#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients| 8 June 2018

A selection of online health related newspapers/magazines/newsletters/blogs/events

Hope you like our newletter’s new title & mini-revamp

Daily! Above The Fold in Healthcare is out!

By C. Michael Gibson MD  Have a news tip?

email charlesmichaelgibson@gmail.com 

Paper.li > Above the Fold in Healthcare


Twice daily!  Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®

Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.

The Latest Health News & Related Subjects from Rhia at your fingertips

Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.


Twice daily!  Fibromyalgia ME Chronic Pain

Fibromyalgia ME Chronic Pain is out!  How it’s Costing You in Happiness, Financially and in Your Relationships!

“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher


Twice daily!  Focus on Disability Newsletter

For disabled people, the elderly and their carers in the UK

  • Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
  • Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 

Visit the link above to find all their social media links!


Daily!  Brainless Blogger News

Fibromyalgia and Migraine related news selected by Nikki Albert a health blogger at Brainless Blogger brainlessblogger.blogspot.co.uk/  blogging regularly about Fibromyalgia and Chronic Migraines. I freelance write as well and have published in e-zines, fibromyalgia magazines, been a guest blogger on a few sites and been published in a collection.


Daily!  UK Care Guide

A UK care news site designed to help both those going in to care and those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.


Ronny Allan’s Latest Daily Newsletter via Nuzzel

Neuroendocrine Cancer Patient Voice and International Advocate. WEGO Health Patient Leader, Cure Today Contributor, Cancer Campaigner, Featured Blogger (@netcancerblog). Veteran.


Plus a few extras: Not in chronological order!


Meditation Change over!   

KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | 5 February 2018

Meditative Mind  Published on 7 Jun 2018
It’s at the end




FibroFlutters continuously
Advocating for a Multi-Disciplinary / Patientcentric approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 
You all need to pitch in!!




#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia

Shared via Simon Stones | Twitter | 28 May 2018

Do you have a rheumatic and musculoskeletal disease ()? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using for health-related purposes.

To take part follow this link to the study >>>


About Simon >>>

Follow on Twitter >>>  Simon Stones  @SimonRStones

BSc (Hons) • Doctoral Researcher in Child & Family Health •  &  Member •  &  Trustee • Patient Consultant/Leader



Latest!  #alzheimers  #dementia  #care  

Alzheimer’s Reading Room Newsletter |  Bob De Marco| Headliner:  The Alzheimer’s Yakker | 6 June 2018

Also including:

  • Dying from Dementia, Suffering Often Unnecessary
  • Research Links Tau Protein to Cell Death in Alzheimer’s disease
  • When Dementia Patients Say Mean Things, What Can You Do?

and much more…

Visit their Home Page  to see what else you can read and also sign-up for their newsletters  > >>

#EMR  #HIPAA  #Healthcare  #Technologies

HITExpo ThankTanks Spur Online Discussion on the Nature of EHRs, Innovation & Patient Experience |  Colin Hung  | EMR and HIPAA  |  7 June 2018


Last week at the inaugural 2018 Health IT Expo (#HITExpo), we kicked things off with three ThinkTank sessions:

  1. Going Beyond EHRs – https://www.youtube.com/watch?v=ULVQA4xEIRU
  2. Practical Innovation – https://www.youtube.com/watch?v=1Uc9_BCKQ84
  3. Communication & Patient Engagement – https://www.youtube.com/watch?v=60MAP04MoOw

Read more via the following link  >>>

About the Author >>>

For more articles / posts visit the website where you can also opt-in for newsletters  >>>

HEADLINES: Your Daily Dose During National Migraine and Headache Awareness Month. 2018: You Are Not Alone! Partnering For Better Headache and Migraine Care. #MHAM #NotAlone

Daily #MHAM Headlines

Daily MHAM Headlines for June 8th

  • June 8th Recognition Day:  Healthcare Provider Appreciation
  • Dr. Abigail Chua
    Be Visible – Chronic Migraine Awareness, Inc & Migraine Mantras
  • Fact-A-Day – U.S. Pain Foundation & Chronic Migraine Awareness, Inc
  • Recognition Day Content from MigraineAgain.com
  • Blogging & Social Media Challenge – MigraineDisease.com | Avengers
  • Advocate Stories – Migraine.com | video from Katie Golden |Video of Botox Injections
  • Migraine Journeys – MigraineAgain
Posted in 

©2018 Coalition For Headache And Migraine Patients. All Rights Reserved



Change-over NEW PODCAST

Airing Pain Programme 103: Pain and Relationships |  Pain Concern  | 6 June 2018

Airing Pain ~ Informing the pain community
Programme 103: Pain and Relationships
How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.

In this edition of Airing Pain, Paul Evans and eminent psychotherapist Dr Barry Mason speak about their personal experiences with fibromyalgia and ankylosing spondylitis.


How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears.

This edition of Airing Pain is funded by the JTH Charitable Trust and the Persula Foundation.

Airing Pain channel on Audioboom >>>

Pain Concern website >>>

 Copyright © 2017 Pain Concern, All rights reserved.


#chronicpain  #chronicillness  #patientvoice #health  #Spoonie 

Asking for help when you are in pain… |  BARMAC5  |  BACK PAIN BLOG UK…  |  5 June 2018

About ‘BackPainBlog’, Quoted from the site:


Opening paragraph:

‘Asking for help when you are in pain can be difficult for some people especially the older generation. Here is a list of some of the barriers to asking for help and the benefits of asking for help.’

Follow the link below to read more  >>>

Why not visit Barmac5’s blog on WordPress for more chronic pain and fibromyalgia related posts  >>> 


#dementia #dementiacare #ageuk #health #healthandwellbeing
#CareQualityCommission #CQC #carers #hospitalcaredementia #hospitalcarealzheimers #NationalAuditofDementia #olderpeople #dementiasurvey #hospitalinspection

Getting it right for people with dementia in hospital  | Age UK |  Age UK Blog  |  4 June 2018

Opening paragraph:

‘The care of older people with dementia is a critical issue for hospitals. An estimated 850,000 people in the UK live with dementia and it is thought that around a quarter of all people in hospital have dementia.’

For more stories and posts visit the ‘Age UK’ blogsite on WordPress where you can also opt-in for their newsletters  >>>

A blog for everyone interested in later life and our ageing society



It’s that time of year to recognise your peers, your fellow advocates and patients leaders.

WEGOHealth Awards

Nominations have officially opened. Head on over to the WEGO Health Awards nomination page to recognize your favorite community leaders.

Everyone can be a part of the #WEGOHealthAwards!

WEGO Health Awards’ Categories

Make sure to nominate your favorite Patient Leaders across all condition areas and topics, including #chronicillness #invisibileillness #fibro #ME #EDS #Lupus #Musculoskeletal #RMD #arthritis #psoriasis #chronicpain #multumorbidities #patients #patientvoice #collaberative #TEAM #PatientLed #PatientEngagement

#patientadvocacy #healthadvocacy #researchadvocacy

#ChronicillnessVOICE  #NotJustPatients

Nominate Today.!




#MEAction  |  You’ve Helped Us Expand Our Team!  |  1 June 2018

You’ve Helped Us Expand Our Team!

Thank you,

Jen, Laurie, Jaime, Ben, Adriane, and Kim


Daily Digest: #MEAction Scotland Speaks at Scottish Parliament Petitions Committee – Watch the Video | By Adriane Tillman | 8 June 2018

Read more stories and opt-in for their newsletters via the following link  >>>



#Fibromyalgia  #Research #FibroResearch

Fibromyalgia Research Newsletter  | UK Fibromyalgia |  June 2018

The home of the Fibromyalgia Magazine- The independent voice of UK Fibromyalgia.

This newsletter is for informational purposes only and should not be used as a substitute for the medical advice or services of your health care providers.
The advertising of a product, therapy or clinic in this email does not imply that it has been tested or its use endorsed by UK Fibromyalgia.





MSWorld, News, Events & More!  |   28 May 2018

Keeping you up-to-date on all things MS & MSWorld


The Magic of Helping Others Started Here, Happens Here, and Will Continue Here!


#healthcarenews  #patientengagement  #healthcare #patients 

Latest! MedCity News | Gottlieb highlights FDA’s right-to-try strategy  | 8 June 2018

Second paragraph of About Us page of the MedCity News website:

‘Healthcare leaders must stay on top of new technologies, new companies, future trends and the latest policies, with a perspective that includes the entire healthcare ecosystem: health IT, medical devices, health systems, venture investing, mobile apps, biotech and pharma. In this interconnected market, there is no “Silicon Valley” for healthcare but nearly a dozen hubs of healthcare and life science innovation, including Philadelphia, Cleveland, Research Triangle Park, and Minnesota’s Twin Cities, Seattle and San Diego’

Follow this link to MedCity News About Us page  >>>

Read the MedCity News ~ TOP STORIES newsletter via the following link >>>

Follow this link to MedCity News ~ patient engagement section  >>>

Follow this link to MedCity News Home Page where you can opt-in for their newsletters>>>


#ME #MEresearch #research 

Latest plain English M.E. research round-up|  A Prescription for M.E.
 | EMILY BEARDALL | 8 June 2018


This M.E. research round-up covers studies published from 17 March 2018 to 16 May 2018: Standing unaided, Glucose and muscle cells, Unwanted effects of rituximab, Blood sample analysis. Read the research round-up

About A Prescription for M.E. >>>


#AI #UCLhospital #digitalhealth

University College London Hospital explores AI possibilities  | Hannah Crouch | Digital Health | 29 May 2018

Link to the newsletter with many more stories / posts and news to read >>>

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>

Registered No. 9257440  |  Vat No. 198 3531 71

#DigitalHealthSummerSchools #DigitalHealth #BirminghamUK 

Digital Health Summer Schools  | digitalhealth.net/ 

The #bestpractice and #networking event for #NHS #digitalleaders

Four Summer Schools: CCIO, CIO, CNIO and Future Digital Leaders (new), with dedicated tracks and shared plenary sessions

Three best practice site visits: Birmingham University Hospital, Birmingham and Solihull Mental Health and Birmingham CCG

Join your peers from across the UK and Ireland for two days of best practice exchange, networking and education sessions

19 – 20 July 

University of Birmingham


Taken from the webpage

Book your places via the link below  >>>

Digital Health Summer Schools

Visit the digitalhealth.net website to opt-in for e-newsletters  >>>





#OMF #DrRonDavis #LindaTannenbaum #IIMEC13  #BRMEC8  #Netherlands

A message from Linda Tannenbaum | Meeting New & Old Friends in the Netherlands |  (OMF) Open Medicine Foundation | 

Meeting New & Old Friends in the Netherlands

Opening lines:
‘After London, Don and I traveled on June 2 to the Netherlands (Utrecht), our second stop on our OMF End ME/CFS Worldwide Tour 2018 and our first visit to this beautiful country with so many bikes everywhere! We couldn’t wait to finally meet with old and especially new Dutch friends, some of them members of our International Translations Team, who helped us this year with over 45 Dutch translations, including translating the resources for this event.’
We would sincerely like to thank our wonderful hosts, Carolien and the team of the ME/CVS Vereniging, for this incredible event, made special by everyone’s warmth and generous support of our research. We felt so welcomed and cared for. We will always remember our lovely visit to the Netherlands. Thank you to all of our wonderful friends in the Netherlands. We left your country with a very warm feeling.
With hope for all,
Linda Tannenbaum

Open Medicine Foundation®
Fast-tracking revolutionary research for ME/CFS
and related chronic complex diseases
OMF is a non-profit 501(c)(3) organization
(EIN# 26-4712664). All donations are tax-deductible to the full extent allowed by law.

Visit the OMF website for news and other interesting readables, you can also opt-in for newsletter updates >>>


#stemcells #Lyme  #LymeDisease ##healing #healthjourney

Ten Months Post Stem Cells – A Snapshot Into My Lyme Disease Healing Journey |  Terry Mayfield, The Blathering Lymie |  Color Me Lyme  | 31 May 2018


‘I am, however, tickled pink to share I’ve experienced noticeable improvements recently. Crazy thankful for forward progress, albeit slow. A smidgen of reluctance comes over me as I type the words “noticeable improvements” and “forward progress”. I don’t want to mess with this positive juju!’

Read more via this link  >>>

About the Author  >>>

For more blog posts and newsletter opt-in visit the site  >>>

#ThePsychologist  #Research  #magazine  #BPSResearchDigest

BPS Research Digest  | 31 May 2018

‘Every week we bring you engaging reports on the latest psychology research. Anyone can subscribe free. We also provide daily updates on the latest psychology research via our app and on varying social media channels.’

The Psychologist is the monthly magazine of the British Psychological Society that you can find via this link  >>>

Visit The BPS website and opt-in for news updates and newsletters  >>>

Find BPS Research Digest  >>>


The British Psychological Society is a charity registered in England and Wales (SC039452), and Scotland (229642).
Copyright © 2018 The British Psychological Society, All rights reserved.


#NHS70 #NIHR  #IAmResearch

Please sign and support new research

Thunderclap ~ NIHR I Am Research & NHS70 |  by The National Institute for Health Research (NIHR) |

Thunderclap ~ NIHR I Am Research & NHS70

NIHR I Am Research & NHS70

I share this campaign as a Patient Research Ambassador for NIHR #PRAI

Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert

#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy



SIP Newsletter May 2018 

Societal Impact of Pain website where you can Opt-in to receive their newsletters to keep informed  >>>


#Professionals #Rheumatology #Rheumatoidarthritis

Welcome to the daily update e-newsletter from RheumatologyAdvisor  |  

Why not visit their website and Opt-in for e-mails to keep informed.

Headliner:   New Method Developed to Examine Joints in Rheumatoid Arthritis | Virginia Schad, PharmD  | May 16, 2018  


‘To validate this novel clinical examination technique, 4 rheumatologists evaluated 180 MCP joints in 18 patients with RA, using either the TFT or the DFFT, and all patients underwent US examination for greyscale (GSUS) and power Doppler (PDUS) by a certified musculoskeletal radiologist.’

Read more via the following link  >>>

About the Author  >>>


#Research #Datacentre #ME #CFS #collaborative  #OMFScienceWednesday

OMF funds Harvard Collaborative Center and expands Data Center  |  Open Medicine Foundation | 23 May 2018

From the introduction:

ME/CFS Collaborative Research Center at the Harvard:

We are proud to announce that OMF has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center.’

Read more via this link  >>>

Visit the Open Medicine Foundation website for more readables and useful information including research news  >>>

Seventy-first World Health Assembly

#WHO #WorldHealth #PublicHealth  #publichealth

World Health Organization newsletter| The future in public health | 23 May 2018

Health Ministers and representatives from many organizations working to improve health are gathered in Geneva this week for the World Health Assembly.

Today, delegates agreed on WHO’s new strategic plan of work for the next five years. Other issues for discussion include influenza, cholera, tuberculosis, snakebite, physical activity, polio and access to essential medicines.

World Health Organization | The future in public health

WHO website  >>>  www.who.int/

#diagnostictests  #treatmentoutcomes  #chronicillness  #invisibleillness

PRESS RELEASE  ~ First-ever WHO list of essential diagnostic tests to improve diagnosis and treatment outcomes | News Release Geneva  | 15 May 2018  

Quote ~ Dr Tedros Adhanom Ghebreyesus, WHO Director-General:

“An accurate diagnosis is the first step to getting effective treatment,” says Dr Tedros Adhanom Ghebreyesus, WHO Director-General. “No one should suffer or die because of a lack of diagnostic services, or because the right tests were not available.” Taken from the article

Read more via this link  >>>

The Essential Diagnostics List 

Excerpt from ~ First-ever WHO list of essential diagnostic tests to improve diagnosis and treatment outcomes:

‘The Essential Diagnostics List was developed following an extensive consultation within WHO and externally. The draft list was then considered for review by WHO’s Strategic Advisory Group of Experts on In-Vitro Diagnostics – a group of 19 experts with global representation.’

Medical devices |  Selection, access and use of in vitro diagnostics  >>>

Register with WHO via their website and recieve their newsletters  >>>


#ArthritisAwarenessMonth #May2018Arthritis  #arthritis

Arthritis Action eNews |  May 2018

Headlines >>>

  • Stress: are we coping?
    • Mental Health Awareness Week
  • New ventures: Blackpool
    • Expanding our network
  • Fundraising made easy
    • Amazon Smile

Plus more…

Visit the Arthritis Action website for more information, advice and sign-up for their newsletter  >>>



#endometriosis explained for #men #husbands

Straight, No Chaser: Endometriosis  |  JeffreySterling MD  |  18 May 2018


‘You’re more likely to develop endometriosis if someone in your family (e.g., mother or sister) has it, if you started your periods at a young age, if you’ve never had children, if your periods are irregular (i.e., frequent or last more than seven days at a time) of if you have a closed hymen (vaginal opening).’

Read more via this link  >>>

Excellent newsletter!

Girls With Guts  (GWG)| May 2018 Newsletter | Get in the spirit! |  2 May 2018

Visit the site to find out more about GWG and the work they do >>> 


#backpain #chronicpain #muscles #rhomboidmuscles

Debilitating Diseases newsletter | Subject: Everything You Need To Know About Your Rhomboid Muscles And Upper Back Pain | 9 May 2018

Home Page >>>


#RareRevolution #raredisease #rarebabies 

Spring has sprung and our RARE Babies issue is here! | Rare Revolution Magazine | Spring 2018

Quoted from e-news mail:

‘This issue is themed around the joy that RARE BABIES bring to our lives and the challenges we face raising and battling for them, along with the bitter sweet moments of a battle lost.’

Visit the magazine website via this link and sign up for the quarterly FREE digital magazine and also read back issues >>>


Flare Magazine | The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue  |  May 2018


Read the magazine via this link >>> 

Flare – The ultimate guide to Fibromyalgia, M.E & Chronic Fatigue

Why not visit Flare magazine website and sign up for the magazine >>>

 Flare Magazine website 

#MHAM #MigraineAwareness #HeadacheAwareness 

June is National Migraine & Headache Awareness Month (MHAM)  

2018 Theme & Hashtags | Logos | Recognitions Days | Light Up the Landmarks | MHAM Proclamations | History

Click this link to find out all about the campaign and how to get involved  >>>

MHAM Proclamations: Advocate to bring government official’s attention to migraine, headache and cluster diseases.

Need your help NOW for June 2018 launch

June is National Migraine & Headache Awareness Month (#MHAM). This year, U.S. Pain Foundation & CHAMP (Coalition For Headache And Migraine Patients) want to bring public attention to this disabling and often stigmatized disease.

CHAMP Home page >>>  headachemigraine.org/

 Research & Clinical Trial matching

Headache and Migraine Clinical Trials  |   Research & Clinical Trials > Headache and Migraine Clinical Trials  | National Headache Foundation

Match to clinical trials in 60 seconds

Know your options
Access the latest treatments
Receive world class care

Click the link below to check it out and subscribe to their newsletter  >>>

‘We are happy to announce that we’ve launched an online clinical trial matching tool in partnership with Antidote, a digital health company dedicated to connecting patients with medical research. This new tool makes finding and taking part in headache research easier than it’s ever been.’ National Headache Foundation

About the National Headache Foundation  >>>

Voices required!  Nursing associate consultation |  The Nursing and Midwifery Council  |  9th April to 2 July

We want to find out what you think about our proposals for how we’ll regulate the new nursing associate role.

This consultation will run from 9 April 2018 to 2 July 2018. We welcome responses from anyone interested, including organisations and individuals.

Visit the link below >>> 

The Nursing and Midwifery Council  >>>

“The Nursing and Midwifery Council is the professional regulatory body for nurses and midwives in the UK. Our role is to protect patients and the public through efficient and effective regulation.”

Newsletters from News-medical | Life Sciences >>>

News Medical | Arthritis Newsletter | 3 April 2018


NEW!  News Medical |Allergies Newsletter | 15 May 2018 


News Medical |Dermatology Newsletter | 31 May 2018


NEW! Newsletters from News Medical |Genetics | 6 June 2018  

Headliner:  Researchers call for new genetic tests for congenital diseases

Article information:

Researchers have discovered that genetic mutations called epivariations are the cause of certain neurodevelopmental disorders and congenital diseases.


News Medical |Neurology / Neuroscience Newsletter | 29 May 2018

News Medical |Pharmacy / Pharmacology Newsletter | Headliner:  People who use medical marijuana have higher rates of prescription drug use, study finds |  27 April 2018


New!  News Medical |Psychiatry Newsletter |  7 June 2018  



Latest!  News Medical  |  Rare Diseases  |  23 May 2018 


Latest!  |  News Medical |Rheumatology Newsletter |  Headliner:  Simple changes to diet could help reduce osteoarthritis symptoms|  1 June 2018  


Meditation Change over!   

KUNDALINI RISING || 432Hz Music to Balance Male Female Energy || Healing Music for Meditation | June 2018

Meditative Mind  Published on 7 Jun 2018

If you enjoy this then please visit >>>

Via:  www.youtube.com


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Also like to share other posts by fellow bloggers and organisations too

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com and let me know, always happy to help 🙂

Many thanks for reading and helping to share the news that other folks like you write, or, find.


Many thanks SQUARE POSTER Communit


  • That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
  • Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
  • FibroFlutters is not a selling site but we will point you in the direction to subscribe to newsletters/magazines and some offer free, some don’t! 
  • The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
  • Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews.  It also does not mean that we are affiliated with anyone unless it is clearly stated.
  • Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
  • Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
  • Always be aware of Internet security and note that we cannot be held responsible for external websites.
  • Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018