A selection of online health related newspapers/magazines/newsletters/blogs/events
~~~
Hope you like our newletter’s new title and mini-revamp
Twice Daily! #carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
News from Focus on Disability
Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
For disabled people, the elderly and their carers in the UK
Why not visit and sign up >
Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Don’t forget to check this evenings edition for their next update!
~~~
~~~
Twice Daily! #HealthNews #ChronicPain #Autoimmune #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy #chronicillness #invisibleillness
Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.
Rhia Steele –
All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down. Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
The Latest Health News & Related Subjects from Rhia at your fingertips
Why not visit and sign up >
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
- paper.li/
Don’t forget to check this evenings edition for their next update!
~~~
~~~
Twice Daily! #carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
News from UK Care Guide
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
Follow the link below for Uk Care News >>>
Why not visit and sign up >
- Website: UK Care guide
Don’t forget this evenings edition for their next update!
~~~
~~~
Daily! #disability #disabilitynews #chronicillness
My Disability Matters News & Opinion Digest | See TODAY’s headlines | Visit the link to sign up foHow to deliver the mental health services that young people desperately needr their newsletter and to read latest news | 16 May 2018
Headlines for today >>>
-
A year on from new taxi discrimination laws and not a single prosecution
Further Reading
- DWP figures on ‘unacceptable’ WCA reports cast doubt on decisions made on tens of thousands of ESA claims
- Suicides at record level among UK students
- How to deliver the mental health services that young people desperately need
- Loneliness is a health issue, and needs targeted solutions
- An interest rate rise may put thousands at risk of mental health problems
Visit and sign up here for Worldwide Disability Matters DAILY News
~~~
~~~
Twice Daily! #Fibro #ME #CFS #ChronicPain #invisibleillness
Fibromyalgia ME Chronic Pain is out!
How it’s Costing You in Happiness, Financially and in Your Relationships!
Why not visit and sign up >
- Paper.li > Fibromyalgia & ME news
- paper.li/
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – Fibromyalgia & ME news
Don’t forget to check this evenings edition for their next update!
~~~
~~~
#brain #mentalhealth #chronicillness #invisibleillness
The brain and mental health voice is out! | selection by Valeria Duflot
Why not visit and sign up >
Valeria Duflot – Paper Li
- #Socent
- veneziaautentica.com co-founder
- Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
- paper.li/
Updates every couple of days!
~~~
~~~
#MentalHealthAwarenessWeek2018
Latest! #mentalhealth #depression #anxiety #stress #chronicillness #invisibleillness
Psych Central | Psych Central Daily Newsletter | 15 May 2018
Headlines for today >>>
- Cyber-bullying?
- Five Qualities Needed in Rebuilding Trust after Infidelity
- Too Many Extracurricular Activities for Kids May Do More Harm Than Good
- Older Workers Report More Stress When Employer Support Falls Short
Sign up for newsletters > Home Page:
~~~
~~~
#disability #disabilitynews
Disability News Service (DNS)
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
~~~
~~~
DAILY! #chronicpain #chronicillness #painmanagement
The Chronic pain Daily | Support from Coach Amber Rose | paper.li
Editor’s note
Information is readily available but deciding what is important for you can be overwhelming. I hope that you find good information in these articles. Thriving with Pain has webinars, group coaching and individual coaching to support your 5 steps to Thriving with Pain. I have lived with chronic pain for over a decade. I am well now and know that a flare can happen.
Check out >>>> www.thrivingwithpain.com
Visit the paper to find out what stories / articles Amber has selected for today >>>
~~~
~~~
Other Newsletters / Magazines / Blogs of interest including > > >
Change around in the Chillout Lounge!
Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 | NuMeditationMusic | 10 May 2018
~~~
~~~
FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
~~~
Awareness Campaigns
Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com
~~~
Im-patient UPDATE >>> By POPULAR DEMAND
We’re now going GLOBAL
Im-patient is expanding into North America, with the eyeforpharma Patient Summit USA in Philadelphia on October 23-24.
Thankyou to everyone who has already participated in the ‘Impatient’ survey, your ideas and thoughts have already been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October.
If you’re from North America…
…and have an idea, or suggestion, that you would like to be put forward for consideration towards the Conference agenda or Conference Design, then we would love to hear from you. Maybe you’d like to get involved!
You can let us know by filling out the survey via the following link 🙂
Please tell us your ideas for the FIRST EVER ‘Im-patient’-Philadelphia Conference
Excerpt:
We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.
THANKYOU IN ADVANCE FOR READING AND PARTICIPATING
~~~
#The Big Leap #MS
Take a leap on the wild side and help stop MS. | MS Society
‘On Sunday 2 September, join our team of daredevils and take the leap of a lifetime at our brand new and exclusive MS Society skydiving day, the Big Leap.’ MS Society
The Big Leap Take a leap on the wild side and help stop MS.
~~~
#MillionsMissing #MEAction
#MEAction | Daily Digest: Contact Congress to Ask for Support for #MILLIONSMISSING
Daily Digest: Contact Congress to Ask for Support for #MillionsMissing
~~~
#Fibro2018 #FightFibro #Fibromyalgia #Fibro #FibromyalgiaAwarenessDay
![FMAUK SUPPORT GROUP LOGO WorkingWith-200_100[1]](https://i0.wp.com/fibroflutters.com/wp-content/uploads/2015/09/fmauk-support-group-logo-workingwith-200_1001.jpg?resize=274%2C137&ssl=1){kind=logo}
Find out how Trussy’s campaign for Fibromyalgia Action UK (FMAUK) @fmauk is going
~~~
#chronicpain #backpain #lifestylechanges #lifestyle #selfcare
Three lifestyle changes that could alleviate your back pain | Barmac5 | backpainblog UK | 16 May 2018
Excerpt:
‘In this article, we’re going to talk about positive changes you could make to your lifestyle in order to reduce your back pain. We’re also going to talk about negative habits you could stop. Here are three lifestyle changes that could help to alleviate your back pain.’
Read more via the following link >>>
Check our Bar’s Blog for more posts and useful reads >>>
~~~
#EDSawarenessmonth #EDS #HSDs #JHS #hypermobility #May2018EDS
MOVING INTO THE LIGHT | The Invincible Summer | 15 May 2018
Opening paragraph:
May is Ehlers-Danlos Syndrome awareness month. I wrote this in hopes of giving a better understanding of how *I* have experienced EDS throughout my life; keeping in mind that EDS is a spectrum meaning some people barely have any symptoms and can live normally and some have more severe symptoms. – Author, Kathleen Elizabeth
Read more via the following link >>>
Visit Kathleen at her WordPress blog for more posts and real-life reads >>>
For EDS support – US – The Ehler’s Danlos Society >>>
For EDS support – UK – Ehler’s Danlos Support UK >>>
~~~
#chronicblogger #painmanagement #science #technology #paindevice
I Told You I was Sick | My Review of the Benepod Pain Management Device | 15 May 2018
Excerpt:
‘Since the rise of the opioid crackdown, more and more people just like you are seeking alternative pain relief. Dietary changes, supplements, and electronic pain relief devices are among the most popular choices for drug-free pain relief.
Benepod offers electronic pain management in a small, convenient, and affordable unit.’
Visit Jaime’s site for more reviews to read and sign-up for newsletters >>>
- itoldyouiwassick.info/
- Jaime’s Disclaimer: I have been given a Benepod for review as a gift, but this has in no way influenced my comments on this piece.
~~~
How to gain control over #osteoarthritis #OA and keep it
Get and Keep Control of Your RA | Rheumatoid Arthritis Blog | Arthritis Foundation | 14 May 2018
Get and Keep Control of Your RA
When your disease is under control, you may be tempted to stop taking your medication. But doing so is NOT a good idea.
Advice from Arthritis Foundation
Excerpt:
‘Most doctors begin hard-hitting treatment as soon as rheumatoid arthritis (RA) is diagnosed. Research shows that even in the first months after diagnosis, joint damage can occur if the disease is not treated aggressively, says Paul Howard, MD, a rheumatologist at Arthritis Health in Scottsdale, Ariz.’
Link to the post >>>
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
~~~
FREE eBook – #selfpublishing #publishing & #marketing
Xana Publishing and Marketing |Kindle Direct Publishing | Author Branding | eBook Marketing
Are you sitting at home with chronic illness and looking for a new challenge?
‘The Self-Publishing Tools of the Trade Every Author Must Know’
sets out to help you navigate the treacherous route to making
your self-published book a success.
- Maybe, you’re a #healthblogger, #chronicblogger or #chronicinfo writer and fancy publishing a book after you’re post blogging and article writing inspires you.
- Maybe you’re a #healthadvocate wishing to raise awareness and raise pennies for a cause and writing a book could help you to do that.
- Maybe, you’re stuck at home with limited capabilities bored out of your mind and cannot think of how to challenge your brain and keep yourself busy, or distracted.
- You might have a story to tell, or, a desire to write children’s educational books in relation to your chosen #chronicillness.
- Take the opportunity to get this free e-book which could help be successful at self-publishing
Link to the LIMITED TIME OFFER >>>
Sourced through >>>
~~~
#MentalHealthAwarenessWeek2018
#developmental #MentalHealth #Personality #TheSelf
Study suggests your adulthood self-esteem has its roots in the way you were raised as a child | Christian Jarrett | 14 May 2018
About the Author >>>
‘Dr Christian Jarrett is the author of PERSONOLOGY, Using the Science of Personality Change to Your Advantage, forthcoming from Simon and Schuster (North America) and Little Brown (UK and Commonwealth).
He is editor of the Research Digest blog published by the British Psychological Society, and presents their PsychCrunch podcast.’ from his bio page
Sourced via Research Digest on WordPress >>>
~~~
#MentalHealthAwarenessWeek2018
#Lonliness #ManicDepression #copingstrategies #MentalHealth #MentalHealthAwarenessWeek2018
Psych Central | Blogs | Tales of Manic Depression | 8 Rules to Help Alleviate Being Lonely | Erica Loberg | 1 May 2018
2 minute read
Other reads from author >>>
Psych Central > Blogs > Tales of Manic Depression > 8 Rules to Help Alleviate Being Lonely
Visit Psych Central for more news, blog posts and general mental health welfare, while you’re there there are a selection of newsletters you can sign-up for >>>
~~~
#Pharma #Japan #Leadership #DrugPricingReform #LONGREAD
Leadership In Japan | Ross Davies | eyeforpharma | 11 May 2018
‘In the face of new drug pricing reforms, the need to nurture strong leadership is imperative, but not without its challenges.’
Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued.
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.
Get the latest industry insights in your inbox:
Follow eyeforpharma on Twitter:
Like eyeforpharma on Facebook:
Subscribe to eyeforpharma youtube channel:
~~~
#endometriosis #endometriosisawareness #AustralianNews #healthcare
‘People have never heard of the word’: Plan to tackle endometriosis | Esther Han | The Sydney Morning Herald | 13 May 2018
Opening paragraph:
‘The Federal Government has vowed to lift the lid on the “silent epidemic” of endometriosis, detailing its plan to educate doctors, teachers and employers about the painful condition affecting 700,000 Australian women.’
Read more via the following link >>>
Visit The Sydney Morning Herald website for more Aussy News >>>
~~~
#PsoriaticArthritis #Arthritis #PatientVoice #Patients
Meet 3 People Living with Psoriatic Arthritis | Arthritis Foundation | 11 May 2018
Meet Richard, Nandi and Andre
If you have PsA, you might be inspired by the stories of three people living with the disease.
Follow this link to read more >>>
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
~~~
#chronicpain #opioidcrisis #patientvoice
Want To Talk With the Media About Chronic Pain? | Ed Coghlan | National Pain Report | 12 May 2018
Excerpt:
‘They are interested in speaking with patients and providers about their experience. I filled out the form recently–identified myself as the editor of the National Pain Report and received a response email asking that we tell you about the opportunity to comment.’
Visit the National Pain Report website for more posts >>>
~~~
#digitalhealthnews #digitalhealth #AI #analytics #digitalpatient
Digital Health Newsletter | 11 May 2018
Feature >>>
- Tara Donnelly: “My aim is to create an ecosystem for the digital companies of the future”
News headlines >>>
- Almost 14,000 women contact breast cancer helpline after IT error revealed
- Government tightens grip on NHS Digital’s sharing of non-clinical patient data
- videoDoc doc discusses life as an online GP
- NHS England seeks GP and patient views of online consultations
- Hull taps Inhealthcare for community telehealth service
Link to the newsletter with many more stories / posts and news to read >>>
Link to their homepage on WordPress where you can read more digital health news and sign up for newsletters >>>
Registered No. 9257440
Vat No. 198 3531 71
~~~
#AI #Pharma #drugdiscovery
Pfizer eyes AI-powered drug discovery and development software | Dominic Tyer | Pharmaphorum |14 May 2018
Pfizer eyes AI-powered drug discovery and development software
About the Author >>>
#pharmanews #pharma
Takeda to cut IT, marketing and sales jobs after Shire merger | Richard Staines| Pharmaphorum | 10 May 2018
- Takeda to cut IT, marketing and sales jobs after Shire merger
- Sourced from pharmaphorum Top Stories newsletter that I subscribe to.
- pharmaphorum.com/top-stories/
About the Author >>>
#FDA #Technology #Tech #clinicalsurveillance
FDA clears PeraHealth’s lifesaving clinical surveillance tech | Joy Persaud | Joy Persaud | Pharmaphorum |10 May 2018
- FDA clears PeraHealth’s lifesaving clinical surveillance tech
- Sourced from pharmaphorum Top Stories newsletter that I subscribe to.
- pharmaphorum.com/top-stories/
About the Author >>>
Visit pharmaphorum website to sign up for their newsletter and to catch up with other pharma news >>>
~~~
#USsurvey #Migraines #MigraineAwareness #MigrainesinAmerica
Migraine.com weekly | Last Call – We want to know what you think!| Migraine.com | 10 May 2018
We’re conducting a comprehensive
survey on life with migraine.
Make your voice heard.
Survey descriptor
Symptoms, frequency, duration and treatments vary greatly from person to person with migraine. How many treatments have you tried? Are you satisfied with your current regimen? Are you happy and receiving excellent care by your doctor or healthcare provider? Help us reveal what life is really like living with migraine in America and increase awareness by taking our survey.
Check out their website for information and more posts / articles, you can sign up for the magazine or newsletters >>>
~~~
#Arthritis #LivingwithArthritis #Arthritisdiet #Musculoskeletal #Rheumatology #nutrition
Arthritis Foundation | Living with Arthritis|12 Best Foods For Arthritis
- Best Foods for Osteoarthritis
- Twelve food choices that can help treat your OA symptoms.
Arthritis Foundation advise >>>
‘To ease the symptoms of your osteoarthritis, watch what you eat.
There are a dozen best food choices that can help fight inflammation and fortify your bones.’ (from the e-news link I subscribe to)
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
~~~
Latest! #stressresources #stress #mindfulness #meditation
May 2018 Newsletter from Stress Resources | Pamela Ressler | May 2018
Quoted from the home page:
‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is to empower your creativity, productivity and leadership’
For more articles and information visit the Stress Resources website where you can also sign up for their newsletter >>>
~~~
LATEST ISSUE! #sleep #tiredness #chronicfatigue #stress #anxiety #copingstrategies #mentalhealth
Patient Newsletter | Subject: Reasons you feel tired all the time | 9 May 2018
Headlines:
- Reasons you feel tired all the time – there’s a link to find a solution
- Feeling tired all the time might simply indicate that you’re not getting enough shut-eye. But if you’re feeling truly exhausted, and can’t pin it on any obvious cause, the situation might require a bit more attention.
Get your energy back
- Signs your job is making you sick
- How to stop snoring wrecking your sleep and your relationship
- Surprising facts about thyroid problems
- Visit our Sleep Problems forum
- Do you need to drink eight glasses of water a day?
- The link between anxiety and insomnia
Read more articles / posts from the newsletter by following this link >>>
Visit the Home Page and register for patient access as well as newsletters >>>
Patient work in partnership with the NHS
~~~
Latest! RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter| 30 April 2018
“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”
Ronny’s Community Newsletter >>>
RonnyAllan.NET – Community Newsletter April 2018
Blog Home Page >>>
~~~
#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving
Fundraising to raise £20,000 for Fibro drop-in centre | Rock Off Fibro ~ Fibromyalgia awareness
Quoted from Just Giving page:
“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness
Please can you help such a worthy cause, patients are trying to help other patients?!
Visit Rock Off Fibro’s PUBLIC group on FaceBook >>>
Visit Rock Off Fibro on Twitter >>>
~~~
#IntegratedCare #IntegratedMedicine #wellbeing #healthcare
* Is integrative medicine right for you? | Len Canter ~ Healthday Reporter | 8 May 2018
Excerpt:
‘Integrative medicine focuses on your well-being and considers all aspects of your health: physical, emotional, mental, social, spiritual and environmental. It draws on whatever medical approaches—traditional or alternative—will serve you best.’
Read more via the following link >>>
Sourced from >>>
PLEASE NOTE
Copyright © 2018 HealthDay. All rights reserved.
~~~
#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving
Fundraising to raise £20,000 for Fibro drop-in centre | Rock Off Fibro ~ Fibromyalgia awareness
Quoted from Just Giving page:
“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness
Please can you help such a worthy cause, patients are trying to help other patients?!
Visit Rock Off Fibro’s PUBLIC group on FaceBook >>>
Visit Rock Off Fibro on Twitter >>>
~~~
#HeartHealth #bhf #nutrition #100calories
British Heart Matters – magazine, nutrition | What does 100 calories look like? | British Heart Foundation | 5 May 2018
A fabulous post showing you the different food types as 100 calories!
Why not visit the website and register for ‘British Heart Matters’ magazine and newsletters >>>
The British Heart Foundation >>>
British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426
~~~
All the above links marked with * were sourced from
Newsletter Phys.org via Science X Network
~~~
#Healthcare #health #care #NICE
Latest issue! NICE Newsletter | 25 April 2018
National Institute for Health and Care Excellence – NICE – provides national guidance and advice to improve health and social care.
‘Improving health and social care through evidence-based guidance’
Sign up for alerts and newsletters >>>
~~~
Newsletters via News Medical
Latest! News Medical |Diabetes Newsletter | 4 May 2018
News Medical | Endocrinology Newsletter | 10 April 2018
Latest! News Medical | Respiratory Diseases | 23 April 2018
News Medical |Sleep Disorder Newsletter | 9 April 2018
Latest! News Medical | Pediatrics Newsletter | 25 April 2018
-
News Medical Home Page >
Change around in the Chillout Lounge!
Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 | NuMeditationMusic | 10 May 2018
Why not visit NuMeditationMusic to see what other tubes they have? >>>
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
~~~
FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
🙂
~~~
