#ChronicIllness Morning Post:
My favourite daily’s
- Focus on Disability;
- Autoimmune / Arthritic Systemic Life; Fibromyalgia ME Chronic Pain;
- UK Care Guide;
- My Disability Matters News & Opinion Digest
- The brain and mental health voice;
- Psych Central Daily Newsletter – New today from Psych Central
- Disability News Service …
Twice Daily! news from Focus on Disability
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
For disabled people, the elderly and their carers in the UK
Why not visit and sign up >
Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Don’t forget to check this evenings post for their next update!
Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
#HealthNews #ChronicPain #Autoimmune #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy #chronicillness #invisibleillness
This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.
Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.
The Latest Health News & Related Subjects from Rhia at your fingertips
Why not visit and sign up >
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
Don’t forget to check this evenings post for their next update!
Twice Daily! news from UK Care Guide
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
Why not visit and sign up >
- Website: UK Care guide
Don’t forget this evenings post for their next update!
Daily! My Disability Matters News & Opinion Digest | See TODAY’s headlines | Visit the link to sign up for their newsletter and to read latest news | 9 April 2018
#disability #disabilitynews chronicillness
Headlines for today
- Six things you can do to reduce your risk of dementia
Further Reading
- Listen and learn: The importance of parking our prejudice
- Body-worn cameras will help reduce police use of force, but the problem runs much deeper
- Disability workers are facing longer days with less pay
- Explainer: what is lupus and how is stress implicated?
- Gene-based tests may improve treatment for people with bipolar disorder
Visit and sign up here for Worldwide Disability Matters DAILY News
Twice Daily! Fibromyalgia ME Chronic Pain |
#Fibro #ME #CFS #ChronicPain #invisibleillness
Fibromyalgia ME Chronic Pain is out! How it’s Costing You in Happiness, Financially and in Your Relationships!
Why not visit and sign up >
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher
Don’t forget to check this evenings post for their next update!
The brain and mental health voice is out! | selection by Valeria Duflot |
#brain #mentalhealth #chronicillness #invisibleillness
Why not visit and sign up >
Valeria Duflot on Paper Li
- #Socent
- veneziaautentica.com cofounder
- Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
Updates every couple of days!
Latest! from Psych Central | Psych Central Daily Newsletter | 8 April 2018
#mentalhealth #depression #anxiety #stress #chronicillness #invisibleillness
Headlines for today
- Schizophrenia as Plot Device: Inherently Stigmatizing?
- Helping Your Anxious Teen: 5 Ways Parents Can Help
- High Levels of Vitamin D Protein Linked to Bipolar Illness in Kids
- PET Imaging Agent Can ID Good Candidates for Depression Drug
Sign up for newsletters > Home Page: psychcentral.com/
Disability News Service (DNS)
#disability #disabilitynews
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
FREE EVENT – not many tickets left! Get yours now via the link below 🙂
Burning Nights CRPS – 4th Annual national Burning Nights CRPS conference
4 November 2018 | 9:30am – 4:30pm
North East UK | Marriott Gosforth Park Hotel | Newcastle Upon Tyne
Burning Nights CRPS – 4th Annual national Burning Nights CRPS conference
Other Newsletters / Magazines / Blogs of interest
including >
Something for the Chillout Lounge! Native American Flutes: Beautiful Relaxing Music, Meditation Music, Flute Music ★133 by ‘Soothing Relaxation’ on youtube.
* * *
Q&A: Insomnia what to do when you can’t sleep | From Mayo Clinic News Network | 6 April 2018
Question to Mayo Clinic:
‘Dear Mayo Clinic: What is the best way to eliminate insomnia? For almost a year, I’ve had trouble getting much sleep. I’ve tried over-the-counter medications, but they aren’t very effective.
To read the Mayo Clinic’s response click the link below >>>
Cohort study! Three-quarters of COPD cases are linked to childhood risk factors that are exacerbated in adulthood | University of Bristol | 6 April 2018
Opening paragraph:
‘Three-quarters of chronic obstructive pulmonary disease (COPD) cases have their origins in poor lung function pathways beginning in childhood. These pathways are associated with exposures in childhood, and amplified by factors in adulthood, according to a cohort study published in The Lancet Respiratory Medicine.’
To read more click the link below >>>
- Three-quarters of COPD cases are linked to childhood risk factors that are exacerbated in adulthood
- University of Bristol
New needle device to revolutionise biopsies and reduce scarring | University of South Australia | 6 April 2018
The 3 articles above were all sourced via >>>
Latest! Citizen Scientist Bulletin #60 | 5 April 2018
Sign up with Citizen Scientist if you’re interest in taking part in #research
Visit the site >>> www.citizenscientist.org.uk/
If want to help make a difference with research become a member, I am – Carole Sian aka fibrofly73
Interesting! Topical Solution May Be Less Toxic Option for Patients with Noncancerous Skin Growth | GW School of Medicine and Health Sciences | 29 March 2018
Opening Line:
‘George Washington University researchers published a study on an FDA-approved topical solution for the treatment of seborrheic keratosis’
Read more via the link >>>
Wow! these things always happen just as I’ve had the procedure done already LOL only 3 months ago. I went for my review on Wednesday 4 April 2018.
‘A Topical solution may be have been less cytotoxic than the cryosurgery I had a couple of months ago to remove a 20 yr old, very large, seborrheic keratosis, from my left chest wall!?’
Typical!!
‘I must admit the worst part of the whole thing for me was the reaction from the sticky plasters I’d had to cover it with because I’d knocked it and it had torn the skin. Obviously did not wish to get it infected so had to keep it clean and change plasters until a week later when I knew it was likely to be removed.
The pain and inflammation, from the allergic reaction to the sticky stuff, caused me more pain and discomfort than the removal of the seborrheic keratosis using ‘cryosurgery’…
… and that stung a bit!
My skin in that region is now exceptionally sensitive, and tender to touch, even the friction from my clothing causes me problems.’
Carole Sian aka fibrofly73
This article asks a good question!
How to Ease the Pain of Colonoscopy | Michael Greger M.D. FACLM | nutritionfacts.org | 5 April 2018
About the author >>>
Visit the site for more articles, if you like what you read sign up for the newsletters >>>
Very good thought process producing a very good question because I use it anways for similar purposes.
So why don’t they use peppermint oil as a natural way to calm the spasming which causes the pain?
I’ve had 2 sigmoidoscopies rather than colonoscopies and I believe that this treatment would also work for that. Both times I had a procedure done at the same time. The first one they removed 3 polyps the second they banded internal hemorrhoids
I use peppermint a lot as a treatment for my bowel / digestive disorders and find it helps a lot. Some people actually take peppermint capsules daily as a way to help with IBS as well for instance, which I have also used it for.
I also underwent STARR procedure 5 years ago and it could have helped then as well, don’t know why I didn’t think of it myself.
Personally, I think that it will have a lot to do with no-one being willing to accredit it as a treatment because it will be seen as a homeopathic remedy!
Carole Sian aka fibrofly73
Read this pdf to find out what a STARR procedure is >>>
Stapled transanal resection of the rectum (STARR) for the obstructed defaecation syndrome
Source: The Royal College of Surgeons of England
Stapled transanal resection of the rectum (STARR) for the obstructed defaecation syndrome
RIDZUAN FAROUK (my colorectal consultant in Sunderland), R BHARDWAJ AND RKS PHILLIPS
Latest issue! NICE Newsletter | 28 March 2018
National Institute for Health and Care Excellence – NICE – provides national guidance and advice to improve health and social care.
‘Improving health and social care through evidence-based guidance’
Sign up for alerts and newsletters >>>
Something for the Mental Health Professionals!
Psychiatry Advisor’s Daily | 4 April 2018
Headliners:
- New Directions in Managing Tardive Dyskinesia
- ECT Does Not Increase the Risk for Dementia in Those With Affective Disorders
- Major Life Stressors Increase Risk for Conversion Disorder
- Depression-Associated Stigma May Limit Access to Chronic Pain Care
- Healthy Lifestyle May Protect Against Dementia in Older Adult Carriers of APOE ε4
- Amygdala Neurons Reduced in Adulthood With Autism
Psychiatry Advisor’s Daily Updates email features the latest News, Clinical Features, and Opinions for psychiatric health-care providers
Visit the website for other news and information >>>
New! A compilation of the latest content from Schizophrenia Advisor Channel e-newsletter from PsychiatryAdvisor.com. | 5 April 2018
Headliner: SERMS as Adjunctive Therapy for Schizophrenia | Suzanne Bujara | 22 March 2018
Also >>>
- Reduced Schizophrenia Maintenance Dose Improves Cognitive Function, Negative Symptoms
- Treatment-Resistant Schizophrenia or Medication Underexposure?
- internasal Oxytocin Reduces Negative Effects, Improves Cognitive Function in Schizophrenia
- Self-Stigmatization Affects Medication Adherence in Schizophrenia
- Psychotic Disorders Associated With Early Dynamic Cognitive Impairment
Psychiatry Advisor Home Page >>>
Useful information!
Arthritis in Toes: Symptoms & Natural Treatment for Toe Arthritis | Doctors Health Press | TopBuzz | 3 April 2018
Disclaimer quoted from post:
‘Arthritis in Toes: Symptoms, Causes, Treatment, and Prevention Tips
Disclaimer: Results are not guaranteed*** and may vary from person to person***.’
Doctor’s Health Press profile Page on TopBuzz >>>
TopBuzz Home Feed Page >>>
Something different! or, Alternative?
WORLD HOMEOPATHY AWARENESS WEEK 10th-16th APRIL 2018… | BARMAC5 | backpainbloguk.com | 4 April 2018
Blog description:
‘A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.’
Barmac5 – About me / Work with me >>>
Blogger news!
READING WRAP-UP: MARCH 2018 | Ribbonrx | 3 April 2018
Find out about Ribbonrx >>>
Latest! RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter March 2018 | 3 April 2018
“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”
Ronny’s latest post | RonnyAllan.NET – Community Newsletter March 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Including >>>
Living with NETs – Patient Power | Ronny Allan | March 2018
Opening line:
‘It’s no secret that I and other patients (see picture) have been helping Ipsen Group and their website consultants (Kanga Health) with a new site designed to support and help all Neuroendocrine Tumour patients.’ Ronny Allan
A huge congratulations from FibroFlutters to Kanga and Ipsen
I was super excited to hear this after Ronny told me about how we almost met in Barcelona at the @eyeforpharma event because of his involvement within the video. However, he was busy at the ENETS 2018, also in Barca, the week before, where he’d been sponsored by INCA, and couldn’t make it.
Excellent achievement!
and Ronny! One day we will meet I’m sure!!
Thank you Ronny for all the work you do with #patientvoice 🙂
Carole (CEO) FibroFlutters & Founding Five Member
About eyeforpharma >>>
Kanga PHARMACEUTICAL DIGITAL AGENCY >>>
Ipsen Group >>>
Guest Blogger! #HIMSS18: Oh The Humanity | EMRandHIPAA | 2 April 2018
The following is a guest blog post by Sean Erreger, LCSW or @StuckonSW as some of you may know him.
EMRandHIPAA website >>>
Technology! This Smartphone App Could Improve Knee Pain | Arthritis Foundation | 3 April 2018
Visit the website for information, community, and sign up for newsletters >>>
April 10th -11th
16th ANNUAL | eyeforpharma Philadelphia & AWARDS 2018
Know your patient. Deliver real value.
Check out the winners from eyeforpharma Barcelona & AWARDS 2018
Shared Via: eyeforpharma <<< Sign up for the newsletter > Home Page
Are you a patient advocate why not check out how you can pitch in as #PatientVoice eyeforpharma > patient-policy
Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued.
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.
Follow eyeforpharma on Twitter:
http://www.twitter.com/eyeforpharma
Like eyeforpharma on Facebook:
http://www.facebook.com/eyeforpharma
Subscribe to eyeforpharma youtube channel:
http://www.youtube.com/user/eyeforpharma
Which do you use? Self-care apps are booming | Sarah Perez @sarahintampa | TechCrunch | 2 April 2018
Opening paragraph:
‘Millennials may be a bit obsessed with self-care — and it’s beginning to pay off for the makers of self-care and digital wellness apps. According to data from multiple app store intelligence firms, the category is now seeing notable growth. In the first quarter of 2018, the top 10 grossing self-care apps in the U.S. earned $15 million in combined iOS and Android revenue, and $27 million in worldwide revenue, according to Sensor Tower.’
Why not read some other interesting TechCrunch Articles on WordPress >>>
Guest Post! CRPS: What To Do About It? A Guest Post from Janet Holly | by the naked physio | 3 April 2018
Exerpt:
‘In a discussion with Tara Packham, OT, in the fall of 2017, we determined that although the scientific literature had tailored pharmacological treatments based on the presenting mechanistic neurophysiology and immunology of the patient conservative treatments had yet to be truly structured around mechanism. The prevailing evidence-based rehabilitation treatment regimes were like throwing spaghetti at a wall to see what stuck.’
- CRPS: What To Do About It? A Guest Post from Janet Holly
- Visit on WordPress
Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | April 2018
Who are ARMA? – About ARMA
Lots of things to read in this issue!
Latest issue! Patient Newsletter | How to easily boost your self-esteem | 1 April 2018
Patient Newsletter | Spring clean your fitness routine | 30 March 2018
Find out more about Patient, check your symptoms. Sign in or sign up via the website >>>
Patient work in partnership with the NHS
Expert Q&A! Just Dealing With Chronic Osteoarthritis Pain – Why it’s important to get proper treatment for chronic pain. | Arthritis Foundation | Daniel Clauw, MD Rheumatologist
Daniel Clauw, MD Rheumatologist gives some expert advice about dealing with Chronic Osteoarthritis Pain.
- A Q&A with Our Rheumatologists – Arthritis Foundation
- Living With Arthritis > Tools Resources > Expert Q A > Osteoarthritis Questions > Chronic OA Pain
Interesting reading! SIP Newsletter March 2018
Please register for the SIP Newsletter via this link >>>
Save the Date – Second Annual Community Symposium
New Service! #MEACTION | Are you a Caregiver for someone with ME? Join our Saturday call.
Do you have ME? visit the MEACTION website for support and advice and the opportunity to join a community with people just like yourself >>>
Do you listen to the Airing Pain Podcasts? Pain Concern | Airing Pain Feedback Survey
Why not visit the website for more information and pain related things
Useful information! Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- This information was published in August 2016 and will be revised in 2019.
For more information regarding mental health help, support and advice please follow the link below.
If you require confidential support you can also find your local support centre via the site!
Namaste Irrfan Khan | RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET | 16 March 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Newsletters via News Medical
Latest! News Medical |Diabetes Newsletter | 3 April 2018
News Medical | Endocrinology Newsletter | 28 March 2018
News Medical | Respiratory Diseases | 26 March 2010
Corrected link! News Medical |Sleep Disorder Newsletter | 19 March 2018
Latest! News Medical | Pediatrics Newsletter | 3 April 2018
- News Medical Home Page >
Patient Research Ambassadors Initiative Issue 2 | 5 February 2018
#whywedoresearch #ResearchAmbassador #PRAI
Would you like to be a research ambassador? Visit here to check out the varying ways you can help.
Something for the Chillout Lounge! Native American Flutes: Beautiful Relaxing Music, Meditation Music, Flute Music ★133
Published on Jan 28, 2018
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
😀
PLEASE NOTE:
- That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
- Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
- FibroFlutters is not a selling site but we will point you in the direction to subscribe to newsletters/magazines and some offer free, some don’t!
- The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
- Our sharing of these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews. It also does not mean that we are affiliated with anyone unless it is clearly stated.
PLEASE:
- Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
- Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
- Always be aware of Internet security and note that we cannot be held responsible for external websites.
- Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
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