A post where I’ll paste my favourite MSK ~ Rheum ~ Arthritis ~ Pain posts from FibroFlutters #ChronicIllness posts.
It will continously change over time as new posts are added and older posts archived
Pdf – EULAR REPORT!
Final Pdf of the EULAR Brussels Annual Conference Report 2018
REPORT | 21st EULAR Annual European Conference of PARE | People with Arthritis/Rheumatism in Europe, Brussels, Belgium, 16th – 18th February 2018
Who are EULAR & what is their mission? >>>
#ChronicPain #CostoclavicularSyndrome #WomenIssues
A post that is definitely for our ladies!
Chronic Body Pain Newsletter | Subject: Everything you need to know about bra strap syndrome | 5 May 2018
A great post based on a topic that women from all realms of #chronicillness have problems with. I know I have varying issues, but bra strap syndrome is the least concerning one of them. Wearing bras is becoming difficult with alternatives often being too expensive, but the cost on the body from wearing ill-fitting bras could end up being more costly.
I’ve been getting #parathesia in left arm for around 10 years, nowadays I have it permanently at some level every day. On the days it is bad I can’t even lift it let alone try to pick anything up, or get dressed, washed… all of these little ‘daily’ things that everyone ‘takes for granted’ are affected.
Quoted from Physiopedia – Costoclavicular Syndrome:
The costoclavicular syndrome was first described in soldiers with loaded knapsacks, who developed pain, numbness, and fatigueability of the arms as they stood at attention.[4] The mechanisms of compression involved downward movement of the clavicle against the first rib with a resultant tendency to shearing of the neurovascular bundle.[5]
Follow this link to read more >>>
Read the post via this link >>>
Why not visit the website for more informative and helpful posts related to chronicpain problems, you can also sign up to recieve their regular newsletters >>>
A few words from me – Carole aka fibrofly73
Personally, I wish I could sit down with someone and design a bra that is specially designed to suit folks with health problems such as #costchondritis #hidradenitis, or any other type of probem related to breasts and the chest area. For instance even something as small as having slight scoliosis at the top end of the spine means our body shape isn’t the same as what the regular bras are designed for. Just like #EDS and some types of #HSD like myself where I have small shoulders so keeping straps up is always an issue, and having the weight of larger breasts does not keep straps on shoulders… it’s a myth!
I can’t wear them 😮
I wore one last Thursday for about 4 hours and have now got huge welts under left breast that are extremely painful, they also making moving about painful. This is due to the friction of fabric more than anything due to having such #hypersensitive skin in such a delicate area. #Hypermobility in my shoulders and elbows make the other types of support bras a ‘no-no’ because my shoulders and elbows pop out / slide around when I’m trying to put them on, so causing myself damage in the process. #Prevention is better than a cure sometimes… so I go without. No choice!
Living on benefits I cannot afford to buy tailor-made clothing of any sort!
Are you a LUPUS survivor?
Lupus Survivors Gets a Face-lift | Lupus Survivors newsletter | 1 May 2018
Introductory lines to the newsletter:
‘This May is a month of celebration for LupusSurvivors.com. We launched a new website with a new sleek design to showcase the many inspiring stories that so many of you have contributed.’
You can check out Lupus Survivors new sleek website via the following link >>>
You can also sign up for their Newsletters too
Latest edition!
ARMA Newletter | Arthritis & Musculoskeletal Alliance | May 2018
Who are ARMA? – About ARMA
Lots of things to read in this issue!
#PatientVoice #CRPS (Chronic Regional Pain Syndrome) #chronicillness #chronicpaindisorder
My Story: I Can Finally Explain How CRPS Feels | Beth Stillitano | National Pain report | 6 May 2018
It can be difficult explaining what our illnesses feel like so I always like to read what our fellow #chronicwarriors are saying about theirs.
About Beth >>>
Beth Stillitano has been fighting CRPS for 20+ years. Her family established the annual Fight the Flame 5k to raise awareness and education about CRPS in Charlotte, NC.
Excerpt:
‘The horrible painful feeling you have for the short while on your skin after really burning yourself is what I feel every moment of every day inside my knee. My knee is always on fire. When I am in a pain flare-up, it is the equivalent of maybe breaking a bone at the same time; it is just added pain to what is already constant.’
Read more via the link below >>>
Visit the website for posts and sign up for their newsletters >>>
Understanding RA Flares
Learn what a rheumatologist says about flares – and how long they can last | Arthritis Foundation | 1 May 2018
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
Psoriatic Arthritis Quiz
PsA Quiz: Fact or Fiction! | Arthritis Foundation | 27 April 2018
Learn the Truth Behind 5 Popular Psoriatic Arthritis Myths:
You can sign up for newsletters via the Arthritis Foundation home page and also find lots of differing types of information >>>
#Musculoskeletal #Skin #Inflammation # PsA #Psoriasis #Arthritis #PsoriaticArthritis
What Type of PsA (PsoriaticArthritis) Do You Have? | What is PsA | Arthritis Foundation
Excerpt:
‘Most people with psoriatic arthritis have skin symptoms before joint symptoms. However, sometimes the joint pain and stiffness strikes first. In some cases, people get psoriatic arthritis without any skin changes.’
Read more via the link below >>>
You can sign up for newsletters via the Arthritis Foundation home page and also find lots of differing types of information >>>
Good advice!
Don’t Agonize, Mobilize | Cindy Perlin LCSW | National Pain Report | 29 April 2018
Excerpt:
‘Build up exercise gradually. When I injured my back 40 years ago, the conventional medical wisdom was to rest. I stayed in bed six weeks and felt even worse. Then a more astute doctor told that was the worst thing I could do and to get back to living my life the best I could. I was so weak from staying in bed so long that I couldn’t manage a walk around the block. An exercise program for people with bad backs at the YMCA helped me get moving again. I subsequently took up swimming, which has been a lifesaver for me.’ Cindy Perlin from the text
Read more via this link >>>
Sign up for newsletters and read more posts on National Pain Report’s website >>>
Useful Post!
6 steps for coping with stress and improving your Fibromyalgia symptoms | Julie Ryan | Counting My Spoons | 30 April 2018
Excerpt:
‘Learning to cope with Fibromyalgia is stressful. Your body becomes unpredictable and you rarely know what to expect from one day to the next. This creates stress and can often make us feel even worse. Coping with stress can be a key to improving your Fibromyalgia symptoms. Often the only way to learn to cope is by successfully or unsuccessfully handling specific situations. However, there are six key steps that you can take to help you as you learn to cope with daily journal, other chronic illnesses, or any stressful situation.’
Read more via this link >>>
Why not visit Counting My Spoons website and sign up for the newsletter >>>
#PatientVoice
The Chronic Pain Patient – Chronically Misunderstood | By Liza Zoellick | National Pain Report | 20 April 2018
About the author:
Liza is a chronic pain warrior from Houston who has been chronicling her journey through chronic pain and illness on her blog: http://lovekarmafood.com. She is a contributor to the National Pain Report.
Link to the post >>>
Sign up for newsletters and read more posts on National Pain Report’s website >>>
An App to help with Your Exercise Solution
Arthritis Foundation | Living With Arthritis > Tools Resources | Your Exercise Solution >>> Fitness That Fits You
Disclaimer from Arthritis Foundation
‘PLEASE NOTE: This tool does not provide medical advice. It is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis or treatment. Consult your physician before participating in activities described by this tool.’
You can sign up for newsletters via the Arthritis Foundation home page and also find lots of differing types of information >>>
Natural Treatments!
Touch Therapy for Arthritis |Living with arthritis |Arthritis Foundation
Natural Treatments | Living with arthritis | Arthritis Foundation
Also headlining on their Arthritis blog >>>
- Acupuncture and Acupressure for Arthritis
- How Chiropractors Can Help Arthritis Pain
Learn about the different ways chiropractic care can ease joint pain and stiffness. - Blog Home >>> blog.arthritis.org/
Useful ‘PAIN’ Toolkit!
Visit their website for information and sign up for newsletters >>>
May 12th this Saturday help to #fightfibro #fibro2018
#fightfibro #fibro2018 #fibromyalgia #fibroawareness
Fight Fibromyalgia – Newsletter | 1 April 2018
Headliners:
- Lyrica Can Be Highly Effective For Fibromyalgia
- The Potential Benefits of CBD for Fibromyalgia Symptoms
- Is Fibromyalgia Considered a Disability?
- The worst symptoms of fibromyalgia!
- Weight reduction for fibromyalgia patients using Phentermine
- Will A Fibromyalgia Mattress Really Help
- How Can Lidocaine Patches Help You With Your Fibromyalgia Problems?
- Mental Illness and Fibromyalgia: Is there a Connection?
- All things to know about Fentanyl patch for fibromyalgia
- 10 Things a person should avoid doing if you have fibromyalgia
#Young #KGAT #arthritis #juvenilearthritis
Arthritis Foundation – KGAT Newsletter | Headliner: Junior Ambassador Applications Now Accepted! | 25 April 2018
Opening paragraph:
‘This new and exciting program gives teens 13-17 the opportunity to represent the estimated 300,000 kids in the U.S. who have arthritis and raise awareness by sharing their personal arthritis story. This advocacy initiative will enable those who do not have a connection with arthritis to put a face to the disease. Junior Ambassadors will receive advocacy training, help raise awareness with policymakers about their disease and receive our Junior Ambassador Newsletter.’
Read more of the headliner via this link >>>
Read more articles / posts from the newsletter by following this link >>>
Find out about KGAT (Kids get arthritis too) >>>
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
#ChronicPain #PatientVoices NEEDED!
Hey Chronic Pain Patients – Need Your Feedback | Ed Coghlan | National Pain Report | 25 April 2018
About the Author >>>
Visit the website for posts and sign up for their newsletters >>>
Do you listen to the Airing Pain Podcasts?
Pain Concern | Airing Pain Feedback Survey
Why not visit the website for more information and pain related things
Interesting reading!
SIP Newsletter March 2018
Please register for the SIP Newsletter via this link >>>
New Post! Are sleep issues at the root of many Fibromyalgia symptoms? | Counting My Spoons | Julie Ryan | 16 April 2018
Excerpt:
‘Past research has shown a connection between sleep deprivation and cognitive issues, emotional processing (the ability to determine if social cues are friendly or threatening) and control, impaired executive function (ability to complete basic tasks), attention, and working memory. Again, all of these things are things that are facts of life for those of us living with Fibromyalgia.’
You can subscribe to Julie’s newsletter and also connect with Julie on varying social mdia platforms too. Why not pay her a visit, have a chat, or even ask her a question?
Remember if you have persistent problems it is best to visit your doctor to get checked out and to see if they can help you.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
🙂
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Continuously being updated!
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
