#ChronicIllness Morning Post:
My favourite daily’s
- Focus on Disability;
- Autoimmune / Arthritic Systemic Life; Fibromyalgia ME Chronic Pain;
- UK Care Guide;
- My Disability Matters News & Opinion Digest
- The brain and mental health voice;
- Psych Central Daily Newsletter – New today from Psych Central
- Disability News Service …
Twice Daily! news from Focus on Disability
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
For disabled people, the elderly and their carers in the UK
Why not visit and sign up >
Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Don’t forget to check this evenings post for their next update!
Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
#HealthNews #ChronicPain #Autoimmune #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy #chronicillness #invisibleillness
This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.
Rhia Steele – All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.
The Latest Health News & Related Subjects from Rhia at your fingertips
Why not visit and sign up >
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
Don’t forget to check this evenings post for their next update!
Twice Daily! news from UK Care Guide
#carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
Why not visit and sign up >
- Website: UK Care guide
Don’t forget this evenings post for their next update!
Daily! My Disability Matters News & Opinion Digest | See TODAY’s headlines | Visit the link to sign up for their newsletter and to read latest news | 22 March 2018
#disability #disabilitynews chronicillness
Headlines for today
- Animal study hints at link between vitamin D and autism
- Therapy dogs can help reduce student stress, anxiety and improve school attendance
- DWP hides impact of changes to ESA guidance that risked lives
Further reading
- British Airways policy discriminates against disabled woman
- Sharp rise in disability poverty in Wales
- Video: Celebration of International Down Syndrome Day
- Ministers publish bus wheelchair space report
- Disabled people will continue to bear brunt of austerity
Visit and sign up here for Worldwide Disability Matters DAILY News
Twice Daily! Fibromyalgia ME Chronic Pain |
#Fibro #ME #CFS #ChronicPain #invisibleillness
Fibromyalgia ME Chronic Pain is out! How it’s Costing You in Happiness, Financially and in Your Relationships!
Why not visit and sign up >
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – paper.li > fibromyalgia ME /publisher
Don’t forget to check this evenings post for their next update!
New! The brain and mental health voice is out! | selection by Valeria Duflot |
#brain #mentalhealth #chronicillness #invisibleillness
Why not visit and sign up >
Valeria Duflot on Paper Li
- #Socent
- veneziaautentica.com cofounder
- Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
Updates every couple of days!
New today! from Psych Central | Psych Central Daily Newsletter | 21 March 2018
#mentalhealth #depression #anxiety #stress #chronicillness #invisibleillness
Headlines for today
- A Movement Founded On Kindness
- 7 Relationship Maintenance Tips for Healthy Couples
- Exercise Before Psychosis Drug Prevents High Blood Sugar in Mice
- Praise Can Motivate Kids with Autism to Exercise
Sign up for newsletters > Home Page: psychcentral.com/
Disability News Service (DNS)
#disability #disabilitynews
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
Other Newsletters / Magazines / Blogs of interest
including >
Something for the Chillout Lounge! Native American Flutes: Beautiful Relaxing Music, Meditation Music, Flute Music ★133 by ‘Soothing Relaxation’ on youtube.
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Blogger’s Real-life Story! Life After Endometriosis Surgery: Ablation | by ribbonrx | 24 March 2018 | #followfriday
Excerpt:
‘After doing some research on my own, the lightbulb came on. At my follow-up appointment with my new OB/GYN, who had overseen my care in the hospital, I boldly announced I thought I had endometriosis. As an experienced OB/GYN, he immediately agreed with me once he’d asked me some questions about my medical history. He suggested a diagnostic laparoscopy to find out for sure.
Read the whole post >>>
About ribbonrx.com AN INTRODUCTION TO RIBBONRX.COM >>>
Fibromyalgia Awareness Drive TODAY!
FibroFlutters are assisting Sunderland Fibromyalgia group with an awareness drive today where there will be a tombola and table top sale to help raise some funds as well.
LOCATION:
Outpatients reception
Sunderland Royal Hospital
TIME:
10 am – 3 pm
#fibro #fibroawareness #patientadvocacy
Chronic Crafting! Trying Something New & Having Fun! | Gifted Goodies | Michelle Willis | 22 March 2018 | #followfriday
Chronic crafter Michelle tries a new technique as she battles chronic illness and fibromyalgia.
Excerpt:
‘I had lots of old clothes that were too shabby for charity shops and some roving that I had bought with the intention of learning to needle felt but never got round to it! So I was slightly eager to start! I thought you’d like to see how it went!’
Read more about Michelle & ‘giftedgoodiesblog’ >>>
Visit her shop on Etsy >>>
New Post! STAYING INDEPENDENT WITH REDUCED MOBILITY… | backpainbloguk.com | BARMAC5 | 22 March 2018 | #followfriday
This is one of my favourite topics being a wheelchair user and user of 2 walking sticks!
Independence is frequently reduced due to having reduced mobility a lot more than the ‘general-joe’ realises, which often leaves us stuck in the house for long lengths of time before getting out and about. Even with a powered wheelchair my life is not my own, I can’t just hop on it and take off. I need someone to help me so I still have restrictions even though I have the sense of freedom from having the chair!
Opening line:
‘When you suffer from an injury or a long-term illness which leaves you less mobile, it can feel as if you are losing your independence and your ability to do what you want in life.
There’s plenty more to read on BARMAC5’s blog >>>
Research & Something Hopeful! A wearable system to monitor the stomach’s activity throughout the day | University of California – San Diego | 22 March 2018
Opening line:
‘A team of researchers has developed a wearable, non-invasive system to monitor electrical activity in the stomach over 24 hours—essentially an electrocardiogram but for the gastro-intestinal (GI) tract.’
Shared via:
New Patient platform! Be a Supportive Voice for Future Patients | WEGO HEALTH | 19 March 2018
Quote from Stage 5 Melanoma survivor Dan Engel – Author at WEGO HEALTH
“I believe that there are thousands and thousands of survivors like myself who provide informal advocacy on an ad-hoc basis all the time, and would love to be part of a more organized effort to help fellow patients and their families,” Dan shares, “The only thing missing is the technology platform to aggregate those survivors. PatientTrueTalk.com fills that void.”
Exerpt from Introducing PatientTrueTalk.com – A New Way to Help the Newly Diagnosed
Dan Engel | March 19, 2018Recently launched, PatientTrueTalk.com is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages directly to those who they believe represent the closest match. Once a connection is made, the two parties can speak off-line and hopefully form a friendship. My profile is the first “patient advocate” included on the site.
The link is included in the article by #WEGOHEALTH Be a Supportive Voice for Future Patients
Are you a Patient Leader? Why not apply to the WegoHealth Patient Leaders Network and meet many other leaders like yourself, have access to opportunities and a chance to join a superb community of like-minded folks! >>>
Home Page >>>
New Service! #MEACTION | Are you a Caregiver for someone with ME? Join our Saturday call.
Do you have ME? visit the MEACTION website for support and advice and the opportunity to join a community with people just like yourself >>>
Pdf! Medications to prevent and treat chronic migraine – are you aware of all of these options? 21 March 2018
‘If you’re like most people with migraine, you’ve found yourself unable to function at work, participate in a family event, or just be present in the moment due to migraine. Although many know their triggers and can minimize attacks by avoiding triggers and being mindful of lifestyle choices, sometimes that just isn’t enough.’
Read this pdf Developed by Med-IQ in collaboration with the National Headache Foundation.
Visit the National Headache Foundation via this link >>>
Visit Med-IQ via this link >>>
Information & research The Benefits of Individualized Blood Glucose Control | Quinn Phillips| Diabetes Management | 15 March 2018
Why not sign up for their e-newletters >>>
Do you have plantar heel pain? Custom-made foot orthoses appear to be no better than over-the-counter insoles or other treatments | British Medical Journal | 19 March 2018
Opening Lines:
‘Foot orthoses specifically moulded to help people with plantar heel pain appear to be no more effective than cheaper over-the-counter insoles or other treatments, suggests a study published in the British Journal of Sports Medicine.’
Journal reference: British Journal of Sports Medicine
New! Nurse-supported post-stroke voiding program appears helpful | 20 March 2018b via medicalxpress.com
Journal reference: Journal of Clinical Nursing
More information: Abstract
Full Text (subscription or payment may be required)
Vit D Myths! Debunking common vitamin D myths | Yale University | medicalxpress.com 20 March 2018
- Debunking common vitamin D myths
- Provided by: Yale University
New! Study finds care inadequacies in disabled pregnancy, childbirth and early parenting | University of Liverpool | 20 March 2018
Provided by: University of Liverpool
Useful ‘Toolkit’ Live Better with Rheumatoid Arthritis | Arthritis Foundation | 19th March 2018
‘This powerful resource will help you better understand your disease and take a positive step toward living a life of Yes. Get information, tips and tools that will help you work with your doctor to develop the best treatment plan for your unique needs, so you can continue to enjoy the things that are most important to you.’ taken from the webpage
- Better living toolkit for rheumatoid arthritis
- Sponsored by Lilly
Why not visit the site for more useful information and sign up their newsletters / magazines >>>
New! Massage Therapy for Arthritis | The Pain Practitioner – March/April 2017 | Published on Mar 15, 2017
Why not sign up / register with ‘issuu’ to be able to publish your own content or simply to gain free access to read the magazine ‘The Pain Practioner’ and many other magazines too >>>
Via: issuu.com/explore
Who are the ”Academy of Integrative Pain Management’?
Do you listen to the Airing Pain Podcasts? Pain Concern | Airing Pain Feedback Survey
Why not visit the website for more information and pain related things
Exciting new magazine for youths with #rareillness | The RARE Revolution – Youth Takeover is here!!!! – #RareYouthProject| 18 March 2018
‘This magazine has been created and brought to you by the #RareYouthProject. Following a year long programme of work experience and mentoring, our team made up of children and young people aged 8-23 have created the FIRST EVER dedicated, FREE publication for young people affected by rare disease and we hope you enjoy reading it as much as we have enjoyed creating it for you!’
#RareYouthProject RARE Revolution Magazine
‘You can view this publication from a desktop, laptop, mobile or tablet and it is packed with interactive links so you can enjoy the best possible experience when engaging with the content. You can also download the full publication for viewing offline as a pdf. Our full magazine is available as an AUDIO Magazine via our website and by request as a CD.’
Latest! Fibromyalgia Symptoms – Newsletter | Headliner: Can Antidepressants Be Used for Fibromyalgia? | 17 March 2018
Headlines:
- Can Antidepressants Be Used for Fibromyalgia?
- Should You Avoid Coffee with Fibromyalgia
- Poly Fibromyalgia: What is this?
- Neurological Disorders: Is Fibromyalgia Included in this Category?
- Fibromyalgia and Vomiting: Is this Normal?
- TMJ as a Symptom of Fibro
- Marijuana For Fibromyalgia Pain
- Fibromyalgia and its unusual symptoms
- Effects of Hydrotherapy on Fibromyalgia
- How Gabapentin and Fibromyalgia work together in your body
New! Online depression intervention tool found effective in adolescent mothers | Medical News Observer | 17 March 2018
Opening paragraph:
‘Researchers from the University of Louisville found that using an Internet-based depression intervention tool program found effective in improving treatment rates of adolescent depressed mothers. This study is published in journal Archives of Women’s Mental Health.’
- Online depression intervention tool found effective in adolescent mothers
- Research funding: National Institute of Health.
- Adapted from press release by the University of Louisville.
Latest! Patient Newsletter | The truth about the fat in your diet | 17 March 2018
Find out more about Patient, check your symptoms. Sign in or sign up via the website >>>
Patient work in partnership with the NHS
Latest! National Pain Report | CRPS Course for Pediatricians Hoping To Promote Quicker Diagnosis and Treatment | By Ed Coghlan | 17 March 2018
Excerpt >>>
“The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA), with financial underwriting from Zoe’s Heroes, has developed the course, aimed at educating pediatricians and other caregivers.”
Home Page and the opportunity to sign up for their newsletter >>>
New! Human ‘chimeric’ cells restore crucial protein in Duchenne muscular dystrophy | University of Illinois at Chicago | 16 March 2018
- University of Illinois at Chicago
- https://medicalxpress.com/news/2018-03-human-chimeric-cells-crucial-protein.html?
Why not read more interesting articles at >>> https://medicalxpress.com
New! Genetic variant discovery to help asthma sufferers | University of Liverpool | 16 March 2018
Why not read more interesting articles at >>> https://medicalxpress.com
Something a little different! The Arts Health Early Career Research Network
‘The Arts Health ECRN brings together early career researchers working on projects that lie at the intersection of the arts, humanities, health and medicine.’
ECRN website >>>
ECRN Podcasts >>>
https://w.soundcloud.com/player/?url=https%3A//api.soundcloud.com/users/303575619&color=%23256a87&auto_play=true&hide_related=false&show_comments=true&show_user=true&show_reposts=false&show_teaser=true&visual=true“>
Useful information! Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- Parenting with a mental health problem | Mind, the mental health charity – help for mental health problems
- This information was published in August 2016 and will be revised in 2019.
For more information regarding mental health help, support and advice please follow the link below.
If you require confidential support you can also find your local support centre via the site!
Namaste Irrfan Khan | RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET | 16 March 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Survey Opportunity! | US participants Only | WEGOHEALTH |
- Do you have a high insurance deductible?
- Have you ever skipped a doctors appointment because of the cost?
- Do you think the US healthcare system, as it is today, is sustainable?
Please can you help WEGO who are asking the real questions about the state of healthcare in the US and we NEED patients like you to tell them about your experiences?
Please take a moment to share this survey on your channels too, because with a topic like this, we need to hear from as many people as possible.
As a thanks for sharing your insights, they’ll enter you in a drawing to win 1 of 8 Amazon Echo Dots.
- Take the survey here: http://wegoh.co/2t7XKyA
Thank you
Campaign Post! Arthritis Foundation | Be part of the largest arthritis gathering in the world | 7 March 2018
Excerpt:
‘Join our movement where every ONE can make a difference. Our Walk to Cure Arthritis is the largest arthritis gathering in the world, celebrating our warriors, raising funds for research, resources and a cure. Much more than just a walk event, it’s something even bigger than arthritis itself. Join us!’
Just follow the Link below >>>
ARMA Newletter | Arthritis & Musculoskeletal Alliance | March 2018
Who are ARMA? – About ARMA
RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter February 2018 | 5 March 2018
“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”
Ronny’s latest post | RonnyAllan.NET – Community Newsletter February 2018
- Living with Neuroendocrine Cancer | Blog Home Page
Newsletters via News Medical
News Medical |Asthma Newsletter | 5 March 2018
New! News Medical |Sleep Disorder Newsletter | 19 March 2018
Latest! News Medical | Pediatrics Newsletter | 15 March 2018
- News Medical Home Page >
NICE Newsletter | 28 February 2018
National Institute for Health and Care Excellence – NICE – provides national guidance and advice to improve health and social care.
‘Improving health and social care through evidence-based guidance’
Sign up for alerts and newsletters >>>
Citizen Scientist Bulletin #58 | February 2018
Visit the site >>> www.citizenscientist.org.uk/
Patient Research Ambassadors Initiative Issue 2 | 5 February 2018
#whywedoresearch #ResearchAmbassador #PRAI
Would you like to be a research ambassador? Visit here to check out the varying ways you can help.
Something for the Chillout Lounge! Native American Flutes: Beautiful Relaxing Music, Meditation Music, Flute Music ★133
Published on Jan 28, 2018
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
Many thanks for reading and helping to share the news that other folks like you write, or, find.
😀
PLEASE NOTE:
- That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
- Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
PLEASE:
- Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
- Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
- Always be aware of Internet security and note that we cannot be held responsible for external websites.
- Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
Please sign up and keep up to date with FibroFlutters AND #Chronicillness POST
Thanks for including my little blog post. Those tumble dryer balls were fun to make and really easy!
Sounded like fun 😀