#ChronicIllness Morning Post:
My favourite daily’s
- Focus on Disability;
- Autoimmune / Arthritic Systemic Life; Fibromyalgia ME Chronic Pain;
- UK Care Guide;
- My Disability Matters News & Opinion Digest
- The brain and mental health voice;
- Psych Central Daily Newsletter – New today from Psych Central
- Disability News Service …
Twice Daily! news from Focus on Disability
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
For disabled people, the elderly and their carers in the UK
Why not visit and sign up >
Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Don’t forget to check this evenings post for their next update!
Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
#HealthNews #ChronicPain #Autoimmune #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy #chronicillness #invisibleillness
This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.
Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.
The Latest Health News & Related Subjects from Rhia at your fingertips
Why not visit and sign up >
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
Don’t forget to check this evenings post for their next update!
Twice Daily! news from UK Care Guide
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
Why not visit and sign up >
- Website: UK Care guide
Don’t forget this evenings post for their next update!
Daily! My Disability Matters News & Opinion Digest | See TODAY’s headlines | Visit the link to sign up for their newsletter and to read latest news | 29 April 2018
#disability #disabilitynews chronicillness
Headlines for today
- From hollywood to the boardroom: Actress with disability advocates for inclusion
- Some women feel grief after an abortion, but there’s no evidence of serious mental health issues
- Creating a culture of inclusion at Barclays – inspiring hearts, educating heads and enabling hands
Further Reading
- The case for a single standard of accessibility and how your organisation can build one
- Anecdotes of a disabled gay: Inclusion, advocacy and employment
- NDIS Budget Blow For People With Disabilities
- NDIS participants devalued again
- Female doctors show more empathy, but at a cost to their mental well-being
Visit and sign up here for Worldwide Disability Matters DAILY News
Twice Daily! Fibromyalgia ME Chronic Pain |
#Fibro #ME #CFS #ChronicPain #invisibleillness
Fibromyalgia ME Chronic Pain is out! How it’s Costing You in Happiness, Financially and in Your Relationships!
Why not visit and sign up >
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher
Don’t forget to check this evenings post for their next update!
The brain and mental health voice is out! | selection by Valeria Duflot |
#brain #mentalhealth #chronicillness #invisibleillness
Why not visit and sign up >
Valeria Duflot on Paper Li
- #Socent
- veneziaautentica.com cofounder
- Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
Updates every couple of days!
Latest! from Psych Central | Psych Central Daily Newsletter | 28 April 2018
#mentalhealth #depression #anxiety #stress #chronicillness #invisibleillness
Headlines for today
- Love In Action
- 7 Myths about Parenting that Can Make You Miserable
- Hydration May Boost Cognitive Benefits of Exercise in Older Adutls
- Many New Dementia Patients Get Unnecessary Drugs
Sign up for newsletters > Home Page: psychcentral.com/
Disability News Service (DNS)
#disability #disabilitynews
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
FREE EVENT – not many tickets left! Get yours now via the link below 🙂
Burning Nights CRPS – 4th Annual national Burning Nights CRPS conference
4 November 2018 | 9:30am – 4:30pm
North East UK | Marriott Gosforth Park Hotel | Newcastle Upon Tyne
Burning Nights CRPS – 4th Annual national Burning Nights CRPS conference
Other Newsletters / Magazines / Blogs of interest including > > >
Change around in the Chillout Lounge!
“Inner Peace & Balance” Deep Meditation Music l Healing Music Relax Mind Body l Soothing Relax || Meditation and Healing | 29 April 2018
* * *
A Huge thankyou to everyone who took part in the ‘Impatient’ survey
For
The ‘im-patient’ Summit
Excerpt:
We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.
Watch this space for further developments
Awareness Campaigns
With May 12th drawing closer campaigns are beginning to hot up as everyone is busy preparing their events and awareness drives. So between now and then I shall endeavour to share as many as I can 🙂
Got a May 12th campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com
#HealtheVoicesVE #HealtheVoices18
Keep up to date with: #HealtheVoices18 #HealtheVoices18 | HealtheVoices Conference in Chicago USA | FibroFlutters | 28 April 2018
Quote from the CEO / Founding Five Member of FibroFlutters.
“People may wonder why I have an interest in this US event and maybe they’re right to wonder. However, the answer is a pretty simple one!
Approximately, 40-45% of FibroFlutters following is from the US so along the years I have made contact, with many, many wonderful advocates, as well as made some good #chronicillness friends too from across the United States.
It is only fair to let our US readers know that I care, I am there for them even though I’m here in Europe, and that they have the support of FibroFlutters also. I thank Janssen for the ‘Virtual Experience’ which gives me that chance to be there… and to hear the wonderful speakers… and feel the empowering emotions… and also hear valuable hints and tips!… as well as being inspired.”
Carole Sian Scrafton, (CEO), & Founding Five member FibroFlutters.
Read my info post for HealtheVoices18 via this link >>>
#ChronicPain #PatientVoices NEEDED!
Hey Chronic Pain Patients – Need Your Feedback | Ed Coghlan | National Pain Report | 25 April 2018
About the Author >>>
Visit the website for posts and sign up for their newsletters >>>
#chronicillness #chronicpain
Chronic Pain Patients – Suffering But Still Battling | Liza Zoellick. | National Pain report | 27 April 2018
Excerpt:
‘I can’t even calculate the number of people who have messaged me with remarks relating to hope. I gave them hope. That they read something I wrote and where they had been hanging by a thread, ready to give up on things until they read my post and felt like they were not alone. When I read those messages they really get to me. I want to reach out and give a collective hug to everyone and reassure you that you are not alone‘
Read more via the link below >>>
Visit the website for posts and sign up for their newsletters >>>
Latest Issue!
Happiful Magazine | May edition – Do you want to hear a story?
Featuring >>>
- Raw Fruit and Vegetables Can Improve Mental Health
- Did You Know?
Cuban Factories Employ Storytellers to Read to Workers - The Mindful Living Show Returns
- Print Subscriber Offer
Link to the newsletter >>>
Visit the happifulmag shop >>>
Latest!
April 2018 Newsletter from Stress Resources | Pamela Ressler | April 2018
‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is to empower your creativity, productivity and leadership’ from the home page.
For more articles and information visit the Stress Resources website where you can also sign up for their newsletter >>>
Educational for non-pharma folks!
The pharma supply chain: What you need to know | Jacob Bell | Biopharma DeepDive | 24 April 2018
About the Author >>>
Visit the BioPharma website and sign up for newsletteres >>>
Unbelievable Tech Advances! Please tell us what you think of this, write your thoughts in the comments box!!
Researchers 3-D print electronics and cells directly on skin | University of Minnesota | 25 April 2018
Excerpt:
‘Researchers also successfully printed biological cells on the skin wound of a mouse. The technique could lead to new medical treatments for wound healing and direct printing of grafts for skin disorders.
The research study was published today on the inside back cover of the academic journal Advanced Materials.’
Read more via this link >>>
Sourced via Psych.org newletter, visit the site and sign up >>>
Uhmmm!
Common class of drugs linked to dementia even when taken 20 years before diagnosis | Regenstrief Institute | 26 April 2018
Excerpt:
‘The study, which was led by the University of East Anglia and funded by the Alzheimer’s Society, both in the UK, utilized data from the Clinical Practice Research Datalink which includes anonymized diagnosis, referral and prescription records for more than 11 million patients from 674 primary care practices across the UK. The data is broadly representative of the UK population in terms of age, sex and ethnicity.’
Read more via this link >>>
- Common class of drugs linked to dementia even when taken 20 years before diagnosis
- Regenstrief Institute
Sourced via MedicalXpress why not visit the site and sign up for their newsletter >>>
Related reading by CNN – Certain common medications tied to 30% higher dementia risk, study finds >>>
YIPPEE! short but sweet post!!
A bit of dark chocolate might sweeten your vision | E.j. Mundell, Healthday Reporter | 26 April 2018
- A bit of dark chocolate might sweeten your vision
- More information: Jeff C. Rabin et al. Effects of Milk vs Dark Chocolate Consumption on Visual Acuity and Contrast Sensitivity Within 2 Hours, JAMA Ophthalmology (2018). DOI: 10.1001/jamaophthalmol.2018.0978
Copyright © 2018 HealthDay. All rights reserved.
Only dark for me please, always 🙂
Just like on these strawberries Sonia and I recieved as an apology from the hotel in Barcelona, when away for eyeforpharma 16th Annual conference, for the accommodation mix-up.
Now you all know, LOL not a fan of milk chocolate! – Carole Sian aka fibrofly73
NEEDED! #research into new #medications for #chronicillness
Want new medicines? You need fundamental research | Harvard University | 25 April 2018
Opening questions and lines of the article:
‘Would we be wise to prioritize “shovel-ready” science over curiosity-driven, fundamental research programs?
Would that set the stage for the discovery of more new medicines over the long term?’
Read more via this link >>>
Sourced via MedicalXpress why not visit the site and sign up for their newsletter >>>
#Patient #ChronicBlogger #spoonie
A Spoonful of Strength | Sam – My Medical Musings | 25 April 2018
Excerpt:
‘Chronic Illness Turbulence
Today I hit “chronic illness” turbulence. The less pleasant part of my health journey.It’s not just one thing, it’s a culmination of health events which have created cyclonic circumstances.’
Read more via this link >>>
Why not visit Sam’s blog and sign up for her newsletters >>>
Guest Blogger!
Are tweets a goldmine for psychologists or just a lot of noise? Researchers clash over the meaning of social media data | By guest blogger Jon Brock | BPS Research Digest | 23 April 2018
Post written by Dr Jon Brock (@drbrocktagon) for BPS Research Digest. Jon is a Sydney-based science writer specialising in psychology and neuroscience.
About- BPS – British Psychological Society Research Digest >>>
The Psychologist is the monthly magazine of the British Psychological Society. Visit their website for the May issue and their latest online articles.
Corrected date
Latest issue! NICE Newsletter | 25 April 2018
National Institute for Health and Care Excellence – NICE – provides national guidance and advice to improve health and social care.
‘Improving health and social care through evidence-based guidance’
Sign up for alerts and newsletters >>>
LATEST ISSUE!
Patient Newsletter | Headliner: How to beat hay fever this year – Abi Millar | 25 April 2018
About the author >>>
Opening paragraph:
‘For many people across the UK, the arrival of spring is a mixed blessing. No sooner have they shaken off the winter gloom, than they’re hit with the onset of hay fever season. Characterised by a streaming nose and itchy eyes, the condition can range in severity from annoying to debilitating.’
Read more of the Headliner via this link >>>
© Patient Platform Limited. Registered in England and Wales.
Read more articles / posts from the newsletter by following this link >>>
Visit the Home Page and register for patient access as well as newsletters >>>
Patient work in partnership with the NHS
#Young #KGAT #arthritis #juvenilearthritis
Arthritis Foundation – KGAT Newsletter | Headliner: Junior Ambassador Applications Now Accepted! | 25 April 2018
Opening paragraph:
‘This new and exciting program gives teens 13-17 the opportunity to represent the estimated 300,000 kids in the U.S. who have arthritis and raise awareness by sharing their personal arthritis story. This advocacy initiative will enable those who do not have a connection with arthritis to put a face to the disease. Junior Ambassadors will receive advocacy training, help raise awareness with policymakers about their disease and receive our Junior Ambassador Newsletter.’
Read more of the headliner via this link >>>
Read more articles / posts from the newsletter by following this link >>>
Find out about KGAT (Kids get arthritis too) >>>
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
Latest Issue!
‘The Bottom Line’ Newsletter – Bowel & Cancer Research | 25 April 2018
Motto of Bowel & Cancer Research:
We believe that no one should die of bowel cancer or have to live with chronic bowel disease.
Visit the Bowel & Cancer Research website >>>
GUEST BLOGGER! #GDPR & HCPs in the U.S.
GDPR and Why U.S. Healthcare Providers Should Care| EMR and HIPAA | Steven Marco | 19 April 2018
- The following is a guest blog post by Steven Marco, CISA, ITIL, HP SA and President of HIPAA One®.
Opening question:
The European Union (EU) has drafted guidance to give citizens more control over their personal data, so what does this mean for U.S. based healthcare providers?
Read more via the following link >>>
Visit the website for more information and sign up for the newsletters >>>
From the website: Please note…
Copyright © 2018 HealthcareScene.com, All rights reserved.
Healthcare Scene provides news, updates, white papers and webinars covering the latest in healthcare IT. Visit us online and see our network of Health IT websites at: www.healthcarescene.com
Healthy home made recipes!
Homemade Recipes for a Clean Diet | Healthy Recipes > Lifestyle Diets Clean-Eating | Eating Well |
There are some wonderful ideas in amongst these recipes that I’m certainly going to suggest to my hubby to try. Fed-up of the same nasty stuff that makes me ill and the unhealthy options that I am frequently offered!
Check out the website for even more recipes and food ideas, and also sign up their newsletters >>>
#NEUROENDOCRINE – a drug on trial for pancreatic NETs
Sapanisertib – a drug on trial for pancreatic NETs | RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET | 11 April 2018
Blog Home Page
3 weeks to go!
Awareness campaign by Fibromyalgia Action Uk (FMAUK) for May 12th International Awareness Day 2018
Please sign our @ThunderclapIt to help us make some noise on international awareness day!
‘Fighting for the freedom from Fibromyalgia’ – FMAUK.
#Fibro2018 #FightFibro #Fibromyalgia #Fibro #FibromyalgiaAwarenessDay
TrussyTrek 2018 – Magnetic North!
A 900 mile solo walk from Dover to Cape Wrath
Keep up to date with Paul’s Trek via the following links >>>
Website:
Facebook:
Twitter:
Instagram:
An adventure raising awareness of #Fibromyalgia and supporting
Fibromyalgia Action UK (FMAUK) >>>
#Millionsmissing is a global campaign for ME health equality | Register for this years May 12th Campaign
CAMPAIGN #Millionsmissing – #MEAction
Visit the website for #ME information, the community and also sign up for newsletters >>>
Diabetic Sweet treat!
Brown Sugar Strawberry Shortcakes | Desserts & Sweets Recipes for Diabetics | Diabetes Self-Management
Check out the site for more recipes and diabetic information and sign up for the newsletters >>>
www.diabetesselfmanagement.com
New Service for #caregivers, spouses, & siblings of ME sufferers! (US)
#MEACTION | Are you a Caregiver for someone with ME? Join our Saturday call.
Excerpt:
‘On this call we’d like to discuss (among other things) the recurring sense of loss that comes with ME (and all chronic diseases/conditions) – and in particular the sense of loss caregivers experience.
To be able to better handle the recurring sense loss, we would also like to talk about how we, as caregivers, soothe ourselves when these losses surface.’
Read more via the following link >>>
Do you have ME? visit the MEACTION website and join up for support and advice and the opportunity to join a community with people just like yourself >>>
New Post! Are sleep issues at the root of many Fibromyalgia symptoms? | Counting My Spoons | Julie Ryan | 16 April 2018
Excerpt:
‘Past research has shown a connection between sleep deprivation and cognitive issues, emotional processing (the ability to determine if social cues are friendly or threatening) and control, impaired executive function (ability to complete basic tasks), attention, and working memory. Again, all of these things are things that are facts of life for those of us living with Fibromyalgia.’
You can subscribe to Julie’s newsletter and also connect with Julie on varying social mdia platforms too. Why not pay her a visit, have a chat, or even ask her a question?
Remember if you have persistent problems it is best to visit your doctor to get checked out and to see if they can help you.
#Musculoskeletal #Skin #Inflammation # PsA #Psoriasis #Arthritis #PsoriaticArthritis
What Type of PsA (PsoriaticArthritis) Do You Have? | What is PsA | Arthritis Foundation
Excerpt:
‘Most people with psoriatic arthritis have skin symptoms before joint symptoms. However, sometimes the joint pain and stiffness strikes first. In some cases, people get psoriatic arthritis without any skin changes.’
Read more via the link below >>>
Something Complementary & Alternative!
Your Aromatherapy – It’s Spring – give your body that wake-up call! | Your Aromatherapy Guide | Jan Randall | 14 April 2018
Opening paragraph:
‘Spring is a beautiful time of the year with the longer days and the warmer weather…….it is a time of hope, anticipation and renewal. We feel brighter and more active as our yang energies are beginning to rise and there is a sense of renewed energy and an excitement to be outside. We want to shake off our sleepy winter hibernation!’
Read more via the link below >>>
Visit Jan’s website to sign up for the quarterly FREE newsletter and to read all about aromatherapy and the different uses it can have >>>
Citizen Scientist Bulletin #60 | 5 April 2018
Sign up with Citizen Scientist if you’re interest in taking part in #research
Visit the site >>> www.citizenscientist.org.uk/
If want to help make a difference with research become a member, I am – Carole Sian aka fibrofly73
Latest! RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter March 2018 | 3 April 2018
“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”
Ronny’s latest post | RonnyAllan.NET – Community Newsletter March 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | April 2018
Who are ARMA? – About ARMA
Lots of things to read in this issue!
Interesting reading! SIP Newsletter March 2018
Please register for the SIP Newsletter via this link >>>
Save the Date – Second Annual Community Symposium
Do you listen to the Airing Pain Podcasts? Pain Concern | Airing Pain Feedback Survey
Why not visit the website for more information and pain related things
Useful information! Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- This information was published in August 2016 and will be revised in 2019.
For more information regarding mental health help, support and advice please follow the link below.
If you require confidential support you can also find your local support centre via the site!
Newsletters via News Medical
News Medical |Diabetes Newsletter | 3 April 2018
Latest! News Medical | Endocrinology Newsletter | 10 April 2018
News Medical | Respiratory Diseases | 26 March 2010
Latest! News Medical |Sleep Disorder Newsletter | 9 April 2018
News Medical | Pediatrics Newsletter | 3 April 2018
- News Medical Home Page >
Patient Research Ambassadors Initiative Issue 2 | 5 February 2018
#whywedoresearch #ResearchAmbassador #PRAI
Would you like to be a research ambassador? Visit here to check out the varying ways you can help.
Change around in the Chillout Lounge!
“Inner Peace & Balance” Deep Meditation Music l Healing Music Relax Mind Body l Soothing Relax || Meditation and Healing | 29 April 2018
Why not visit Meditation & Healing to see what other tubes they have? >>>
You will find a variety of music that will help you to relax on the – Meditation and Healing Channel.
Links to other social media platforms
itunes-apple phone links for buying albums
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
😀
PLEASE NOTE:
- That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
- Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
- FibroFlutters is not a selling site but we will point you in the direction to subscribe to newsletters/magazines and some offer free, some don’t!
- The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
- Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews. It also does not mean that we are affiliated with anyone unless it is clearly stated.
PLEASE:
- Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
- Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
- Always be aware of Internet security and note that we cannot be held responsible for external websites.
- Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.
- fibroflutters.com/ Privacy Policy
- This privacy policy has been compiled to better serve those who are concerned with how their ‘Personally Identifiable Information’ (PII) is being used online. PII, as described in US privacy law and information security, is information that can be used on its own or with other information to identify, contact, or locate a single person, or to identify an individual in context. Please read our privacy policy carefully to get a clear understanding of how we collect, use, protect or otherwise handle your Personally Identifiable Information in accordance with our website.
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
Please sign up and keep up to date with FibroFlutters AND #Chronicillness POST
