#ChronicIllness Morning Post:
My favourite daily’s
- Focus on Disability;
- Autoimmune / Arthritic Systemic Life; Fibromyalgia ME Chronic Pain;
- UK Care Guide;
- My Disability Matters News & Opinion Digest
- The brain and mental health voice;
- Psych Central Daily Newsletter – New today from Psych Central
- Disability News Service …
Twice Daily! news from Focus on Disability
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
For disabled people, the elderly and their carers in the UK
Why not visit and sign up >
Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Don’t forget to check this evenings post for their next update!
Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
#HealthNews #ChronicPain #Autoimmune #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy #chronicillness #invisibleillness
This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.
Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.
The Latest Health News & Related Subjects from Rhia at your fingertips
Why not visit and sign up >
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
Don’t forget to check this evenings post for their next update!
Twice Daily! news from UK Care Guide
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
Why not visit and sign up >
- Website: UK Care guide
Don’t forget this evenings post for their next update!
Daily! My Disability Matters News & Opinion Digest | See TODAY’s headlines | Visit the link to sign up for their newsletter and to read latest news | 20 April 2018
#disability #disabilitynews chronicillness
Headlines for today
- Employable Me has struck a chord but will it change employers’ attitudes to disability?
- Choosing the wrong college can be bad for your mental health
- Disabled music fans face premium phone charges to book live events
“Truth be told this is why I don’t get to gigs anymore! so I’m pasting the link because I know many of you will think the same as me when you read it!”
Carole Sian aka fibrofly73
Further Reading
- How fake assistance animals and their users are gaming the system and increasing prejudice
- Government takes small step over risk of NHS care home discrimination
- Mood and personality disorders are often misconceived: here’s what you need to know
- Redundancy threat hangs over Remploy workers as DWP funding ends
- UK Government set to ignore key air travel discrimination concerns
Visit and sign up here for Worldwide Disability Matters DAILY News
Twice Daily! Fibromyalgia ME Chronic Pain |
#Fibro #ME #CFS #ChronicPain #invisibleillness
Fibromyalgia ME Chronic Pain is out! How it’s Costing You in Happiness, Financially and in Your Relationships!
Why not visit and sign up >
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher
Don’t forget to check this evenings post for their next update!
The brain and mental health voice is out! | selection by Valeria Duflot |
#brain #mentalhealth #chronicillness #invisibleillness
Why not visit and sign up >
Valeria Duflot on Paper Li
- #Socent
- veneziaautentica.com cofounder
- Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
Updates every couple of days!
Latest! from Psych Central | Psych Central Daily Newsletter | 19 April 2018
#mentalhealth #depression #anxiety #stress #chronicillness #invisibleillness
Headlines for today
- Ten of the Most Common Errors in Thinking
- How Volunteering Can Help Your Mental & Physical Health
- Maternal Depression May Impact Child’s IQ
- Nearly 80 Genes Linked to Depression
Sign up for newsletters > Home Page: psychcentral.com/
Disability News Service (DNS)
#disability #disabilitynews
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
FREE EVENT – not many tickets left! Get yours now via the link below 🙂
Burning Nights CRPS – 4th Annual national Burning Nights CRPS conference
4 November 2018 | 9:30am – 4:30pm
North East UK | Marriott Gosforth Park Hotel | Newcastle Upon Tyne
Burning Nights CRPS – 4th Annual national Burning Nights CRPS conference
Other Newsletters / Magazines / Blogs of interest
including >
Something for the Chillout Lounge! “Wipe Out All The Negativity” Meditation Music, Positive Energy Healing Music, Sleeping Music | Meditation and Healing | 11 April 2018
* * *
Oh! the ‘im-patients’ of it all!
Excerpt:
We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.
Why not come and fill in the IDEAS survey and share your #patientvoice & even join the TEAM!
Read more via this link >>>
Oh! the ‘im-patients’ of it all!
#ChildrensHealth
Patient Newsletter | Headliner: How to talk to your kids about their weight | Dr Carrie Ruxton | 18 April 2018
Excerpt from Headliner:
‘What should you do if your own child is overweight? Is it best to raise the topic and risk hurting their feelings, or should you ignore your child’s expanding waistline but worry in silence about their future health and well-being?’ – How to talk to your kids about their weight, Dr Carrie Ruxton
© Patient Platform Limited. Registered in England and Wales.
Read more by following this link >>>
Visit the Home Page and register for patient access as well as newsletters >>>
Patient work in partnership with the NHS
APP causes protest!
London Doctors Stage Protest Over Rollout Of App | EMR and HIPAA | Anne Zieger | 18 April 2018
Excerpt:
The doctors behind the protest are unhappy with the way the NHS structured its rollout of the smartphone app GP at Hand, which they say has created extra work and confusion among the patients.
Read more via the following link >>>
About the author >>>
#HITsm Chat Topic – Telling the perfect story!
The Power of Story – #HITsm Chat Topic | EMR and HIPAA | John Lynn | 17 April 2018
Opening Lines:
We’re excited to share the topic and questions for this week’s #HITsm chat happening Friday, 4/20 at Noon ET (9 AM PT). This week’s chat will be hosted by @DesignInHealth (led by Kijana-Knight Torres), Burt Rosen (@burtrosen), and the #WTFix team on the topic of “The Power of Story”.
Read more via the following link >>>
Visit the website for more information and sign up for the newsletters >>>
From the website: Please note…
Copyright © 2018 HealthcareScene.com, All rights reserved.
Healthcare Scene provides news, updates, white papers and webinars covering the latest in healthcare IT. Visit us online and see our network of Health IT websites at: www.healthcarescene.com
#PatientVoice!
The Emotional Roller Coaster Living With Chronic Pain | Ellen Smith | National Pain report | 18 April 2018
Excerpt:
‘Life with chronic pain is a life on the roller coaster. We have many downs in the journey yet the simplest of life’s activities becomes our up on this rollercoaster, bringing joy when we are able to accomplish them. You don’t take life for granted, for those good moments are golden and so appreciated, until you then slip backwards again. Are we protecting ourselves or others from hearing the truth?‘
Read more via the link below >>>
Visit the website for posts and sign up for their newsletters >>>
New Service for #caregivers, spouses, & siblings of ME sufferers! (US)
#MEACTION | Are you a Caregiver for someone with ME? Join our Saturday call.
Excerpt:
‘On this call we’d like to discuss (among other things) the recurring sense of loss that comes with ME (and all chronic diseases/conditions) – and in particular the sense of loss caregivers experience.
To be able to better handle the recurring sense loss, we would also like to talk about how we, as caregivers, soothe ourselves when these losses surface.’
Read more via the following link >>>
Do you have ME? visit the MEACTION website and join up for support and advice and the opportunity to join a community with people just like yourself >>>
The Top 5 | Pysch Central | Headliner: Hallmarks of a Resilient Relationship | 18 April 2018
Other headlines >>>
- How Unconditional Love Ruins Romantic Relationships
- 5 Ways You were Taught Self-Erasure
- 20 Lies Addicts Say to Justify their Addiction
- How to Tame Your Anxious Mind
Plus a lot more… follow the link to the newsletter >>>
Fantastic! #Musculoskeletal #ConnectiveTissueDisease #EDS #HSDs
Researchers succeed in cultivating cartilage from stem cells | University of Basel | 17 April 2018
Opening paragraph:
‘Researchers have produced stable joint cartilage from adult stem cells originating from bone marrow. This was made possible by inducing specific molecular processes occurring during embryonic cartilage formation, as researchers from the University and University Hospital of Basel report in the scientific journal PNAS.’
Read more at >>>
Sourced from >>>
Very clever!
Combining augmented reality with deep learning network to help pathologists spot cancer cells | by Bob Yirka, Medical Xpress | 17 April 2018
Opening sentence:
‘A team of researchers at Google has developed a tool that combines augmented reality with a deep learning neural network to provide pathologists with help in spotting cancerous cells on slides under a microscope.’
Read more via the following link >>>
- Combining augmented reality with deep learning network to help pathologists spot cancer cells
- medicalxpress.com/news
Sourced from >>>
Huge variation in prescribing practice for gluten-free foods in England | British Medical Journal | 16 April 2018
Opening Line:
‘Prescribing practice for gluten free foods in England varies hugely, and doesn’t seem to be driven by obvious medical factors, reveals research published in the online journal BMJ Open.’
Read more via the link below >>>
Sourced from >>>
Statins save lives of people with high levels of LDL cholesterol | by Tom Snee | University of Iowa | 17 April 2018
Opening paragraph:
‘Cholesterol-lowering drugs are more likely to save thousands of additional lives when used in people with higher levels of LDL cholesterol, or “bad” cholesterol, according to a new study from the University of Iowa, published in the Journal of the American Medical Association (JAMA).’
Read more bt following this link >>>
#MentalHealth #SelfDoubt #Fear
An Exercise to Help Us Overcome Fear & Self-doubt | John Allcock | Elephant Journal | 12 April 2018
John Allcock is the Co-Founder and Director of Mindfulness at Sea Change Preparatory, a trailblazing academy that regularly integrates the practice of mindfulness into it’s curriculum.
Visit the Elephant Journal website to sign up for FREE newsletters >>>
This is especialy poignant for myself at the moment as I ‘struggle’ to see the value of my own selfworth and am currently facing many fears such as failure, not knowing what I’m doing, letting folks down, not living up to other people’s expectations, being around people / strangers, being in the lime-light and cameras, being wanted/needed, general social anxieties and even using telephones and conference calling,
Long list huh!
It’s not easy when you have only been out of hiding for 6/7 months, I made this choice to try and take my Advocacy work into the real world instead of just being online.
Actions speak louder than words
And Yes, I have considered going back into hiding!
I want to help make a difference to the way healthcare is provided for people like me who have #chronicillness #invisibleillness or #raredisease so I have made the move into learning about current pharma wants, clinical needs / research, HCPs, medical affairs etc and through attending events and joining relevant organisations.
Using my #PatientVoice to help promote changes, whilst fighting my own personal fears #MentalHealth.
Carole aka fibrofly73
Awesome!
Scientists watch the brain’s lining heal after a head injury | National Institute of Neurological Disorders and Stroke – NINDS | National Institutes of Health (NIH) | 16 April 2018
Excerpt / Quote:
“The lining of the brain, with help from the immune system, has a remarkable ability to put itself back together again after injury,” said Dorian McGavern, Ph.D., scientist at the NIH’s National Institute of Neurological Disorders and Stroke* and the senior author of the study published in Nature Immunology. “As we learn more about all the cells involved in the repair process, we may be able to identify potential targets for therapy that lead to better outcomes for patients.”
*National Institute of Neurological Disorders and Stroke – NINDS
NIH Home Page >>>
New Post! Are sleep issues at the root of many Fibromyalgia symptoms? | Counting My Spoons | Julie Ryan | 16 April 2018
Excerpt:
‘Past research has shown a connection between sleep deprivation and cognitive issues, emotional processing (the ability to determine if social cues are friendly or threatening) and control, impaired executive function (ability to complete basic tasks), attention, and working memory. Again, all of these things are things that are facts of life for those of us living with Fibromyalgia.’
You can subscribe to Julie’s newsletter and also connect with Julie on varying social mdia platforms too. Why not pay her a visit, have a chat, or even ask her a question?
Remember if you have persistent problems it is best to visit your doctor to get checked out and to see if they can help you.
#Musculoskeletal #Skin #Inflammation # PsA #Psoriasis #Arthritis #PsoriaticArthritis
What Type of PsA (PsoriaticArthritis) Do You Have? | What is PsA | Arthritis Foundation
Excerpt:
‘Most people with psoriatic arthritis have skin symptoms before joint symptoms. However, sometimes the joint pain and stiffness strikes first. In some cases, people get psoriatic arthritis without any skin changes.’
Read more via the link below >>>
#Fibro & #Stress, #chronicblogger #CopingStrategy
I Have Fibromyalgia…I Work on Stress…The Fibromyalgia and Stress Connection | The – So Is Fibromyalgia Real? What I Know Is Real – Blog | 9 February 2018
Excerpt:
‘And the stresses that it seems that most “regular” people’s bodies absorb without any obvious ill effects…well, ours get affected by them…big time! And it doesn’t have to be a major stress…even just low-level stress IS STRESS as far as fibromyalgia is concerned…even positive stress IS STRESS as far as fibromyalgia is concerned.
Visit the blog site to read more real-life experiences >>>
Read my post – This is your body on anxiety >>>
Something Complementary & Alternative!
Your Aromatherapy – It’s Spring – give your body that wake-up call! | Your Aromatherapy Guide | Jan Randall | 14 April 2018
Opening paragraph:
‘Spring is a beautiful time of the year with the longer days and the warmer weather…….it is a time of hope, anticipation and renewal. We feel brighter and more active as our yang energies are beginning to rise and there is a sense of renewed energy and an excitement to be outside. We want to shake off our sleepy winter hibernation!’
Read more via the link below >>>
Visit Jan’s website to sign up for the quarterly FREE newsletter and to read all about aromatherapy and the different uses it can have >>>
#Arthritis #Fitness & #Nutrition
The Arthritis Foundation | Fitness & Nutrition | Overcoming Workout Hurdles | 13 April 2018
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
Expert discusses #MentalHealth
The Top Reasons Why People Don’t Receive Needed Mental Health Services | David Susman PhD & Clinical psychologist | 12 April 2018
Opening line:
‘I’ve written several times about the important issue of the need for affordable and effective treatment for mental health issues.’
Read more via the link below >>>
Visit David Susman PhD – Resources & Inspiration for Better Mental Health on WordPress >>>
Useful links! School and JA: Helping Your Child Cope | Kids get Arthritis too | Arthritis Foundation Newsletter | 11 April 2018
- Resources to help with the ups and downs of school.
- Life With JA > Daily Life With Juvenile Arthritis > School Success with Arthritis > Helping Kids With Arthritis Cope
Link to article
Checkout the websites, Kids get Arthritis too | Arthritis Foundation sign up for newsletters >>>
#whywedoresearch Meet the hidden heroes of BHF research | HEART MATTERS More than a magazine: information, inspiration and support British Heart Foundation (bhf) | Heart Matters Newsletter | 11 April 2018
Opening of article:
‘Hidden heroes of BHF research
BHF research is rigorously scrutinised so we get the most out of the money you donate. Lucy Trevallion meets four people who work behind the scenes to make this happen.’
Visit the British Heart Foundation website and sign up for their magazine / newsletter >>>
British Heart Foundation is a registered Charity No. 225971.
Latest! Citizen Scientist Bulletin #60 | 5 April 2018
Sign up with Citizen Scientist if you’re interest in taking part in #research
Visit the site >>> www.citizenscientist.org.uk/
If want to help make a difference with research become a member, I am – Carole Sian aka fibrofly73
Latest issue! NICE Newsletter | 28 March 2018
National Institute for Health and Care Excellence – NICE – provides national guidance and advice to improve health and social care.
‘Improving health and social care through evidence-based guidance’
Sign up for alerts and newsletters >>>
Latest! RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter March 2018 | 3 April 2018
“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”
Ronny’s latest post | RonnyAllan.NET – Community Newsletter March 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Including >>>
Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | April 2018
Who are ARMA? – About ARMA
Lots of things to read in this issue!
Interesting reading! SIP Newsletter March 2018
Please register for the SIP Newsletter via this link >>>
Save the Date – Second Annual Community Symposium
Do you listen to the Airing Pain Podcasts? Pain Concern | Airing Pain Feedback Survey
Why not visit the website for more information and pain related things
Useful information! Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- This information was published in August 2016 and will be revised in 2019.
For more information regarding mental health help, support and advice please follow the link below.
If you require confidential support you can also find your local support centre via the site!
Namaste Irrfan Khan | RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET | 16 March 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Newsletters via News Medical
News Medical |Diabetes Newsletter | 3 April 2018
Latest! News Medical | Endocrinology Newsletter | 10 April 2018
News Medical | Respiratory Diseases | 26 March 2010
Latest! News Medical |Sleep Disorder Newsletter | 9 April 2018
News Medical | Pediatrics Newsletter | 3 April 2018
- News Medical Home Page >
Patient Research Ambassadors Initiative Issue 2 | 5 February 2018
#whywedoresearch #ResearchAmbassador #PRAI
Would you like to be a research ambassador? Visit here to check out the varying ways you can help.
Something for the Chillout Lounge!
“Wipe Out All The Negativity” Meditation Music, Positive Energy Healing Music, Sleeping Music | Meditation and Healing | 11 April 2018
- “Wipe Out All The Negativity” Meditation Music, Positive Energy Healing Music, Sleeping Music
- https://www.youtube.com
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
😀
PLEASE NOTE:
- That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
- Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
- FibroFlutters is not a selling site but we will point you in the direction to subscribe to newsletters/magazines and some offer free, some don’t!
- The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
- Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews. It also does not mean that we are affiliated with anyone unless it is clearly stated.
PLEASE:
- Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
- Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
- Always be aware of Internet security and note that we cannot be held responsible for external websites.
- Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
Please sign up and keep up to date with FibroFlutters AND #Chronicillness POST
