Petition | ‘bringing greater awareness of Fibromyalgia to the British Public’

Can you help us to raise awareness through signing the following petition

Have you got the time to sign

‘bringing greater awareness of Fibromyalgia to the British Public’

“… we would like the British broadcasters to feature stories and information on Fibromyalgia more frequently to raise awareness.”

change.org petition sign here

***FibroAwareness UK***
Petition via
Change.org

PLEASE NOTE: This petition was originally Published here on 2015/06/01. I have checked it’s status several times since, and again 29 / 10 / 2019 and it is still live, it has not been closed. Whether the petition organisers are still watching it is unknown to me, but if you wish to sign you can. I just can’t say if it will make a difference, or not. Many thanks ~ Carole

We are a Patient Advocacy Organisation & online social media communications network

FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.

We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.

We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms.

SLOGAN: #chronicillnessVOICE for everyone #notjustpatients

PLEASE NOTE:

We are not medical professionals nor claim to be. Remember that you should always consult your doctor about any health problems and not solely rely on Dr Google, or on any information that you may read online through 3rd parties.

That this site uses google analytics to collect demographic information for content decision making purposes only and not to sell to 3rd parties.

Social and useful links

Its A Doddle – Mapping the communities that care

By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.

FF on It’s a Doddle Community Map

SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019

Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!

FF & its CEO on Synapse

Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.

carole@fibroflutters.com

FibroFlutters are continuously…

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!

Please note that I have opted-in to receive all the newsletters that I post from. PLUS please remember to read their privacy policies.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes. If you have any problems we are always open to discussion, just e-mail Carole

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

One thought on “Petition | ‘bringing greater awareness of Fibromyalgia to the British Public’”

fibrofly73

May 29, 2015 at 3:06 PM

SHOUT IT LOUD!!

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