews as they discuss the trials and tribulations of living with fibromyalgia and / or other chronic conditions.  Also, great product reviews too!

Visit the site via this link  >>>

About Julie taken from the website:

Spoonie. Fibro Warrior. E-health advocate. Located in Huntsville, AL.

I’ve been diagnosed with Fibromyalgia, Endometriosis, Hypothyroidism, TMJ, Migraines, and Cluster Headaches. I share my journey here in an attempt to educate and inspire others who are dealing with similar health issues.

Blog title inspired by The Spoon Theory, by @bydls ~ Christine Miserandino (Twitter) an excellent explanation of what it’s like to live with invisible illness.



OA and your lifestyle

#arthritis #osteoarthritis #lifestyle #knucklecracking #texting #highheels #vitaminE

Arthritis Foundation E-news | Lifestyle Factors & Osteoarthritis Outcomes | Five lifestyle factors that may be linked to OA.

Here are five lifestyle factors researchers have studied to see if they’re linked to OA:

Besides possibly irritating those around you, can knuckle cracking lead to the disease?

If your child is constantly texting, is the development of OA more likely in his or her future?

Can wearing high-heeled shoes contribute to an OA diagnosis?

Is high-impact, weight-bearing exercise helpful or harmful?

Can a diet rich in vitamin E reduce the risk of OA or its progression?

‘Managing your arthritis – and the pain and restrictions that come with it – is much easier if you know what to avoid and what can be beneficial. We want to arm you with useful information that helps put you in control!’

Arthritis Foundation

Original posted on Arthritis Blog Home »  Osteoarthritis Blog Home  » Can Lifestyle Factors Influence Osteoarthritis Outcomes? | Arthritis Today Magazine  June 2017.

Visit the ‘Arthritis Foundation via the following link for more useful information, blogs, blog posts and there are also newsletters that you can opt-in for >>>

© 2018 Arthritis Foundation. All Right Reserved. 
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309




Try This, Not That: JA Complementary Therapies  |  Arthritis Foundation E-newsletter | 6 June 2018

JA Alternative Treatments

Complementary Therapies for JA  |  Try this, not that: find out which therapies to try and which ones to avoid.

Many families turn to complementary therapies to help ease the pain of a child with arthritis.

That can be a good thing – just be sure whatever you’re considering works for your situation.

Exercising with free weights and activities like jumping rope can improve both physical and emotional health without increasing pain. But avoid high-impact sports.

Relaxation exercises may diminish pain intensity … and they cause no negative side effects.

Water therapy is a good way to limber up stiff joints in the morning, and relax tight, aching muscles at bedtime.

Massage can relax muscles, lessen pain and improve circulation.

Learn all about complementary therapies for JA.

They may provide you with new methods to help manage your child’s pain.

© 2018 Arthritis Foundation. All Right Reserved. 
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309


#MSK #guestblog #MSKnews #arthritis #arthritisnews  #healthpolicy
#MSKandemployment, #workingwitharthritis

ARMA Guest blog | Why doesn’t it work? | by Garreth |  1 June 2018

“But my reflection here is that whilst we know such conditions are painfully common, we haven’t yet managed to adapt our health, social care and employment practices to adequately help those that want to be in work to be there.” ~ By Dr Steven Boorman CBE, Director of Employee Health, Empactis, Chair of the Council for Work and Health

ARMA Guest blog: Why doesn’t it work?

New MSK Knowledge Hub


Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | June 2018

‘Harnessing a collective focus to transform MSK services’

Who are ARMA? >>> 

About ARMA

Link to the newsletter where there are lots of things to read in this issue! >>>

ARMA JUNE Newsletter

To see previous issues of the newsletter, click here

Follow us on Twitter:   @WeAreArma

To include items in the ARMA newsletter, please contact us.

ARMA is the alliance providing a collective voice for the arthritis and musculoskeletal community in the UK.

Together, ARMA and its member organisations work to improve quality of life for all those living with musculoskeletal (MSK) disorders in the UK.

We aim to foster co-operation between charities and professional organisations, working to enhance understanding and mutual support between individuals and organisational bodies.

As put on their website



SIP Newsletter May 2018

SIP Newsletter May 2018

Societal Impact of Pain website where you can Opt-in to receive their newsletters to keep informed  >>>

Get and Keep Control of Your RA | Rheumatoid Arthritis Blog | Arthritis Foundation  |  14 May 2018 

Get and Keep Control of Your RA

When your disease is under control, you may be tempted to stop taking your medication. But doing so is NOT a good idea.

Advice from Arthritis Foundation


‘Most doctors begin hard-hitting treatment as soon as rheumatoid arthritis (RA) is diagnosed. Research shows that even in the first months after diagnosis, joint damage can occur if the disease is not treated aggressively, says Paul Howard, MD, a rheumatologist at Arthritis Health in Scottsdale, Ariz.’

Link to the post >>>

Get and Keep Control of Your RA

Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>

 © 2018 Arthritis Foundation. All Right Reserved. 
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309


#RareRevolution #raredisease #rarebabies 

Spring has sprung and our RARE Babies issue is here! | Rare Revolution Magazine | Spring 2018

Quoted from e-news mail:

‘This issue is themed around the joy that RARE BABIES bring to our lives and the challenges we face raising and battling for them, along with the bitter sweet moments of a battle lost.’

Rare Revolution Magazine ~ Spring has sprung and our RARE Babies issue is here!

  • RARE Revolution Magazine
  • Spring 2018 – Issue 007

Visit the magazine website via this link and sign up for the quarterly FREE digital magazine and also read back issues >>>


#arthritis #arthritisnews

Summer Gardening Without the Pain |  The Arthritis Foundation  e-newsletter |

Summer Gardening Without the Pain

Visit the Living with arthritis blog  >>>

Living with arthritis blog

Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>


#health #spoonie #backpain #chronicpain #drugs #fibromyalgia #pain #medication

Can herbal remedies for pain work as well as traditional medication?… |  BARMAC5  |  BACK PAIN BLOG UK…  |  11 June 2018

About ‘BackPainBlog’, Quoted from the site:


Opening paragraph:

‘Can herbal remedies for pain work as well as traditional medication? Every day you will read something online or in a paper or magazine about different side-effects, addictions and problems with certain medications but they all seem to be ones that people have to take long term.

Follow the link below to read more  >>>

Can herbal remedies for pain work as well as traditional medication?…

Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts  >>>


#stemcells #Lyme  #LymeDisease ##healing #healthjourney

Ten Months Post Stem Cells – A Snapshot Into My Lyme Disease Healing Journey |  Terry Mayfield, The Blathering Lymie |  Color Me Lyme  | 31 May 2018


‘I am, however, tickled pink to share I’ve experienced noticeable improvements recently. Crazy thankful for forward progress, albeit slow. A smidgen of reluctance comes over me as I type the words “noticeable improvements” and “forward progress”. I don’t want to mess with this positive juju!’

Read more via this link  >>>

Ten Months Post Stem Cells – A Snapshot Into My Lyme Disease Healing Journey

About the Author  >>>

Terry Mayfield, The Blathering Lymie

For more blog posts and newsletter opt-in visit the site  >>>


#MSK #musculoskeletal #Arthritis #backpain  #chronicpain  #connectivetissue #chronicillness

* Conditions like back pain and arthritis must have global health response |    |  Curtin University


‘Professor Briggs said the research called on WHO and its Member States to help reduce the global disability burden of musculoskeletal conditions by explicitly addressing it in health reforms and policy agendas, including setting global targets that align with people’s functional ability, rather than only mortality outcomes.’

Conditions like back pain and arthritis must have global health response

Curtin University ~ Australia

  • Western Australia’s largest and most multicultural university

Quoted from Curtin University ‘About’ page:

‘Curtin is an innovative, global university known for its high-impact research, strong industry partnerships and commitment to preparing students for jobs of the future.’

Link to Curtin University About page  >>>

More information: Andrew M Briggs et al. Reducing the global burden of musculoskeletal conditions, Bulletin of the World Health Organization (2018). 

DOI: 10.2471/BLT.17.204891 




Final Pdf of the EULAR Brussels Annual Conference Report of PARE 2018

REPORT | 21st EULAR Annual European Conference of PARE  |  People with Arthritis/Rheumatism in Europe, Brussels, Belgium, 16th – 18th February 2018


Who are EULAR & what is their mission?  >>>

#ChronicPain #CostoclavicularSyndrome #WomenIssues 

A post that is definitely for our ladies!

Chronic Body Pain Newsletter | Subject: Everything you need to know about bra strap syndrome | 5 May 2018

A great post based on a topic that women from all realms of #chronicillness have problems with. I know I have varying issues, but bra strap syndrome is the least concerning one of them.  Wearing bras is becoming difficult with alternatives often being too expensive, but the cost on the body from wearing ill-fitting bras could end up being more costly.

I’ve been getting #parathesia in left arm for around 10 years, nowadays I have it permanently at some level every day.  On the days it is bad I can’t even lift it let alone try to pick anything up, or get dressed, washed… all of these little ‘daily’ things  that everyone ‘takes for granted’ are affected.

Quoted from Physiopedia – Costoclavicular Syndrome:

The costoclavicular syndrome was first described in soldiers with loaded knapsacks, who developed pain, numbness, and fatigueability of the arms as they stood at attention.[4] The mechanisms of compression involved downward movement of the clavicle against the first rib with a resultant tendency to shearing of the neurovascular bundle.[5]

Follow this link to read more  >>>

Read the post via this link >>>

Chronic Body Pain Newsletter

Why not visit the website for more informative and helpful posts related to chronicpain problems, you can also sign up to recieve their regular newsletters  >>>


A few words from me – Carole aka fibrofly73

Personally, I wish I could sit down with someone and design a bra that is specially designed to suit folks with health problems such as #costchondritis #hidradenitis, or any other type of probem related to breasts and the chest area.  For instance even something as small as having slight scoliosis at the top end of the spine means our body shape isn’t the same as what the regular bras are designed for.  Just like #EDS and some types of #HSD like myself where I have small shoulders so keeping straps up is always an issue, and having the weight of larger breasts does not keep straps on shoulders… it’s a myth!

I can’t wear them  😮

I wore one last Thursday for about 4 hours and have now got huge welts under left breast that are extremely painful, they also making moving about painful.  This is due to the friction of fabric more than anything due to having such #hypersensitive skin in such a delicate area. #Hypermobility in my shoulders and elbows make the other types of support bras a ‘no-no’ because my shoulders and elbows pop out / slide around when I’m trying to put them on, so causing myself damage in the process.  #Prevention is better than a cure sometimes… so I go without.  No choice!

Living on benefits I cannot afford to buy tailor-made clothing of any sort!


Are you a LUPUS survivor?
Lupus Survivors Gets a Face-lift  |  Lupus Survivors newsletter |   1 May 2018

Introductory lines to the newsletter:

‘This May is a month of celebration for We launched a new website with a new sleek design to showcase the many inspiring stories that so many of you have contributed.’

You can check out Lupus Survivors new sleek website via the following link >>>

You can also sign up for their Newsletters too



#Musculoskeletal   #Skin  #Inflammation # PsA #Psoriasis  #Arthritis  #PsoriaticArthritis

What Type of PsA (PsoriaticArthritis) Do You Have? |  What is PsA |  Arthritis Foundation


‘Most people with psoriatic arthritis have skin symptoms before joint symptoms. However, sometimes the joint pain and stiffness strikes first. In some cases, people get psoriatic arthritis without any skin changes.’

Read more via the link below  >>>

What Type of PsA (Psoriatic Arthritis) Do You Have?

You can sign up for newsletters via the Arthritis Foundation home page and also find lots of differing types of information >>>

Featured Image -- 12581

Useful Post!

6 steps for coping with stress and improving your Fibromyalgia symptoms |  Julie Ryan  |  Counting My Spoons  |  30 April 2018


Learning to cope with Fibromyalgia is stressful. Your body becomes unpredictable and you rarely know what to expect from one day to the next. This creates stress and can often make us feel even worse. Coping with stress can be a key to improving your Fibromyalgia symptoms. Often the only way to learn to cope is by successfully or unsuccessfully handling specific situations. However, there are six key steps that you can take to help you as you learn to cope with daily journal, other chronic illnesses, or any stressful situation.’

Read more via this link >>>

6 steps for coping with stress and improving your Fibromyalgia symptoms

Why not visit Counting My Spoons website and sign up for the newsletter >>>

About Julie Ryan



The Chronic Pain Patient – Chronically Misunderstood  |  By Liza Zoellick |  National Pain Report  |  20 April 2018

About the author:

Liza is a chronic pain warrior from Houston who has been chronicling her journey through chronic pain and illness on her blog: She is a contributor to the National Pain Report.

Link to the post >>>

The Chronic Pain Patient – Chronically Misunderstood

Sign up for newsletters and read more posts on National Pain Report’s website  >>>


An App to help with Your Exercise Solution

Arthritis Foundation | Living With Arthritis > Tools Resources | Your Exercise Solution >>> Fitness That Fits You

Disclaimer from Arthritis Foundation

‘PLEASE NOTE: This tool does not provide medical advice. It is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis or treatment. Consult your physician before participating in activities described by this tool.’

Living with Arthritis An to help with your Your Exercise Solution

You can sign up for newsletters via the Arthritis Foundation home page and also find lots of differing types of information >>>

Natural Treatments!

Touch Therapy for Arthritis |Living with arthritis |Arthritis Foundation

Touch Therapy for Arthritis

Natural Treatments  |  Living with arthritis  | Arthritis Foundation 

Natural Treatments

Also headlining on their Arthritis blog >>>

Acupuncture and Acupressure for Arthritis

How Chiropractors Can Help Arthritis Pain
Learn about the different ways chiropractic care can ease joint pain and stiffness.

Blog Home >>>

Useful ‘PAIN’ Toolkit!

Breaking the Arthritis Pain Chain

Visit their website for information and sign up for newsletters  >>>

FF general postcard MOTTO with fmauk info

New Post!  Are sleep issues at the root of many Fibromyalgia symptoms? |  Counting My Spoons  |  Julie Ryan  |  16 April 2018


‘Past research has shown a connection between sleep deprivation and cognitive issues, emotional processing (the ability to determine if social cues are friendly or threatening) and control, impaired executive function (ability to complete basic tasks), attention, and working memory. Again, all of these things are things that are facts of life for those of us living with Fibromyalgia.’

Are sleep issues at the root of many Fibromyalgia symptoms?

You can subscribe to Julie’s newsletter and also connect with Julie on varying social mdia platforms too.  Why not pay her a visit, have a chat, or even ask her a question?

Remember if you have persistent problems it is best to visit your doctor to get checked out and to see if they can help you.



If you publish a health related or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at or use the form below and let me know, always happy to help 🙂


Many thanks for reading and helping to share the news that other folks like you write, or, find.



That here at we are not medical professionals just fellow chronic illness warriors sharing information.

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FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73