@Rheum_Matters ~ Rheumatology MattersA selection of online health related newspapers/magazines/newsletters/blogs/events
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Please note that I have opted-in to receive all the newsletters that I post from
Twice Daily! #carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
News from Focus on Disability
Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
For disabled people, the elderly and their carers in the UK
Why not visit and opt-in for their newsletters >>>
Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Don’t forget to check this evenings edition for their next update!
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Twice Daily! #HealthNews #ChronicPain #Autoimmune #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy #chronicillness #invisibleillness
Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.
Rhia Steele –
All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down. Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
The Latest Health News & Related Subjects from Rhia at your fingertips
Why not visit and opt-in for newasletters >>>
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
- paper.li/
Don’t forget to check this evenings edition for their next update!
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Twice Daily! #carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
News from UK Care Guide
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
Follow the link below for Uk Care News >>>
Why not visit and opt-in for newsletters >>>
- Website: UK Care guide
Don’t forget this evenings edition for their next update!
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TUC Disabled Workers’ Conference news
Daily! #disability #disabilitynews #chronicillness
My Disability Matters News & Opinion Digest | See the latest headlines | 12 June 2018
Headliners >>>
It is essential that disabled people can have pride in who they are and that disability discrimination awareness continues to be raised.
People with long-term health conditions have been wrongly deprived of the personal independence payment (PIP) they were entitled to.
Concerns about confidentiality, particularly around how the videos would be stored, who would be allowed to access them and what DWP would be able to use them for.
Other Headlines for today >>>
- Protest planned over rail company’s ‘terrible step backwards’ on access
- Atos and Capita win PIP contract extension ‘because DWP is chained to a corpse’
- TUC Disabled Workers’ Conference: Project Diamond’s flaws lead to boycott
- TUC Disabled Workers’ Conference: UN convention ‘must become part of UK law’
- TUC Disabled Workers’ Conference: Backing for national demo on SEND cuts
Why not join the community? Visit the website to join and opt-in for Worldwide Disability Matters DAILY News >>>
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Twice Daily! #Fibro #ME #CFS #ChronicPain #invisibleillness
Fibromyalgia ME Chronic Pain is out!
How it’s Costing You in Happiness, Financially and in Your Relationships!
Why not visit and opt-in for newsletters >>>
- Paper.li > Fibromyalgia & ME news
- paper.li/
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – Fibromyalgia & ME news
Don’t forget to check this evenings edition for their next update!
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#brain #mentalhealth #chronicillness #invisibleillness
The brain and mental health voice is out! | selection by Valeria Duflot
Why not visit and opt-in for newsletters >>>
Valeria Duflot – Paper Li
- #Socent
- veneziaautentica.com co-founder
- Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
- paper.li/
Updates every couple of days!
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Latest! #mentalhealth #depression #anxiety #stress #chronicillness #invisibleillness
Psych Central | Psych Central Daily Newsletter | 11 June 2018
Headlines for today >>>
- Today I Love Waking Up Free
- What My Dog Taught Me about Grief and Loss
- Inflammatory Protein Tied to Depression in Diabetes
Opt-in for varying newsletters, bipolar; depression; anxiety and more > Home Page:
Taken from the site PLEASE NOTE >>>
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#disability #disabilitynews
Disability News Service (DNS)
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
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DAILY! #chronicpain #chronicillness #painmanagement
The Chronic pain Daily | Support from Coach Amber Rose | paper.li
Editor’s note
Information is readily available but deciding what is important for you can be overwhelming. I hope that you find good information in these articles. Thriving with Pain has webinars, group coaching and individual coaching to support your 5 steps to Thriving with Pain. I have lived with chronic pain for over a decade. I am well now and know that a flare can happen.
Check out >>>> www.thrivingwithpain.com
Visit the paper to find out what stories / articles Amber has selected for today >>>
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Latest!
#NETCommunity #NeuroendocrineCancer #NETS
RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up | 7 June 2018
“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”
Ronny’s Community Newsletter >>>
Blog Home Page >>>
Living with Neuroendocrine Cancer
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#patients #patientcommunity #patientsnetwork #chronicillness #invisibleillness
http://www.healtheo360.com | Register for a ‘PATIENT’ community and ‘Tell your story!’
Join a Caring Network:
healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.
About healtheo360 >>>
Opening paragraph:
‘The healtheo360 community includes patients, their caregivers, family members and friends who come to share their personal healing stories so that others may find inspiration and motivation as they go through the journey of living with their condition. Members share their health related stories and learn from each other through discussion. We encourage you to upload your story via video testimonies but we also offer blogging for those who are more comfortable with that method of sharing. At healtheo360 we believe in the healing power of story telling and how beneficial it is to share your story as well as to learn from other people with similar experiences.’
Follow this link to join in >>>
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Other Newsletters / Magazines / Blogs of interest
(not in chronological order)
including > > >
In the Chillout Lounge!
Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 | NuMeditationMusic | 10 May 2018
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FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
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Awareness Campaigns
Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com
PLEASE CAN YOU PARTICIPATE & SHARE, THANK YOU 🙂
#hcsm #rheumatology #research
#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia
Shared via Simon Stones | Twitter | 28 May 2018
Do you have a rheumatic and musculoskeletal disease (#RMD)? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using #socialmedia for health-related purposes.
To take part follow this link to the study >>>
https://www.soscisurvey.de/socialmediarmds/ …
About Simon >>>
Follow on Twitter >>> Simon Stones @SimonRStones
BSc (Hons) • Doctoral Researcher in Child & Family Health • @EULARYoungPARE & @EMEUNET Member • @fmauk & @raiiseuk Trustee • Patient Consultant/Leader
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#PHARMA #pharma #pharmanews #pharmaphorum
#medicalinnovation #blockchain #healthcare #nanotechnology #medicine #realworld
Deep Dive Magazine ~ Future Pharma 2018| Pharmaphorum | 6 June 2018
“As pharma’s model is increasingly disrupted, how will health care and drug development progress? Click the button to read our preview article from the Medicines Discovery Catapult.” Quoted from the cover
What you can read about via the link below >>>
- Chris Molloy, Medicines Discovery Catapult, explains why the future of medical innovation lies with the industry’s SMEs
- Karen Taylor, Deloitte, offers six predictions for the course of our industry into 2022, both evolutionary and revolutionary
- How Blockchain could enable a truly global healthcare ecosystem
- And a look into real-world examples of how nanotechnology is now advancing medicine, and the challenges faced
- Sign up here to ensure you receive our next Deep Dive Oncology special report from ASCO when it is published at the end of this month, and future issues free on publication.You can read our previous editions here: Deep Dive: Patient Centricity, Deep Dive Market Access II.
If you like what you see then you can subscribe to the ‘Deep Dive’ magazine and daily updates via the Pharmaphorun website.
Link to the magazine >>>
Sign up for the pharmaphorum daily newsletter and /or the ‘Deep Dive’ magazine via this link >>>
Kind regards
Adam Jeffery
Commercial Director, Deep DiveCopyright © 2018 pharmaphorum media limited, All rights reserved.
Subscribed to receive Deep Dive via registration form.
A fabulous pharma magazine!
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#clinicalresearch #patients #patientparticipation #clinicaltrials #painmedicine #futureofpharma #whywedoresearch
Patients, Power, Participation: How Enrolling in Clinical Trials Can Help Ensure That The Future of Pain Medicine is Now | SKILLFULLY WELL & PAINFULLY AWARE | KATARINA ZULAK | 7 June 2018
Excerpt:
‘Participants in clinical trials have the opportunity to access cutting-edge therapies before they are made widely available, often at leading medical facilities. Experimental treatments can be appealing to individuals who have failed to benefit from conventional treatments. There is no cost to participate in medical research and health insurance is not required. Additionally, some studies compensate individuals who join the clinical trial.’
About Katarina >>>
This piece has been entered in the Patients Have Power Writing Contest run by Clara Health designed to raise awareness about clinical trials.
Visit the homepage for more blog posts by Katarina >>>
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Begins tomorrow!
#EULAR2018 ~ Amsterdam 13th – 16th June
Annual European Congress of Rheumatology
How to keep up with the #EULAR2018 news if like me you’re not lucky enough to be there in person.
EULAR websites
EULAR Congress website: www.congress.eular.org
EULAR Congress 2018 documents: www.congress.eular.org/download.cfm
EULAR website: www.eular.org
EMEUNET website: emeunet.eular.org
EULAR Young PARE website: www.youngpare.org
Welcome message from Johannes W. J. Bijlsma who is EULAR President >>>
Welcome message from the EULAR President
Are you not heading to Amsterdam? Well don’t worry too much there are a few ways that you can keep up to date with what is going on.
The (EMJ) European Medical Journal will have a full congress review of #EULAR2018 in their next edition of EMJ #Rheumatology which is FREE to subscribe to via this link >>>
You can see all of EMJ’s Rheum content by visiting this link, please share. Please opt-in & help me to get proper peer reviewed articles out there >>>
PLEASE NOTE:
Copyright © 2018 European Medical Group LTD trading as European Medical Journal. All rights reserved. European Medical Journal is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendations.
#healthcareprofessionals #MedicineMatters
Medicine Matters | medwireNews@EULAR2018
Medicine Matters is developed for healthcare professionals as a premier resource for the latest clinical information in medicine.
Keep an eye on this page tomorrow! for their live #EULAR2018 coverage >>>
FREE registration for Medicine Matters ~ Rheumatology, you can opt-in via this link >>>
Rheumatology Matters twitter feed >>>
PLEASE REMEMBER TO USE #EULAR2018 on all posts
If you’re attending #EULAR2018 maybe some advice from a fellow peer will be useful
Simon Stones >>>
Getting the most from #EULAR2018 – Some of my tips and tricks for those attending the EULAR Annual European Congress of Rheumatology this week in Amsterdam!
Visit Simon’s blog for his ‘tips and tricks’ to help you in Amsterdam >>>
Thankyou Simon for those useful EULAR links
About EULAR
The European League Against Rheumatism (EULAR) is the organisation which represents the patient, health professional and scientific societies of rheumatology of all the European nations. EULAR endeavours to stimulate, promote, and support the research, prevention, treatment and rehabilitation of rheumatic diseases. In line with UEMS, EULAR defines rheumatology as including rheumatic diseases of the connective tissue, locomotor and musculoskeletal systems.
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#spoonie #spooniewarrior #ehealth #ehealthcoach #fibromyalgia #patientjourney #patientvoice #chronicblogger
My past will not change, but I control my future | Julie Ryan | Counting My Spoons | 11 June 2018
Excerpt:
‘My past will never change and I’m OK with that, because I control the future.’
- My past will not change, but I control my future
- *A version of this article was originally published in the ProHealth inspiration corner.
Julie is a wonderful, lovely and friendly healthcoach and Counting My Spoons is an excellent blog to visit with lots of great posts by Julie, and her guest interviews as they discuss the trials and tribulations of living with fibromyalgia and / or other chronic conditions. Also, great product reviews too!
Visit the site via this link >>>
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#arthritis #osteoarthritis #lifestyle #knucklecracking #texting #highheels #vitaminE
Arthritis Foundation E-news | Lifestyle Factors & Osteoarthritis Outcomes | Five lifestyle factors that may be linked to OA.
Here are five lifestyle factors researchers have studied to see if they’re linked to OA:
- Besides possibly irritating those around you, can knuckle cracking lead to the disease?
- If your child is constantly texting, is the development of OA more likely in his or her future?
- Can wearing high-heeled shoes contribute to an OA diagnosis?
- Is high-impact, weight-bearing exercise helpful or harmful?
- Can a diet rich in vitamin E reduce the risk of OA or its progression?
‘Managing your arthritis – and the pain and restrictions that come with it – is much easier if you know what to avoid and what can be beneficial. We want to arm you with useful information that helps put you in control!’
Arthritis Foundation
Original posted on Arthritis Blog Home » Osteoarthritis Blog Home » Can Lifestyle Factors Influence Osteoarthritis Outcomes? | Arthritis Today Magazine June 2017.
Visit the ‘Arthritis Foundation via the following link for more useful information, blogs, blog posts and there are also newsletters that you can opt-in for >>>
© 2018 Arthritis Foundation. All Right Reserved.
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309
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Try This, Not That: JA Complementary Therapies | Arthritis Foundation E-newsletter | 6 June 2018
Complementary Therapies for JA | Try this, not that: find out which therapies to try and which ones to avoid.
Many families turn to complementary therapies to help ease the pain of a child with arthritis.
That can be a good thing – just be sure whatever you’re considering works for your situation.
- Exercising with free weights and activities like jumping rope can improve both physical and emotional health without increasing pain. But avoid high-impact sports.
- Relaxation exercises may diminish pain intensity … and they cause no negative side effects.
- Water therapy is a good way to limber up stiff joints in the morning, and relax tight, aching muscles at bedtime.
- Massage can relax muscles, lessen pain and improve circulation.
Learn all about complementary therapies for JA.
They may provide you with new methods to help manage your child’s pain.
© 2018 Arthritis Foundation. All Right Reserved.
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309
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Happiful Magazine E-newsletter | Help us help you | 7 June 2018
Happiful Magazine Help us help you
Visit the Happiful website to read past issues online, FREE, and you can also opt-in for newsletters >>>
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#biopharma #pharma #FDA | For the execs
BioPharma Dive E-newsletter | BIO18: Pfizer (sort of) inches back to neuro; Building ties with FDA | 7 June 2018
Headlines >>>
BIO18: Pfizer (sort of) inches back to neuro; Building ties with FDA
Day Three of the BIO International convention shined a light on the neuroscience space and its evolution.
ASCO18: Who were the big winners and losers?
Merck, Loxo and Bluebird departed Chicago looking stronger, while mixed results from Roche, Nektar and a few others left investors unimpressed.
ASCO18: 3 unanswered questions from oncology’s largest conference
This year’s ASCO meeting showcased dozens of major advances in cancer care, but several major questions remain in the red-hot field of immunotherapy.
SPONSORED CONTENT BY BRACKET
Tech Success: Improving patient medication adherence through apps
Patient engagement in clinical trials is key to improving poor medication adherence.
Novartis won’t face Swiss criminal probe over payments to Trump lawyer
The Swiss attorney general received a complaint alleging bribery by Novartis, but found insufficient suspicion to merit opening criminal proceedings.
BIO18: Diversity takes center stage
The conversation highlighted industry gender diversity — and lack of it. BIO had 18 “manels,” or panels that were only men.
Axovant stock rockets up on Oxford gene therapy deal
A new addition to its pipeline signals the biotech is still forging ahead despite a recent Alzheimer’s trial blowup.
First Neulasta biosimilar headed to US market
The FDA has approved Mylan and Biocon’s copycat pegfilgrastim, putting even more pressure on the already weakening Amgen franchise.
Read all the above and more via the following link where you can also opt-in for E-newsletters >>>
About BioPharma Dive
Our mission is to provide busy execs like you with an overview of the BioPharma industry in 60 seconds. BioPharma Dive is a product of Industry Dive.
View other Industry Dive publications.
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#diabetes #highbloodsugar #bloodglucose #selfmanagement #symptoms #diabetesawareness #diabetesinfo
High Blood Sugar Symptoms | Diabetes Self-Management E-newsletter | 6 June 2018
Excerpt:
‘Signs and symptoms of high blood glucose are often what lead people with undiagnosed diabetes to visit their doctors and, consequently, get diagnosed. But signs and symptoms of high blood glucose can also occur after diabetes is diagnosed and treatment has been started. It is a signal that your diabetes has slipped out of control.’
- High Blood Sugar Symptoms
- Updated March 31, 2017
- Wil Dubois BS, AAS, CPT, is a diabetes columnist and author of four books about diabetes that have collectively won 14 national and international book awards. He has Type 1 diabetes, and is the diabetes coordinator for a rural nonprofit clinic.
Visit the ‘Diabetes Self-Management’ website for more posts / articles, information and advice related to diabetes. You can also opt-in for E-newsletters >>>
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#chronicpain #patients #healthcarecomapanies #discrimination #education #professionals
Do we need to educate the professionals? | Steve Ariens | via National Pain Report | 5 June 2018
Excerpt:
‘Now is the time for chronic pain patients to start contacting law firms and point out to them – EDUCATE THEM… all the patient abuse, neglect and discrimination that is going on at the hands of these corporate entities that are called “healthcare companies” – and individually these companies are harming hundreds, thousands or tens of thousands of chronic pain patients.’
Read more by the Author >>>
Visit the National Pain Report website for more readables and opt-in for their newletters >>>
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#patientfocussed #chronicpain #drugdevelopment #public meeting
Public Meeting for Patient-Focused Drug Development on Chronic Pain | Ed Coghlan | National Pain Report | 4 June 2018
Opening paragraph:
Over 1,000 people—many of whom are National Pain Report readers—have filled out a survey designed to inform an FDA Patient Meeting on July 9, 2018. The official title of the event is a Public Meeting for Patient-Focused Drug Development on Chronic Pain.
About the Author: Ed Coghlan
If you haven’t completed the survey yet, it only takes about 30 minutes to take and you can do that via the following link >>>
- Public Meeting for Patient-Focused Drug Development on Chronic Pain United States Food and Drug Administration – Monday, July 9, 2018 Consumer (Patients/Care Partners) Feedback
- Request for Consumer Feedback due by June 17, 2018
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#hearthealth #bhf #healthmatters #healthyheart #heartdisease
#nutrition #educational #freesugars #cardiacarrest #patientvoice #recipe
British Heart Matters – magazine | Carole, could an egg a day help your health? 
| British Heart Foundation | 4 June 2018
“Information, inspiration and support for a heart-healthy lifestyle”
BHF
Headlines >>>
- Could an egg a day keep the doctor away?
- New research has suggested that eating an egg a day could help to reduce your risk of heart disease and stroke. We delve deeper to discover the truth behind the headlines.
- Watch an animation discussing The truth about ‘free’ sugars.
- We all know we need to avoid eating too much sugar. But do you know what types to avoid? Our animation explains.
- What I’ve learned from my cardiac arrest
- In a letter to her younger self, nurse Sarah Woodford shares what it feels like to think you’re dying, and the things she wishes she’d known before her cardiac arrest.
- What really counts as your 5-a-day?
- Knowing what counts as one of your 5-a-day – and what doesn’t, can be tricky. We debunk some of the myths with a list of 12 things that really shouldn’t count as your 5-a-day.
- Recipe of the week | Salmon with honey-roast beetroot salad
- Create this light and fresh salad for lunch or dinner – it’s perfect with crusty bread and a tangy lemon dressing.
- Tell us what you think of Heart Matters
- You could win a £50 John Lewis or Marks & Spencer voucher by telling us what you like about Heart Matters, and what you’d like to see more of in the magazine. Take the survey, help us improve and you could be a winner!
Popular in the last 7 days >>>
- How much salt is in your restaurant meal?
- 8 ways to stay slim for life
- Watch: What’s the difference between a heart attack and a cardiac arrest?
- 10 surprisingly sensational salad ingredients
- Blood pressure research
Read all the above via the following link >>>
Why not visit the website and register for ‘British Heart Matters’ magazine and newsletters >>>
The British Heart Foundation >>>
British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426
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Latest edition!
ARMA Newletter | Arthritis & Musculoskeletal Alliance | June 2018
Harnessing a collective focus to transform MSK services
Who are ARMA? >>>
Link to the newsletter where there are lots of things to read in this issue! >>>
- To see previous issues of the newsletter, click here
- Follow us on Twitter: @WeAreArma
- To include items in the ARMA newsletter, please contact us.
Heard about the new MSK Hub http://mskhub.org.uk ? It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.
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#Migraine #migrainesymptoms #patientvoice #bloggers #ChronicPain #chronicillness #caregivers
Main Headline: 2018 Migraine Awareness Month| Migraine.com weekly | 6 June 2018
Headlines >>>
2018 Migraine Awareness Month| By Editorial Team | 1 June 2018
Little Joy, Big Impact | Kyky Knight | 31 May 2018
Gravity Blankets – Are they Worth the Hype? | #purpleproject | 29 May 2018
What’s Your Secret: Travel Tips | Holly Baddour | 27 May 2018
Coping Mechanisms | Steven Workman \ 25 May 2018
When that Little Voice in Your Head Is Mean | Holly Baddour \ 24 May 2018
Featured story >>>
Migraine For The Past Five Months. Really struggling! | By stephckj | 18 May 2018
Featured poll >>>
How do you raise awareness for migraine?
Read all of the above via this link >>>
Check out their website for information and more posts / articles. If you enjoyed this newsletter you can opt-in for the magazine or newsletters via this link >>>
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J U N E is Migraine & Headache
Awareness Month!
#chronicillness #healthadvocacy
#Migraine #ChronicPain #Migraineawareness
The Migraine Mantras | May E-Newsletter | 16 May 2018
The Migraine Mantras ~ May E-Newsletter
The Migraine Mantras have partnered with Chronic Migraine Awareness Inc.
for #MHAM18!
Find out how you can get involved via visiting the link above
#Migraine #ChronicPain #Migraineawareness
Weekly digest for The Migraine Mantras | 4 June 2018
Headlines >>>
Ways I’ve Healed My Mental Illness | By Alisha
You Are Not Alone | By Winslow
Being a “Zebra” with Migraine | BY JORIE, JEANNETTE, & SARINA
Chronic Pain & Yoga: My Journey | By María –
Visit the ‘MigraineMantras’ WordPress blog for more posts and opt-in for their Weekly Digest newsletter >>>
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#Migraines #guilt #hurdles #copingstrategy
STUCK IN A GUILTY BUBBLE | VICKY (GUEST WRITER) | Migraine Mantras | 25 May 2018
Opening paragraph:
‘When suffering from a chronic illness, the feeling of guilt is one you can often find yourself getting a little too used to. Although, deep down you know things are not your fault or things are not always in your control, you cannot help that guilty feeling in the pit of your stomach when you are not always one hundred percent yourself. We all have bad days and that is completely okay, but it is accepting that it is okay that is the hurdle and celebrating the positive things.’
Read more via this link>>>
Visit the ‘MigraineMantras’ WordPress blog for more posts and opt-in for their Weekly Digest newsletter >>>
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#neurosciencenews #neuroscience
Neuroscience News via ~ Neuroscience Newsletter | 6 June 2018
The latest headlines over at ‘Neuroscience News’
First Artificial Human Prion Created | 2018-06-06
Researchers have successfully created a synthetic version of a human prion, a protein associated with brain wasting diseases like sporadic Creutzfeldt-Jakob disease. The prions may help shed new light on, and provide treatment options, for those with CJD and other prion related diseases.
How the Brain Performs Flexible Computations |2018-06-06
A new neural model reveals how the brain is able to adapt and process new information, researchers report.
Link Between Neurotransmitter Imbalance and Brain Connectivity in Those with ASD | 2018-06-06
Researchers have identified a link between neurotransmitter imbalance and brain connectivity in brain areas associated with social communication and language in those with ASD.
A Better Way to Trace Neural Pathways| 2018-06-06
Researchers have improved retrograde virus tracing to better reconstruct neural circuits in rats and mice.
Seeking New Answers to Alzheimer’s Cause| 2018-06-06
Researchers implicate presenilin and GSK-3b in the development of Alzheimer’s disease.
Brain Cancer Atlas Created | 2018-06-06
A new brain cancer atlas maps out comprehensive, visually rich information about the anatomical and genetic bases of glioblastoma, researchers report.
Human Drug Addiction Behaviors Tied to Specific Impairments in 6 Brain Networks | 2018-06-06
A new study reports impairments in six brain networks are associated with addiction behaviors. The findings may pave the way for developing more targeted treatments for addiction.
Distracted People Can Be Smell Blind | 2018-06-06
Researchers say inattentional anosmia exists. People who are busily engaged in tasks or distracted may not notice the presence of new smells, a new study reveals.
Want Narcissists to Donate to Your Cause? Make it About Them| 2018-06-06
Researchers report narcissists who are asked to imagine a recipient’s circumstances are more likely to donate to a cause than when the recipient’s plight is simply described to them.
Teenage Girls More Impacted by Sleepiness Than Boys | 2018-06-06
Researchers report teenage girls are more heavily impacted by sleepiness than boys of the same age. The study reveals teen girls have more trouble saying awake during school hours and often feel too tired to embark on other social activities.
Inside the Brains of Killer Bees | 2018-06-06
Researchers have identified neuropeptide alterations that occur in Africanized honeybee brains when they become aggressive.
A Typical Communication Pattern of People with Alzheimer’s | 2018-06-06
Researchers provide a statistical analysis of ‘saving appearance responses’ in patients with dementia. The study reveals the SAR responses are particularly common in those with Alzheimer’s disease.
Read all the above & the latest Neuroscience News by visiting their website by following this link, you can also opt-in for e-mail updates like I have for their latest headlines >>>
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#pharmanews #eyeforpharma #pharma #tech
Sizing Up Pharma’s Tech Maturity | Andrew Stone | eyeforpharma | 1 June 2018
About the Author >>>
Get the latest industry insights in your inbox:
Follow eyeforpharma on Twitter:
Like eyeforpharma on Facebook:
Subscribe to eyeforpharma youtube channel:
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PLEASE OPT-IN & SHARE, THANK YOU 🙂
#NHS70 #NIHR #IAmResearch
Please sign and support new research
Thunderclap ~ NIHR I Am Research & NHS70 | by The National Institute for Health Research (NIHR) |
Thunderclap ~ NIHR I Am Research & NHS70
I share this campaign as a Patient Research Ambassador for NIHR #PRAI
Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert
#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy
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#medicaldevice #newsmedical #medicalnews #medicaltech #technology #healthcare #pharma
Latest! News Medical | | The latest medical device news from News Medical | 1 June 2018 Edition
Headlines:
- High Voltage Power Supplies Selection Guide
- Snail’s eye inspires new type of RIOCATH urinary catheter
- Uterine Artery Embolization: Technique and Complications
- Novus Varia Lumenis Multicolor Photocoagulators from Lumenis
- X-CLARITY™ Tissue Clearing System II
- Sonohysterography – Technique and Indications
- Automated Hit Picking and IC50 Plate Preparation
- Technique and Precautions During Hysterosalpingography
- Titan Enterprises’ new MetraFlow ultrasonic flowmeter preserves process integrity
Read the articles listed above by following this link >>>
Please visit the ‘News-Medical website where you will be able to opt-in for varying health related newletters >>>
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News Medical Home Page >
http://www.news-medical.net ~ Copyright © 2000-2018
Privacy Terms and Conditions
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#AI #AItechnology #healthcare #innovation #medicalinnovation #pharma #tech #science
MedCity News | Top Stories E-newsletter | New $10 million fund for AI launches | 2 June 2018
Headliner>>>
Bessemer Venture Partners unveils new seed stage fund to invest in AI-driven technologies for healthcare | By STEPHANIE BAUM | 1 June 2018
Other headlines >>>
- SPONSORED | Access to Carriers Across the Nation Through a Single Point of Integration
- SV Angel goes ‘back to basics’ as partners exit
- Andy Slavitt, AVIA will team up to bring innovation to the Medicaid space
- Right-to-try law intended to weaken FDA, bill’s author tells agency commissioner
- SPONSORED | Hurry! Save $300 by 6/5 on MedCity CONVERGE, strategies and solutions in oncology innovation
You can read all the above articles via the following link >>>
Opt-in for their new digest by visiting their website >>>
About MedCity >>>
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#bipolardisorder #bipolar #selfcare #mentalhealth #mentalhealthawareness #patientvoice #themighty #depression
E-news ~ Bipolar Disorder on The Mighty | Theme ~ A selection of posts RE: Self-care tricks for people with bipolar disorder | 1 June 2018
4 Depression Self-Care Tips for When You Literally Cannot | Erica Chau | 11 December 2017
About ‘The Mighty’ contributor >>>
Self-Care Tricks I Practice for Bipolar Disorder | Katie Gallo | 2 November 2017
About ‘The Mighty’ contributor >>>
101 Self-Care Suggestions for When It All Feels Like Too Much | Annie Wright, LMFT | 4 April 2016
About ‘The Mighty’ contributor >>>
Sarah ~ Mental Health Editor at The Mighty, says
I hope the self-care tips in this newsletter inspire you to take care of your needs this weekend. Whether you rest, have an adventure or get through some chores, I hope you get what you need.
Take care of yourself,
Sarah
Quoted from the end of the ‘Bipolar Disorder on The Mighty’ newsletter
If you visit ‘The Mighty’ Home Page you can join in by opting-in for e-newletters, follow specific health conditions and / or different writers / contributors. You can post your blog posts and contribute too >>>
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#PETscans #PET #Cancer
Gallium PET Scans – Into the Unknown | Ronny Allan | 31 May 2018
Excerpt:
‘There’s a lot of excitement about the Gallium 68 PET Scan since it was approved by the US FDA. It’s not new though and has been in use in several countries (mainly Europe) for some time. It’s a ‘nuclear scan’ and can often form part of what is known as a ‘Theranostic Pair’ (i.e. in conjunction with a therapy – read more here).’
Read the post via the following link >>>
Read more and opt-in for updates via this link >>>
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PLEASE SHARE, THANK YOU 🙂
#The Big Leap #MS
Take a leap on the wild side and help stop MS. | MS Society
‘On Sunday 2 September, join our team of daredevils and take the leap of a lifetime at our brand new and exclusive MS Society skydiving day, the Big Leap.’ MS Society
The Big Leap Take a leap on the wild side and help stop MS.
Visit the MS Society for more news and events >>>
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PLEASE SHARE, THANK YOU 🙂
#MEAction Indiegogo campaign
“We need to raise $100,000 through this Indiegogo campaign to support our work for the remainder of the year to expand our reach, build community, increase our advocacy, educate doctors and scientists, and inspire new researchers and clinicians to join the field. Here is what your support can help us achieve.”
#MEAction Indiegogo campaign
#ME It is way past time for recognition, ME must be taken seriously!
Visit #MEACTION website and join many other ME and CFS patients >>>
www.meaction.net/
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#chronicpain #backpain #paintreatments #patientvoice #chronicwarrior #fibromyalgia
Ice vs heat for pain, which works for you ~ Infograph | Barmac5 | backpainblog UK | 20 May 2018
Check our Bar’s WordPress Blog for more posts and useful reads >>>
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#digitalhealthnews #digitalhealth #AI #analytics #digitalpatient
#clinicalsoftware #sharedrecocords #healthCIO #LHCRE #digitalNHS
New! Digital Health Newsletter | Digital Health | 7 June 2018
News Headlines >>>
- CLINICAL SOFTWARE: Royal Devon and Exeter NHS Foundation Trust gets Epic approval
- NEWS: Hunt reveals revised breast cancer IT scandal figures
- SHARED RECORDS: Surrey Care Record due to launch in August
- NEWS: Jeremy Hunt becomes longest serving Health Secretary
- DIGITAL PATIENT: Mobile healthcare to top $28bn in 2018 as doctors turn to digital
- SHARED RECORDS: Greater Manchester LHCRE to work with neighbours toward ‘common capability’
Features >>>
- HEALTH CIO: The CNIO interview: Rachael Robins, Betsi Cadwaladr University Health Board
- INTEROPERABILITY: Can the ‘have-nots’ overtake Exemplars in the interoperability stakes?
- Upcoming Events: Digital Health Summer Schools
- Upcoming Webinars:
- Building a digital NHS which empowers people to better manage their health and care
- Blueprints for the future: how will the knowledge of GDEs be shared?
- Implementing a Single Sign On Solution – Our Experience of Imprivata OneSign
Link to the newsletter and links to news sections >>>
- Digital Health Newsletter
- Link to other DIGITAL PATIENT news stories
- Link to other CLINICAL SOFTWARE news stories
- Link to other AI AND ANALYTICS news stories
- Link to other NEWS
- Link to other CYBER SECURITY news stories
- Link to other FEATUREs
Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters >>>
Registered No. 9257440 | Vat No. 198 3531 71
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#elderlycare #healthcare #postopcare #advancedsurgery #AgeUK #domiciliarycare #HomeCareSolutions #HomeCare
‘What good is advanced surgery if we can’t even offer proper homecare?’ | Anna Bawden and Nicola Slawson | The Guardian | 30 May 2018
Opening paragraph:
‘Almost 1.2 million people aged over 65 do not receive the support they need with essential daily tasks such as getting washed and dressed or preparing meals, according to Age UK. The perilous state of the domiciliary care sector, which provides support in people’s own homes, is one of the main reasons for this, the charity says.’
Read more via the following link >>>
About the Authors >>>
Visit The Guardian for more news via the following link where you can also opt-in to subscribe, and be a supporter, like I do and be kept informed of latest news and also their latest offers >>>
Note taken from ‘The Guardian’ website to its readers
“Thank you to the many people who have already supported us financially – your contribution is what makes stories like you’ve just read possible. We increasingly need our readers to fund our work so that we can continue holding power to account and producing fearless journalism.” From the Guardian
Even as little as £1 can help them make a difference!
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#Healthcare #health #care #NICE #socialcare #evidencebased
Latest issue! NICE Newsletter | May 2018
Including their latest PODCAST: Managing multimorbidity: putting patients at the heart of their care
National Institute for Health and Care Excellence – NICE – provides national guidance and advice to improve health and social care.
‘Improving health and social care through evidence-based guidance’
Visit the website for other news and you can also choose to opt-in for alerts and newsletters >>>
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PLEASE SIGN AND SHARE, THANK YOU 🙂
#Campaign #Petition #CarersTrust #GreenPaper2018 #elderlycare #careworkers #support
Meet your MP about the social care Green Paper 2018 | Carer’s Trust
The Government has promised to consult in 2018 on a long-term solution to social care funding for older people in England in a Green Paper.
If you’re a carer – why not meet your MP and tell them why the Green Paper has to include support for carers?
Meet your MP about the social care Green Paper 2018
Visit the ‘Carer’s trust’ website for more care news and opt-in for e-news >>>
Carers Trust believes in a world where the role and contribution of unpaid carers is recognised and they have access to the quality support and services they need to live their own lives.
#CarersWeek2018 11th – 17th June
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#CarersWeek2018 11th – 17th June
Get involved with events near you,why not check out if there is something happening close by?
Individuals and groups all over the UK are organising events to raise awareness for Carers Week 2018
If you’re planning an event or activity for Carers Week 2018, add it to the Carers Week map!
www.carersweek.org/get-involved/events-near-you
Visit the ‘Carer’s Week’ website for more care news & opt-in for e-news updates >>>
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EVENT
#healthcare #healthcareprofessionals #HCP #MSA
Multiple System Atrophy Trust | Health and Care Professionals Study Day
We are pleased to announce our next study day for Health and Care professionals will be held in Newcastle on 11th October 2018.
Multiple System Atrophy Trust | Health and Care Professionals Study Day
About the Multiple System Atrophy Trust >>>
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#NOTjustPatients #socialmedianetwork #digitalhealth #advocacyplatform #MAYOclinic #MCSMN
Mayo Clinic Social Media Network (MCSMN)
“After being, recently, introduced to this advocacy platform I can thoroughly recommend folks joining and making use of the Network to help empower themselves, and those of others.
I have been a fan of MAYO clinic for years so am really grateful to have access to such a great platform, especially not being a US resident but rather from UK. However, FibroFlutters do have many readers from the US and helping to provide you with safe places to go to online holds as much importance to us as finding safe places for our own UK readers to go to.
There’s access to discussions, webinars & MCSMN Blog depending on membership selection from Free, or, Premium. Please note that e-patients and students receive a special rate.
I certainly look forward to using it more, and hopefully making a few new friends along the way.”
Carole Scrafton ~ CEO FibroFlutters / Founding Five Member
🙂
Do you think this is a network for you?, or maybe you know someone else who might benefit from it’s services?
You can join the MCSMN via the following link >>>
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#HealthAdvocacy #healthcare #patients
Health Hats | You say you want a revolution | By Danny van Leeuwen | 27 May 2018
Excerpt:
‘One of the things that Victor said was that reformers are important, but healthcare is not designed for health and wellness, care and kindness. The entrenched forces will not fundamentally change with reform. It needs a revolution, a patient revolution. I’ve never been good at putting other people’s labels on myself – I don’t know if I’m a reformer or a revolutionary. During my professional and now activist career, I’ve seen myself as a catalyst for change – sustainable change that continues when you’re gone.’
Visit Health Hats and opt-in for their new posts via e-mail >>>
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#MEAction | Daily Digest: It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Two | 23 May 2018
Read: Volume One here.
Other headline:
- Who is advising the Australian government on ME and CFS research and treatment guidelines?
Catch up on the latest actions and news:
- The NIH Plan for ME is Dismal
- Calling all Patients: Fill Out the Research Survey about PEM
- Just Invisible: Medical Access Issues for Homebound/Bedridden People
- Inquest Rules Merryn Crofts Died Due to Severe ME
- UK Call to Action: Ask Your MP To Sign EDM 1247!
Visit #MEAction website and register, you can also opt-in for the ‘Daily Digest‘ newsletters >>>
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Get involved with #healthresearch in #Salford and #Manchester
Are you interested in #research?
Would like to get more involved, or know what research is going on around you?
Visit The ‘Citizen-Scientist’ website and take a look around, if you like what you read you can opt-in for newsletters >>>
www.citizenscientist.org.uk/sign-up/
About #CitizenScientist >>>
www.citizenscientist.org.uk/about/
A CURRENT study opportunity: Testing a new technology to reduce chronic pain
Study summary
The Human Pain Research group based at Salford Royal is trying to develop new technologies that can measure and treat changes in the brain that might contribute to chronic pain.The research team are exploring a new approach aimed at reducing the unpleasantness of pain for people living with fibromyalgia and/or osteoarthritis using sound stimulation.
Citizen-Scientist Tags ~ arthritis, fibromyalgia, healthy volunteers, pain
Read more via this link >>>
www.citizenscientist.org.uk/study-updates/cloudy-chance-pain-preliminary-findings/
A study update: Cloudy with a chance of pain – preliminary findings
Citizen-Scientist Tags ~ pain weather
Cloudy with a Chance of Pain is a large smart-phone based research study examining the link between weather and pain.
Read more via this link >>>
www.citizenscientist.org.uk/study-updates/cloudy-chance-pain-preliminary-findings/
Posted on 14th March 2017 by Natalie Balmain
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#digitalhealthnews #digitalhealth #speechrecognition #medicalspeechrecogniton
Dictate.it launches next generation medical speech recognition | Digital Health | 22 May 2018
Quote from the text:
“The engine, a first for a UK health supplier, is available to all registered primary care practitioners on a free trial basis from the 22nd May 2018.”
Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters >>>
Registered No. 9257440 | Vat No. 198 3531 71
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Im-patient UPDATE
Thankyou to everyone…
…who has participated in the ‘Impatient’ survey, your ideas and thoughts have been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia is now also developing/
Keep a check on how things are going by visiting the website
Excerpt:
We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.
THANKYOU IN ADVANCE FOR READING AND PARTICIPATING
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#Diabetes #advocacy
Diabetes Blog – Happy-Medium.net | WEEKLY DIGEST | StephenS | 4 June 2018
Headlines:
- One at a time.
- My turn.
- You do You.
Read more via this link >>>
Visit Stephens blog for more posts >>>
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#GDPR & the new Privacy Laws. What do they mean for you?
What’s changing and what’s not under new data privacy rules | Anick Jesdanun | physorg.com | 18 May 2018
Excerpt:
‘Not much will change for you, at least right away; companies will keep on collecting and analyzing personal data from your phone, the apps you use and the sites you visit. The big difference is that now, the companies will have to justify why they’re collecting and using that information.’
Read more by following this link >>>
- What’s changing and what’s not under new data privacy rules
- Sourced via: ‘Newsletter Science X’ ~ ‘physorg.com‘
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#palliativecare #dying #terminal
Patient Newsletter | Subject: What not to say to someone who is dying | 7 June 2018
What not to say to someone who is dying | Gillian Harvey
If a friend or family member is given a terminal diagnosis, it’s natural to want to support them. But many of us are scared of saying the wrong thing. We look at potential pitfalls.
About the author and more of her articles >>>
Let’s talk more openly about death
Other Headlines:
- How to talk to children about death
- What you need to know about palliative care
- Can exercise help with grief?
- How to support someone bereaved by suicide
- Join our mental health forum
- Can you die from a broken heart?
Read more articles / posts from the newsletter by following this link >>>
Visit the Home Page and register for patient access as well as newsletters >>>
Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.
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#PsoriaticArthritis #Arthritis #PatientVoice #Patients
Meet 3 People Living with Psoriatic Arthritis | Arthritis Foundation | 11 May 2018
Meet Richard, Nandi and Andre
If you have PsA, you might be inspired by the stories of three people living with the disease.
Follow this link to read more >>>
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
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Latest! #stressresources #stress #mindfulness #meditation
May 2018 Newsletter from Stress Resources | Pamela Ressler | May 2018
Quoted from the home page:
‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is to empower your creativity, productivity and leadership’
For more articles and information visit the Stress Resources website where you can also sign up for their newsletter >>>
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#Fibro2018 #FightFibro #Fibromyalgia #Fibro
![FMAUK SUPPORT GROUP LOGO WorkingWith-200_100[1]](https://i0.wp.com/fibroflutters.com/wp-content/uploads/2015/09/fmauk-support-group-logo-workingwith-200_1001.jpg?resize=274%2C137&ssl=1){kind=logo}
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#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving
Fundraising to raise £20,000 for Fibro drop-in centre | Rock Off Fibro ~ Fibromyalgia awareness
Quoted from Just Giving page:
“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness
Please can you help such a worthy cause, patients are trying to help other patients?!
Visit Rock Off Fibro’s PUBLIC group on FaceBook >>>
Visit Rock Off Fibro on Twitter >>>
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Newsletters via News Medical
Latest! News Medical |Diabetes Newsletter | 29 May 2018
News Medical | Endocrinology Newsletter | 10 April 2018
News Medical | Respiratory Diseases | 29 April 2018
News Medical |Sleep Disorder Newsletter | 9 April 2018
LATEST! News Medical | Pediatrics Newsletter | 25 April 2018
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News Medical Home Page >
Change around in the Chill out Lounge!
Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 | NuMeditationMusic | 10 May 2018
Why not visit NuMeditationMusic to see what other tubes they have? >>>
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
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FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
