Avoiding 'Boom and Bust' with Pacing and Spacing - FibroFlutters Patient Advocacy Organisation

I find pacing is difficult to master but it truly does help with managing day to day tasks to minimize the amount of pain & fatigue.

This blog post from ‘blogaboutchronicpain’, (Reflections on Living with Chronic Pain), discusses how to effectively navigate your time and energy by ‘Pacing’ and ‘Spacing’, to avoid overactivity and how to deal with the negative side of overdoing things. Living with any kind of chronic illness can cause fatigue related symptoms making physical activities exhausting and self management is usually the only way to prevent wearing yourself out.

There is a great infographic within the post describing the vicious cycle that we end up on that is complemented with an explanation of how you can break it.

_{Avoiding ‘Boom and Bust’ with Pacing and Spacing}

MAY 26, 2015 ~ SAETH1980

https://blogaboutchronicpain.wordpress.com/2015/05/26/avoiding-boom-and-bust-with-pacing-and-spacing/

This post is reblogged from:-

blogaboutchronicpain – Reflections on Living with Chronic Pain

_{Other useful reading:}

Oxford University Hospitals NHS TRUST – Pacing pdf for download –

https://www.ouh.nhs.uk/patient-guide/leaflets/files/11850Ppacing.pdf

physio.co.uk – Pacing for pain management

https://www.physio.co.uk/treatments/pain-management/pacing.php

logos and info banner header link to home page

Flutters and Strutters

FibroFlutters and ZebraStrutters

We are a Patient Advocacy Organisation & online social media communications network. Our services are for people affected by chronic illnesses and rare disease. This includes care providers, health professionals and those within the medical healthcare related industries. #notjustpatients

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.

To help develop, nurture and help to create a multidisciplinary approach to all aspects of medical healthcare so that #chronicillness & #raredisease patients can receive the type of care and treatments that they need.

The work we do involves disease awareness, health awareness, and, helping to point people in the direction of where to get legitimate health communications and information. As well as this we attend events and use patient voice to get important messages to help create better systems and processes for patients.

Bridging the gap between stakeholders is a different type of awareness raising. It involves sharing events and campaigns by clinicians, pharmaceutical companies, patient led projects, healthcare providers… the list is quite variable. We have newsletters to ensue this which uses our slogan – #chronicillnessVOICE for everyone #notjustpatients

Read our About FibroFlutters Page

Privacy Policy – FibroFlutters

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

Rare Disease Advocacy

SYNAPSE Powered by The Synergist.

The global Patient Engagement map and network
Find everything about patient engagement and make your content available to the community.

Carole on Synapse

FibroFlutters on Synapse

_{The UK’s First Network of Connected Community Maps by It’s A Doddle}

Flutters on It’s A Doddle Community Map

Join the Community

Incorporated under the Companies Act 2006 as a private company, that the company is limited by guarantee, and the situation of its registered office is in England and Wales. Reg. No. 14065901