#ChronicIllness Morning Post:
My favourite daily’s
- Focus on Disability;
- Autoimmune / Arthritic Systemic Life; Fibromyalgia ME Chronic Pain;
- UK Care Guide;
- My Disability Matters News & Opinion Digest
- The brain and mental health voice;
- Psych Central Daily Newsletter – New today from Psych Central
- Disability News Service …
Twice Daily! news from Focus on Disability
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
For disabled people, the elderly and their carers in the UK
Why not visit and sign up >
Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Don’t forget to check this evenings post for their next update!
Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
#HealthNews #ChronicPain #Autoimmune #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy #chronicillness #invisibleillness
This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.
Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.
The Latest Health News & Related Subjects from Rhia at your fingertips
Why not visit and sign up >
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
Don’t forget to check this evenings post for their next update!
Twice Daily! news from UK Care Guide
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
Why not visit and sign up >
- Website: UK Care guide
Don’t forget this evenings post for their next update!
Daily! My Disability Matters News & Opinion Digest | See TODAY’s headlines | Visit the link to sign up for their newsletter and to read latest news | 13 April 2018
#disability #disabilitynews chronicillness
Headlines for today
- Autism advocacy and research misses the mark if autistic people are left out
Further Reading
- How creativity on prescription can improve mental and physical health
- Cross-sector collaboration and working: How much time do we have to do things right?
- Deaf Australia: Australian government signs off tender for a substandard National Relay Service
- Treating depression to economically empower mothers
- Improving mental health support for children in the care of the UK state
Visit and sign up here for Worldwide Disability Matters DAILY News
Twice Daily! Fibromyalgia ME Chronic Pain |
#Fibro #ME #CFS #ChronicPain #invisibleillness
Fibromyalgia ME Chronic Pain is out! How it’s Costing You in Happiness, Financially and in Your Relationships!
Why not visit and sign up >
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher
Don’t forget to check this evenings post for their next update!
The brain and mental health voice is out! | selection by Valeria Duflot |
#brain #mentalhealth #chronicillness #invisibleillness
Why not visit and sign up >
Valeria Duflot on Paper Li
- #Socent
- veneziaautentica.com cofounder
- Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
Updates every couple of days!
Latest! from Psych Central | Psych Central Daily Newsletter | 12 April 2018
#mentalhealth #depression #anxiety #stress #chronicillness #invisibleillness
Headlines for today
- Is mental illness and horror movies padding Hollywood’s wallet?
- The Psychological Effects of Spring and the Reminder of Change
- 20 Daily Lies We Tell Ourselves
- Holocaust Trauma Impacts How Survivors’ Offspring Cope with Caregiving
Sign up for newsletters > Home Page: psychcentral.com/
Disability News Service (DNS)
#disability #disabilitynews
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
FREE EVENT – not many tickets left! Get yours now via the link below 🙂
Burning Nights CRPS – 4th Annual national Burning Nights CRPS conference
4 November 2018 | 9:30am – 4:30pm
North East UK | Marriott Gosforth Park Hotel | Newcastle Upon Tyne
Burning Nights CRPS – 4th Annual national Burning Nights CRPS conference
Other Newsletters / Magazines / Blogs of interest
including >
Something for the Chillout Lounge! “Wipe Out All The Negativity” Meditation Music, Positive Energy Healing Music, Sleeping Music | Meditation and Healing | 11 April 2018
* * *
Useful links! School and JA: Helping Your Child Cope | Kids get Arthritis too | Arthritis Foundation Newsletter | 11 April 2018
- Resources to help with the ups and downs of school.
- Life With JA > Daily Life With Juvenile Arthritis > School Success with Arthritis > Helping Kids With Arthritis Cope
Link to article
Checkout the websites, Kids get Arthritis too | Arthritis Foundation sign up for newsletters >>>
Hopeful for the future!
Bad antibodies made good: The immune system’s secret weapon uncovered | Garvan Institute of Medical Research | 11 April 2018
Opening line:
‘The ‘bad apples’ of the immune system are also its secret weapon, according to major Australian research published today in the world-leading journal Science.’
- Bad antibodies made good: The immune system’s secret weapon uncovered
- Garvan Institute of Medical Research
Sourced via medicalxpress >>>
#PatientVoice! A Story of How Medical Cannabis Transformed One Patient’s Life | Ed Coghlan | National Pain report | 12 April 2018
Excerpt:
‘In suburban Chicago later this month, you are going to hear the journey of a one woman injured in her youth who went to hell and back as an adult and thinks using cannabis has changed her life.
Her name is Rebecca Sewell.’
Read more via the link below >>>
- A Story of How Medical Cannabis Transformed One Patient’s Life
- Authored by: Ed Coghlan
- nationalpainreport.com/
Free Downloadable Industry Report:
The Power of Digitalizing Healthcare | White Paper | Siemens Healthineers | 15 Dec 2017
Exerpt:
‘Digital technology has disrupted many industries, including healthcare. Will smart data be able to support creating actionable insights that will help expand precision medicine, transform care delivery, and improve patient experience?’
Who are Siemens Healthineers?
Women’s problems! Straight, No Chaser: Uterine Fibroids | JEFFREY STERLING, MD | 11 April 2018
Exerpt:
‘Fibroids are noncancerous growths on the female uterus (the womb). Fibroids are extremely common. In fact, by age 50 approximately half of women will have fibroids. On the other hand, they appear to be rare under age 20. This is a condition that is most prominent during the childbearing years.’
Read more via the link below >>>
About the author:
Welcome page >>>
#ChronicBlogger! Climbing Mountains With My Chronic Illness Friends | My Medical Musing’s | Sam | April 11 2018
Medically Retired and Living a Life of Faith and Hope with a Rare Disease
Quote:
“I love that we laugh together and cry together. I love that we are free to express to each other our deepest thoughts in a way that is raw and real.’ Sam Moss, Climbing mountains with my chronic illness friends.
Read more via the link below >>>
About the Author >>>
#WEGOHEALTH 10 Tips for Participating in a Twitter Chat | Julie Cerrone WEGO HEALTH | 11 April 2018
Julie Cerrone is ‘Patient Leader Network’ Director at WEGO Health
Twitter chat is fast becoming a great way to communicate with each other about specific themes within our health / chronic illness areas. It is also a fab method for collecting #patientvoices and for helping each other to learn from each other, swap information, and also of course one of the most important things is to make new friends.
Julie has written a great piece here for WEGOHEALTH about how to take part in a Twitter Chat, with some great hints and tips that will help you learn the way!
Read the article via this link >>>
About WEGOHEALTH >>>
Do you think twitter chat hosting may help you then follow this link and connect on Twitter to #TweetChat >>>
Want to know what twitter chats are available to join? Click the following link to find a schedule 🙂 Happy tweeting! Happy networking! Happy talking! #PatientVoice
#whywedoresearch Meet the hidden heroes of BHF research | HEART MATTERS More than a magazine: information, inspiration and support British Heart Foundation (bhf) | Heart Matters Newsletter | 11 April 2018
Opening of article:
‘Hidden heroes of BHF research
BHF research is rigorously scrutinised so we get the most out of the money you donate. Lucy Trevallion meets four people who work behind the scenes to make this happen.’
Visit the British Heart Foundation website and sign up for their magazine / newsletter >>>
British Heart Foundation is a registered Charity No. 225971.
Latest issue! Patient Newsletter | Subject: How to tame your tummy troubles | 11 April 2018
Find out more about Patient, check your symptoms. Sign in or sign up via the website >>>
Patient work in partnership with the NHS
Hopeful for the future! Scientists induce sensations of touch and movement in the arm of a paralyzed man | California Institute of Technology | 10 April 2018
Opening paragraph:
‘For the first time, scientists at Caltech have induced natural sensations in the arm of a paralyzed man by stimulating a certain region of the brain with a tiny array of electrodes. The patient has a high-level spinal cord lesion and, besides not being able to move his limbs, also cannot feel them. The work could one day allow paralyzed people using prosthetic limbs to feel physical feedback from sensors placed on these devices.’
Read more via the link below >>>
Visit medicalxpress for other news and sign up for their newsletters >>>
Interesting! Discovery sheds new light on how neurodegenerative diseases might occur | University of Leicester | 10 April 2018
Visit medicalxpress for other news and sign up for their newsletters >>>
New Post! Could food sensitivities be making your Fibromyalgia symptoms worse? | Counting My Spoons | Julie Ryan | 9 April 2018
Excerpt:
‘Food sensitivities aren’t the culprit for everyone, nor were/are they the only trigger for me. But, they are enough of a problem for enough of us that it’s definitely worth taking a look. The first thing to understand is that a food sensitivity is not the same as an allergy.’
You can subscribe to Julie’s newsletter and also connect with Julie on varying social mdia platforms too. Why not pay her a visit, have a chat, or even ask her a question?
Remember if you have dietry issues and severe problems it is best to visit your doctor to get checked out properly first, to eliminate any other possible causes.
From the heart of the Dr! I Wrote This for You | Dr. Author ~ Always Lookin’ Out for #MyCaringFriends! | 9 April 2018
Quote: “I’m a prolific writer these days, because … there’s so much to say!”
Including a few recent pieces she wrote as a columnist for Pain News Network:
- Why Human Suffering Should Bother You
- 5 Things to Know about Epidural Injections
Posted by Dr Margaret Aranda, MD in Authors and Writers, blogging, Invisible Illnesses, Musings, The Rebel Patient
Time to get up and get moving!
ON YOUR FEET BRITAIN, 27th APRIL 2018…| BARMAC5 | backpainbloguk.com | 9 April 2018
Blog description:
‘A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.’
Barmac5 – About me / Work with me >>>
Q&A: Insomnia what to do when you can’t sleep | From Mayo Clinic News Network | 6 April 2018
Question to Mayo Clinic:
‘Dear Mayo Clinic: What is the best way to eliminate insomnia? For almost a year, I’ve had trouble getting much sleep. I’ve tried over-the-counter medications, but they aren’t very effective.
To read the Mayo Clinic’s response click the link below >>>
Latest! Citizen Scientist Bulletin #60 | 5 April 2018
Sign up with Citizen Scientist if you’re interest in taking part in #research
Visit the site >>> www.citizenscientist.org.uk/
If want to help make a difference with research become a member, I am – Carole Sian aka fibrofly73
This article asks a good question!
How to Ease the Pain of Colonoscopy | Michael Greger M.D. FACLM | nutritionfacts.org | 5 April 2018
About the author >>>
Visit the site for more articles, if you like what you read sign up for the newsletters >>>
Very good thought process producing a very good question because I use it anways for similar purposes.
So why don’t they use peppermint oil as a natural way to calm the spasming which causes the pain?
I’ve had 2 sigmoidoscopies rather than colonoscopies and I believe that this treatment would also work for that. Both times I had a procedure done at the same time. The first one they removed 3 polyps the second they banded internal hemorrhoids
I use peppermint a lot as a treatment for my bowel / digestive disorders and find it helps a lot. Some people actually take peppermint capsules daily as a way to help with IBS as well for instance, which I have also used it for.
I also underwent STARR procedure 5 years ago and it could have helped then as well, don’t know why I didn’t think of it myself.
Personally, I think that it will have a lot to do with no-one being willing to accredit it as a treatment because it will be seen as a homeopathic remedy!
Carole Sian aka fibrofly73
Read this pdf to find out what a STARR procedure is >>>
Stapled transanal resection of the rectum (STARR) for the obstructed defaecation syndrome
Source: The Royal College of Surgeons of England
Stapled transanal resection of the rectum (STARR) for the obstructed defaecation syndrome
RIDZUAN FAROUK (my colorectal consultant in Sunderland), R BHARDWAJ AND RKS PHILLIPS
Latest issue! NICE Newsletter | 28 March 2018
National Institute for Health and Care Excellence – NICE – provides national guidance and advice to improve health and social care.
‘Improving health and social care through evidence-based guidance’
Sign up for alerts and newsletters >>>
Something for the Mental Health Professionals!
Psychiatry Advisor’s Daily | 10 April 2018
Headliners:
- Apathy Associated With Lower Health-Related Quality of Life in Huntington Disease
- Dementia Care: Prescribing Trends of Antipsychotics, Mood Stabilizers, and Psychotropic Medications
- Recovery From First Episode Psychosis More Likely in Those With Mania, Brief Psychosis Diagnoses
- Child Irritability Correlated With Suicide Risk, Especially in Girls
- Mood Disorders Up for Children of Consanguineous Parents
- Grief Symptoms Similar in Donor vs Non-Donor Decision Families
CLINICAL RESOURCE
- Insomnia: Causes and Treatments
Psychiatry Advisor’s Daily Updates email features the latest News, Clinical Features, and Opinions for psychiatric health-care providers
Visit the website for other news and information >>>
Ⓒ Haymarket Media Inc. 275 7th Avenue, 10th Floor, New York, NY 10001
Useful information!
Arthritis in Toes: Symptoms & Natural Treatment for Toe Arthritis | Doctors Health Press | TopBuzz | 3 April 2018
Disclaimer quoted from post:
‘Arthritis in Toes: Symptoms, Causes, Treatment, and Prevention Tips
Disclaimer: Results are not guaranteed*** and may vary from person to person***.’
Doctor’s Health Press profile Page on TopBuzz >>>
TopBuzz Home Feed Page >>>
Latest! RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter March 2018 | 3 April 2018
“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”
Ronny’s latest post | RonnyAllan.NET – Community Newsletter March 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Including >>>
Living with NETs – Patient Power | Ronny Allan | March 2018
Opening line:
‘It’s no secret that I and other patients (see picture) have been helping Ipsen Group and their website consultants (Kanga Health) with a new site designed to support and help all Neuroendocrine Tumour patients.’ Ronny Allan
A huge congratulations from FibroFlutters to Kanga and Ipsen
I was super excited to hear this after Ronny told me about how we almost met in Barcelona at the @eyeforpharma event because of his involvement within the video. However, he was busy at the ENETS 2018, also in Barca, the week before, where he’d been sponsored by INCA, and couldn’t make it.
Excellent achievement!
and Ronny! One day we will meet I’m sure!!
Thank you Ronny for all the work you do with #patientvoice 🙂
Carole (CEO) FibroFlutters & Founding Five Member
About eyeforpharma >>>
Kanga PHARMACEUTICAL DIGITAL AGENCY >>>
Ipsen Group >>>
New! The Importance of Marketing in Healthcare IT | EMRandHIPAA | John Lynn | 9 April 2018
Quote:
‘The reality is that healthcare needs more effective healthcare IT marketing.’ John Lynn – The Importance of Marketing in Healthcare IT
EMRandHIPAA website >>>
THIS WEEK
April 10th -11th
16th ANNUAL | eyeforpharma Philadelphia & AWARDS 2018
Know your patient. Deliver real value.
Check out the winners from eyeforpharma Barcelona & AWARDS 2018
Shared Via: eyeforpharma <<< Sign up for the newsletter > Home Page
Are you a patient advocate why not check out how you can pitch in as #PatientVoice eyeforpharma > patient-policy
Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued.
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.
Follow eyeforpharma on Twitter:
http://www.twitter.com/eyeforpharma
Like eyeforpharma on Facebook:
http://www.facebook.com/eyeforpharma
Subscribe to eyeforpharma youtube channel:
http://www.youtube.com/user/eyeforpharma
Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | April 2018
Who are ARMA? – About ARMA
Lots of things to read in this issue!
Expert Q&A! Just Dealing With Chronic Osteoarthritis Pain – Why it’s important to get proper treatment for chronic pain. | Arthritis Foundation | Daniel Clauw, MD Rheumatologist
Daniel Clauw, MD Rheumatologist gives some expert advice about dealing with Chronic Osteoarthritis Pain.
- A Q&A with Our Rheumatologists – Arthritis Foundation
- Living With Arthritis > Tools Resources > Expert Q A > Osteoarthritis Questions > Chronic OA Pain
Interesting reading! SIP Newsletter March 2018
Please register for the SIP Newsletter via this link >>>
Save the Date – Second Annual Community Symposium
New Service! #MEACTION | Are you a Caregiver for someone with ME? Join our Saturday call.
Do you have ME? visit the MEACTION website for support and advice and the opportunity to join a community with people just like yourself >>>
Do you listen to the Airing Pain Podcasts? Pain Concern | Airing Pain Feedback Survey
Why not visit the website for more information and pain related things
Useful information! Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- This information was published in August 2016 and will be revised in 2019.
For more information regarding mental health help, support and advice please follow the link below.
If you require confidential support you can also find your local support centre via the site!
Namaste Irrfan Khan | RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET | 16 March 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Newsletters via News Medical
News Medical |Diabetes Newsletter | 3 April 2018
Latest! News Medical | Endocrinology Newsletter | 10 April 2018
News Medical | Respiratory Diseases | 26 March 2010
Latest! News Medical |Sleep Disorder Newsletter | 9 April 2018
News Medical | Pediatrics Newsletter | 3 April 2018
- News Medical Home Page >
Patient Research Ambassadors Initiative Issue 2 | 5 February 2018
#whywedoresearch #ResearchAmbassador #PRAI
Would you like to be a research ambassador? Visit here to check out the varying ways you can help.
Something for the Chillout Lounge!
“Wipe Out All The Negativity” Meditation Music, Positive Energy Healing Music, Sleeping Music | Meditation and Healing | 11 April 2018
- “Wipe Out All The Negativity” Meditation Music, Positive Energy Healing Music, Sleeping Music
- https://www.youtube.com
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
😀
PLEASE NOTE:
- That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
- Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
- FibroFlutters is not a selling site but we will point you in the direction to subscribe to newsletters/magazines and some offer free, some don’t!
- The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
- Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews. It also does not mean that we are affiliated with anyone unless it is clearly stated.
PLEASE:
- Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
- Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
- Always be aware of Internet security and note that we cannot be held responsible for external websites.
- Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
Please sign up and keep up to date with FibroFlutters AND #Chronicillness POST
